Authors’ Reply: Response to “Older Cancer Patients’ User Experiences With Web-Based Health Information Tools: A Think-Aloud Study”

ObjectiveThis paper outlines the participatory development process of a web-based preparatory communication tool for elderly cancer patients and their oncological healthcare providers (HCPs). This tool aims to support them to (better) prepare their encounters. An overarching aim of the project is to develop the tool in a participatory way to increase uptake and use.MethodsScrum, a participatory framework originated from software development, was applied to develop the tool. Using constant feedback loops, elderly (former) cancer patients, oncological HCPs and their representatives were, as end-users, involved.ResultsDuring six ‘sprints’, the communication tool ‘ListeningTime’ was developed with input from end-users. The use of scrum in developing an innovative tool was challenging in this context, because of time constraints of seriously-ill patients and busy HCPs and the co-creation involving non-profit scientific researchers and a for-profit development company.ConclusionsThe collaboration with end-users facilitated the development process of ListeningTime. Early involvement of end-users and flexibility in terms of planning and setup appear to be preconditions for creating a bottom-up inspired development procedure. Several challenges emerged from using scrum as participatory framework. Nevertheless, the ‘pressure cooking situation’, using scrum, resulted in a quick development process and a product ready for implementation.

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ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers

Noordman

Driesenaar

Bruinessen

et al. 2017

Internet Interventions

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Non-use of telemedicine: A scoping review

Reinhardt

Schwarz

Harst

2021

Health Informatics J

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Many telemedicine interventions fail to be implemented in medical care with non-use and discontinued use by patients being among the major reasons. The aim of this scoping review was to provide an overview of barriers associated with non-use and discontinued use of telemedicine. An electronic search was conducted in Pubmed in October 2019 and updated in November 2020, followed by a hand search in the beginning of 2021. All potential articles were screened by two independent reviewers based on predefined inclusion and exclusion criteria. A qualitative content analysis according to Mayring was carried out. The topics ‘intervention’, ‘context of use’ and ‘user’ were chosen as overarching themes. Out of 1377 potentially relevant articles, 73 were included. User-related barriers were mentioned in most of the analysed studies, followed by barriers related to the intervention. The analysis provides the basis for overcoming non-use issues in telemedicine.

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The role of emotions in cancer patients’ decision-making

Mazzocco

Masiero

Carriero

et al. 2019

ecancer

103

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Introduction: Despite the attempt to make decisions based on evidence, doctors still have to consider patients' choices which often involve other factors. In particular, emotions seem to influence the way that options and the surrounding information are interpreted and used. Objective: The objective of the present review is to provide a brief overview of research on decision making and cancer with a specific focus on the role of emotions. Method: Thirty-nine studies were identified and analysed. Most of the studies investigated anxiety and fear. Worry was the other psychological factor that, together with anxiety, played a crucial role in cancer-related decision-making. Results: The roles of fear, anxiety and worry were described for detection behaviour, diagnosis, choice about prevention and curative treatments and help-seeking behaviour. Results were inconsistent among the studies. Results stressed that cognitive appraisal and emotional arousal (emotion's intensity level) interact in shaping the decision. Moderate levels of anxiety and worry improved decision-making, while low and high levels tended to have no effect or a hindering effect on decision making. Moderating factors played an under-investigated role. Conclusions: Decision making is a complex non-linear process that is affected by several factors, such as, for example, personal knowledge, past experiences, individual differences and certainly emotions. Research studies should investigate further potential moderators of the effect of emotions on cancer-related choice. Big data and machine learning could be a good opportunity to test the interaction between a large amount of factors that is not feasible in traditional research. New technologies such as eHealth and virtual reality can offer support for the regulation of emotions and decision making.

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Authors’ Reply: Response to “Older Cancer Patients’ User Experiences With Web-Based Health Information Tools: A Think-Aloud Study”

Cited by 3 publications

References 3 publications

ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers

ListeningTime; participatory development of a web-based preparatory communication tool for elderly cancer patients and their healthcare providers

Non-use of telemedicine: A scoping review

The role of emotions in cancer patients’ decision-making

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