Autism and Pediatric Practice: Toward a Medical Home

Hyman, Susan; Johnson, Jara K.

doi:10.1007/s10803-012-1474-3

Cited by 59 publications

(26 citation statements)

References 46 publications

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“…Pediatricians typically see children for at least 11 well-child visits by their third birthdays and are a good source of continuous care, support, and education for families with children with ASD. 30 Specialized therapies such as OT and ST target core symptoms in self-regulation, cognition, and social-communication skills. Similarly, social skills training, a common treatment method for adolescents, can be effective for those with high-functioning autism in natural, everyday educational settings.…”

Section: Original Research and Contributionsmentioning

confidence: 99%

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Becerra

Massolo²,

Yau³

et al. 2017

TPJ

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Introduction: Autism spectrum disorders (ASD) are lifelong neurodevelopmental disorders, and little is known about how parents address the health and psychosocial consequences of ASD. Few studies have examined use of various treatments and services in a large, diverse sample of children with ASD and their families.Objective: This paper presents methods to create an autism research resource across multiple large health delivery systems and describes services and treatments used by children with ASD and their families.Methods: Four study sites conducted a Web survey of parents of children and adolescents with ASD who were members of Kaiser Permanente. We tabulated data distributions of survey responses and calculated c 2 statistics for differences between responders and nonresponders.Results: The children of the 1155 respondents were racially and ethnically diverse (55% white, 6% black, 5% Asian, 9% multiracial, 24% Hispanic) and representative of the total population invited to participate with respect to child sex (83% male), child age (57% < 10 years), and ASD diagnosis (64% autistic disorder). The most frequently used services and treatments were Individualized Education Programs (85%), family physician visits (78%), and occupational and speech therapy (55% and 60%, respectively). Home-based programs frequently included implementation of social skills training (44%) and behavior management (42%). Prescription medication use was high (48%). Caregivers reported disruption of personal and family routines because of problem behaviors.Conclusion: These survey data help to elucidate parents' experiences with health services for their children with ASD and serve as a potential resource for future research.

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Section: Original Research and Contributionsmentioning

confidence: 99%

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Becerra

Massolo²,

Yau³

et al. 2017

TPJ

View full text Add to dashboard Cite

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“…[2][3][4] However, caregivers of children with ASD have reported that obtaining appropriate and timely care is often difficult and costly, 5 and many are dissatisfied with the process of obtaining care. 6,7 Caregivers of children with ASD report more unmet needs for a variety of services than caregivers of children with other emotional, developmental, or behavioral difficulties. 8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care.…”

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confidence: 99%

Differences in Perceived Need for Medical, Therapeutic, and Family Support Services Among Children With ASD

2016

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OBJECTIVE: Identifying racial and ethnic differences in perceived need for treatment among families of children with autism spectrum disorder (ASD) will improve understanding of disparities in care seeking. We described racial and ethnic differences in perceived need for services that children with ASD and their families frequently use. METHODS:We conducted bivariate analyses of racial and ethnic categories and perceived need for 6 common services used by children with ASD as found in the 2005 to 2006 (n = 2123) and the 2009 to 2010 (n = 3055) National Survey of Children With Special Health Care Needs data sets. Multivariate logistic regressions within concatenated data sets were conducted to examine associations between racial and ethnic category and perceived service needs while controlling for predisposing, enabling, and child factors. RESULTS:Compared with caregivers of white non-Hispanic children with ASD, caregivers of Hispanic children reported less need for prescription medications in adjusted multivariate analyses. Caregivers of black non-Hispanic children with ASD reported less need for prescription medications and for child and family mental health services than caregivers of white non-Hispanic children. Both English-speaking Hispanic caregivers and black nonHispanic caregivers reported greater need for occupational, speech, and physical therapy than white non-Hispanic caregivers. No racial or ethnic differences were found in perceived need for specialty medical care or respite care. CONCLUSIONS:Caregivers of children with ASD from different racial and ethnic backgrounds may differentially perceive need for different types of care. Their perceptions may in turn affect how they prioritize and seek care, independent of their child's specific needs. Dr Benevides conceptualized and designed the study, analyzed the data, and drafted the initial manuscript; Dr Carretta contributed to the study design, data management, data analysis, and interpretation of the fi ndings and critically reviewed and revised the manuscript; Dr Mandell contributed to the study design and interpretation of the fi ndings and critically reviewed and revised the manuscript; and all authors approved the fi nal manuscript as submitted. [2][3][4] However, caregivers of children with ASD have reported that obtaining appropriate and timely care is often difficult and costly, 5 and many are dissatisfied with the process of obtaining care. 6,7 Caregivers of children with ASD report more unmet needs for a variety of services than caregivers of children with other emotional, developmental, or behavioral difficulties. 8,9 Caregivers of children with ASD who are from racial or ethnic minority groups experience even greater difficulty than nonminority caregivers obtaining care. [10][11][12][13][14] Authors of these studies finding racial or ethnic differences in type and quality of care suggest that these differences may not result solely from health care system or provider factors (eg, availability of providers, sensitivity of provide...

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“…The practice recommendations and novel findings relevant to clinical practice can support primary care practitioners in their efforts to provide a medical home for children with ASD and foster holistic and coordinated care over time. 17 Follow-up studies are needed to track the implementation of these recommendations and their impact on child and family well-being and quality of life.…”

Section: Potential Conflict Of Interestmentioning

confidence: 99%