2016
DOI: 10.1377/hlthaff.2015.1512
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Authentic Engagement Of Patients And Communities Can Transform Research, Practice, And Policy

Abstract: The engagement of patients and the public is increasingly important in the design and conduct of research. Some researchers still cling to the outdated notion that laypeople cannot contribute meaningfully to science; for some, “community engagement” is another term for recruiting patients for trials. Authentic engagement encompasses far more, involving stakeholders as full partners in all phases of research, as research funders increasingly require. Such engagement, although challenging, can enhance the qualit… Show more

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Cited by 159 publications
(167 citation statements)
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“…For example, the concept of respect is central to the rise of community engaged research and patient oriented outcomes research (Ross et al 2010; Holzer et al 2014. ; Woolf et al 2016). …”
mentioning
confidence: 99%
“…For example, the concept of respect is central to the rise of community engaged research and patient oriented outcomes research (Ross et al 2010; Holzer et al 2014. ; Woolf et al 2016). …”
mentioning
confidence: 99%
“…In recent years the term "patient engagement" has been used loosely with different meanings in various research and healthcare settings, 15 and the practice of patient engagement has evolved as it is increasingly embedded into routine research and the challenges and lessons are shared. 5,10,[15][16][17][18][19] Therefore, the INVOLVE group has clarified levels of engagement 20 which include:…”
Section: Understanding "Patient Engagement"mentioning
confidence: 99%
“…A key feature of community-based and patient-centered outcomes research is partnering with community stakeholders from a project’s inception to ensure that it offers value to the community, is culturally appropriate, and is likely to yield sustainable improvements in prioritized outcomes [1]. Engaging persons from hard-to-reach or vulnerable communities has high priority, given evidence that lack of engaging racial-ethnic minorities and lower socioeconomic populations in research and decision-making contributes to disparities in enrollment in randomized clinical trials, cancer prevention, and access to evidence-based advances in medicine [25].…”
Section: Introductionmentioning
confidence: 99%