Awareness and Utilization of Palliative Care Among Advanced Cancer Patients in Asia

Özdemir, Semra; Lee, Jia Jia; Yang, Grace Meijuan; Malhotra, Chetna; Teo, Irene; Phạm, Ngọc Hiếu; Manalo, Maria Fidelis; Hapuarachchi, Thushari; Mariam, Lubna; Rahman, Rubayat; Finkelstein, Eric A.

doi:10.1016/j.jpainsymman.2022.06.001

Cited by 8 publications

(8 citation statements)

References 25 publications

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“…Awareness of HCP in our study was similar to that of a previous report regarding HPC awareness among Korean adults [ 27 ]. Compared to HPC awareness rates of 30–90% in other countries [ 9 , 36 , 39 ], the awareness rate in our study participants was relatively low. This result might be due to the relatively recent national policy to promote HPC and the low utilization of HPC compared to total deaths [ 24 , 25 , 27 , 40 ].…”

Section: Discussioncontrasting

confidence: 85%

“…HPC is associated with improved patient symptom control, increased satisfaction with care, and reduced hospitalizations or emergency department visits [ 7 , 8 ]. Despite these benefits of ACP and HPC, both remain underutilized by the public, showing significant socioeconomic, racial, and national disparities in utilization [ 6 , 9 – 13 ].…”

Section: Introductionmentioning

confidence: 99%

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Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Kim,

Lee,

Choi

2023

BMC Palliat Care

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Context Advance care planning (ACP) and hospice palliative care (HPC) have potential benefits for individuals and health systems. Public awareness of them might increase their acceptance. Objectives To examine public awareness of ACP and HPC and related factors including individuals’ experience of health care among Korean population. Methods A cross-sectional study based on a nationally representative sample was conducted. Data from participants aged 15 years or older were examined. Socio-demographic characteristics, health-related factors, health care experience in the past year, and awareness of ACP and HPC were analyzed. Subgroup analysis was conducted to determine associations between specific experiences during outpatient visit and awareness of ACP and HPC. Results Of a total of 13,546 subjects, 39.3% and 35.7% reported awareness of ACP and HPC, respectively. About half (48.6%) of participants reported that they were completely unaware of ACP or HPC. Recent outpatient visit was positively associated with HPC awareness. Participants were more likely to recognize ACP or HPC if they had experience in hospitalization and health checkup over the past year and had trust in the medical system. Conversely, participants who had inadequate health care access due to cost burden showed low awareness of ACP and HPC. Conclusion There was a lack of public awareness of ACP and HPC. There were significant differences depending on various factors, especially individual health care experiences. Appropriate interventions are needed to facilitate discussion of ACP and HPC, thereby increasing public awareness.

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Section: Discussioncontrasting

confidence: 85%

Section: Introductionmentioning

confidence: 99%

Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Kim,

Lee,

Choi

2023

BMC Palliat Care

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“…The largest difference between the two sites was seen in their spiritual well-being scores, with inpatients reporting markedly low scores indicative of reduced spiritual status as they approached the end of their lives. These findings highlight the need for improving awareness and capacity, such as expanding healthcare manpower and resources [ 59 ], opioid availability [ 60 ], and hospice care services and awareness of these services [ 37 ] which are severely lacking or limited in the country.…”

Section: Discussionmentioning

confidence: 99%

“…A cross-sectional survey was conducted as part of the “Asian Patient Perspectives Regarding Oncology Awareness, Care and Health (APPROACH) project across nine LMICs in Asia. This larger project set out to investigate patients living with advanced cancer regarding various domains: HRQOL [ 33 ], quality of care [ 34 ], perceived and preferred levels of involvement in decision-making [ 35 ], understanding of prognosis [ 36 ], awareness and utilization of hospice palliative care services [ 37 ], mental health services [ 38 ], as well as cancer-related self-blame [ 39 ] and social stigma [ 40 ].…”

Section: Methodsmentioning

confidence: 99%

Quality of life and its predictors among patients with metastatic cancer in Bangladesh: the APPROACH survey

Rahman,

Mariam,

et al. 2024

BMC Palliat Care

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Background This study aimed to assess the health-related quality of life (HRQOL) (physical, functional, emotional, social, spiritual) and psychological (anxiety and depression) well-being and their associations with patient characteristics among patients with metastatic cancer in Bangladesh. Methods A convenience sample of 386 Bangladeshi patients with stage IV solid cancers was recruited from a palliative care outpatient department and an inpatient palliative center. Dependent variables included the physical, functional, emotional, social, and overall scores of the Functional Assessment of Cancer Therapy-General (FACT-G) scale, the Functional Assessment of Chronic Illness Therapy-Spiritual Well-being (FACIT-SP) scale, the anxiety, depression, and overall scores of the Hospital Anxiety and Depression (HADS) scale. Linear regressions examined the association between dependent variables and patient characteristics. Results A substantial proportion of Bangladeshi patients reported anxiety (59% of outpatients and 55% of inpatients) and depression (60% of outpatients and 73% of inpatients) symptoms. Generally, greater financial difficulty and symptom burden scores were associated with worse health outcomes. Older patients reported poorer functional and spiritual well-being but better anxiety scores. Females reported worse anxiety and depressive symptoms and physical well-being but better spiritual outcomes. Conclusions Additional efforts must be directed at improving the HRQOL of patients with metastatic cancer in Bangladesh. Furthermore, assistance should be made more accessible to vulnerable groups, including women, the elderly, and those with financial difficulty.

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“…Regardless of the method chosen, there is homogeneity in the outcomes: it is concluded that most cancer patients had low to moderate knowledge about palliative care 20,22,23,32,33 , closely associated with end-of-life care, impossibility of cure and exclusive care for hospitalized patients and cancer patients 14,16,22,33 .…”

Section: Discussionmentioning

confidence: 99%

Knowledge of patients with cancer about palliative care: a bibliometric study

Silva Filho,

Costa,

Barbosa

et al. 2023

Rev. Bioét.

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This research seeks to characterize the bibliometric indicators regarding cancer patients’s knowledge about palliative care. Bibliographic search associating the descriptors “ patient, ” “ palliative care, ” “ knowledge ” and “ neoplasm ” found low publication ratio and limited conexion among authors. Asian countries account for most publications, but the level of knowledge on the topic was limited given its strong association with end-of-life care aimed at hospitalized cancer patients without possibility of cure. Mapping the main bibliometric indicators on knowledge about palliative care pointed out the need for further publications on the topic to provide better understanding.

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Awareness and Utilization of Palliative Care Among Advanced Cancer Patients in Asia

Cited by 8 publications

References 25 publications

Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Public awareness of advance care planning and hospice palliative care: a nationwide cross-sectional study in Korea

Quality of life and its predictors among patients with metastatic cancer in Bangladesh: the APPROACH survey

Knowledge of patients with cancer about palliative care: a bibliometric study

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