Awareness and Actual Knowledge of Palliative Care Among Older People: A Dutch National Survey

Bergman, Tessa D; Plas, A.G.M. van der; Pasman, H. Roeline W.

doi:10.1016/j.jpainsymman.2023.05.005

Cited by 4 publications

(7 citation statements)

References 32 publications

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“…Awareness of HCP in our study was similar to that of a previous report regarding HPC awareness among Korean adults [ 27 ]. Compared to HPC awareness rates of 30–90% in other countries [ 9 , 36 , 39 ], the awareness rate in our study participants was relatively low. This result might be due to the relatively recent national policy to promote HPC and the low utilization of HPC compared to total deaths [ 24 , 25 , 27 , 40 ].…”

Section: Discussioncontrasting

confidence: 85%

“…Previous studies also have reported mixed results regarding gender. Some studies reported that females had higher awareness of ACP and HPC [ 36 , 39 , 47 ], whereas other studies revealed no significant associations between gender and such awareness [ 37 , 43 ]. Further research is needed on the relationship between sociodemographic factors and awareness of ACP and HPC.…”

Section: Discussionmentioning

confidence: 99%

“…First, variables such as experience with ACP or HPC through family or friends was not assessed because it was unavailable in the survey data. Prior research studies have revealed that experience with ACP and HPC through family, friends, and/or acquaintances is positively associated with the awareness [ 39 , 58 ]. Close friends or relatives who have received HPC can be key sources of information of care [ 81 ].…”

Section: Discussionmentioning

confidence: 99%

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Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Kim,

Lee,

Choi

2023

BMC Palliat Care

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Context Advance care planning (ACP) and hospice palliative care (HPC) have potential benefits for individuals and health systems. Public awareness of them might increase their acceptance. Objectives To examine public awareness of ACP and HPC and related factors including individuals’ experience of health care among Korean population. Methods A cross-sectional study based on a nationally representative sample was conducted. Data from participants aged 15 years or older were examined. Socio-demographic characteristics, health-related factors, health care experience in the past year, and awareness of ACP and HPC were analyzed. Subgroup analysis was conducted to determine associations between specific experiences during outpatient visit and awareness of ACP and HPC. Results Of a total of 13,546 subjects, 39.3% and 35.7% reported awareness of ACP and HPC, respectively. About half (48.6%) of participants reported that they were completely unaware of ACP or HPC. Recent outpatient visit was positively associated with HPC awareness. Participants were more likely to recognize ACP or HPC if they had experience in hospitalization and health checkup over the past year and had trust in the medical system. Conversely, participants who had inadequate health care access due to cost burden showed low awareness of ACP and HPC. Conclusion There was a lack of public awareness of ACP and HPC. There were significant differences depending on various factors, especially individual health care experiences. Appropriate interventions are needed to facilitate discussion of ACP and HPC, thereby increasing public awareness.

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Section: Discussioncontrasting

confidence: 85%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Kim,

Lee,

Choi

2023

BMC Palliat Care

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“…When specific knowledge was assessed within this study, only 29.8% of respondents knew that palliative care means no exclusion of other therapies such as radiation. Furthermore, 23.5% of respondents knew that palliative care is not only for patients in the last few weeks of their lives [36]. In a On the basis of the main findings for the general population, a narrative synthesis of young adults' knowledge and perception of palliative care answered the main research question.…”

Section: General Population: Knowledge and Perception Of Palliative Carementioning

confidence: 99%

“…When specific knowledge was assessed within this study, only 29.8% of respondents knew that palliative care means no exclusion of other therapies such as radiation. Furthermore, 23.5% of respondents knew that palliative care is not only for patients in the last few weeks of their lives [36]. In a study from Sweden, 41% of respondents had not known what palliative care was; 43% had heard of palliative care, however, they only had superficial knowledge [37].…”

Section: General Population: Knowledge and Perception Of Palliative Carementioning

confidence: 99%

The General Public and Young Adults’ Knowledge and Perception of Palliative Care: A Systematic Review

