Backbone of Care: Lived Experiences of Family Caregivers of Stroke Survivors in Guadalupe, Cebu City

The impact of caregiving on the roles and valued activities of stroke carers: A systematic review of qualitative studies

“…The most frequent reason for exclusion was not explicitly addressing carer activities, roles, or wellbeing. Three additional studies were identified through an updated database search in October 2023 [27][28][29]. Therefore, a total of 36 studies reporting on 34 unique samples met the inclusion criteria and were included in this review [7,10,12,13,.…”

“…Characteristics of the included studies are presented in Table 1. The studies were published between 1997 [40] and 2023 [29] and three studies involved the participation of both stroke survivors and carers [30,38,48]. Studies were conducted across 12 countries, including the United States (n = 9), Canada (n = 5), United Kingdom (n = 6), and Australia (n = 4).…”

“…A total of 601 carers were recruited across studies and the number of carer participants per study ranged from 3 [55] to 73 [27]. Of the studies that reported age, the mean age of carers ranged from 43.8 [29] to 65.5 years [37]. The majority of study participants were female (mean 80.9%), and 13 studies focused exclusively on female carers [13,26,29,31,33,35,39,41,43,45,50,53,55].…”

“…Of the studies that reported age, the mean age of carers ranged from 43.8 [29] to 65.5 years [37]. The majority of study participants were female (mean 80.9%), and 13 studies focused exclusively on female carers [13,26,29,31,33,35,39,41,43,45,50,53,55]. Data were collected via interviews (n = 28) [7, 12, 13, 26, 28-38, 40-44, 46-49, 51-55, 57], publicly available social media posts (n = 2) [27,56], focus groups (n = 1) [39], questionnaires (n = 1) [50], or a combination of methods such as focus groups and interviews (n = 2) [10,45].…”

“…Data were collected via interviews (n = 28) [7, 12, 13, 26, 28-38, 40-44, 46-49, 51-55, 57], publicly available social media posts (n = 2) [27,56], focus groups (n = 1) [39], questionnaires (n = 1) [50], or a combination of methods such as focus groups and interviews (n = 2) [10,45]. The majority of studies collected data in person (n = 20) [10,12,28,30,31,34,36,37,39,[42][43][44][45][46][47][48][49][52][53][54][55], with other data collection methods including online posts or platforms (n = 3) [27,29,56], via telephone (n = 2) [41,58], or a combination of telephone and face-to-face (n = 6) [7,13,26,33,35,40,57]. The majority (n = 21) of the interviews and focus group ranged from 30 to 120 minutes in duration [10, 12, 13, 26, 29-33, 35, 37-39, 42-46, 52, 53, 55, 57].…”