Batzler,

Schallenburger,

Schwartz

et al. 2024

Healthcare

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Background: As a result of demographic change, chronic and oncological diseases are gaining importance in the context of public health. Palliative care plays a crucial role in maintaining the quality of life of those affected. International guidelines demand access to palliative care not only for the elderly but also for younger people who face severe illnesses. It can be assumed that palliative care will become increasingly important for them. In order to develop public health strategies which are able to promote palliative care, it is important to assess the knowledge of, and attitude towards, palliative care as found among members of the general public and its specific target groups. In particular, little is known about young adults’ knowledge and perceptions of palliative care. Objectives and design: This work aimed to assess the understanding and viewpoints regarding palliative care among the general population and among young adults aged 18 to 24. We therefore conducted a systematic review, which, for this target population, could be seen as a novel approach. Methods: Exclusion and inclusion criteria were developed using the PICOS process. Literature was researched within MEDLINE (via PubMed), Google Scholar and Web of Science. A search string was developed and refined for all three databases. Grey literature was included. Duplicates were excluded using Mendeley. The literature was independently screened by two researchers. Narrative synthesis was used to answer the main research question. Results: For the general public, palliative care is still associated with death and dying and comforting sick people towards the end of their lives. Multiple social determinants are linked to better knowledge of palliative care: higher education, higher income, female gender, having relatives that received palliative care, and permanent employment. The population’s knowledge of palliative care structures increases, the longer such structures have been established within a country. Young adults are familiar with the term palliative care, yet their understanding lacks nuance. They associate palliative care with death and dying and perceive palliative care to be a medical discipline primarily for the elderly. Nevertheless, young adults demand participation within the planning of interventions to destigmatize palliative care. Conclusions: The general public still lacks a detailed understanding of palliative care. Palliative care faces stigma at multiple levels, which creates barriers for those who set out to implement it. However, addressing young adults as a crucial peer group can help break down barriers and promote access to palliative care.

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Knowledge and Attitude of the General Public Toward Palliative Care in Jordan: A Cross-Sectional Study

Altarifi,

Baker,

Abedal-Kareem

et al. 2024

Am J Hosp Palliat Care

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Palliative care is directed to relieve the symptoms of serious and life-threatening illnesses. Unfortunately, it’s usually provided lately in the disease course in developing countries due to a lack of awareness about its concept, which deprives many patients of its benefits. This study aims to investigate the knowledge and attitude of the Jordanian general public toward palliative care. A cross-sectional study was conducted using an electronic questionnaire via social media platforms. Knowledge about palliative care was measured using the “Palliative Care Knowledge Scale” (PaCKS), whereas the attitude was measured using an edited version of the “Frommelt Attitudes Toward Care of the Dying -B(FATCOD-B)” tool. The inclusion criteria were adults older than 18 years old who live in Jordan. Any subject who was younger than 18 years old, refused to give informed consent, and working or studying in a healthcare-related profession was excluded. 329 respondents filled out the survey (females = 214 (65%), mean age = 32.7 ± (13.63) years). Only 67 respondents (20.4%) heard about palliative care previously. The average knowledge score (out of 13) was 6.8 (±4.2). The average attitude score (out of 5) was 3.0 (±.4). Higher knowledge self-evaluation, older age, and higher income were factors associated with a higher level of knowledge and favorable attitude toward palliative care. Our study showed a moderate knowledge and neutral attitude toward palliative care. Further awareness campaigns should be conducted to raise the awareness of the Jordanian society regarding the objectives of palliative care.

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Awareness and Actual Knowledge of Palliative Care Among Older People: A Dutch National Survey

Cited by 4 publications

References 32 publications

Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

The General Public and Young Adults’ Knowledge and Perception of Palliative Care: A Systematic Review

Knowledge and Attitude of the General Public Toward Palliative Care in Jordan: A Cross-Sectional Study

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