Barrieren für Gespräche über Tod und Sterben in der Medizin

Seifart, Carola; Nagelschmidt, Katharina; Blanckenburg, Pia von

doi:10.1055/a-1002-8080

Cited by 9 publications

(23 citation statements)

References 32 publications

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“…These barriers may be of emotional (for example, anxiety or grief ), cognitive (for example, not acknowledging the severity of the disease), or cultural nature (taboo subject), and may be related to the patient, but also to the physician. 18 It is, however, known that early communication about the end of life results in better palliative-medical care and may thus improve the quality of life. 13 Moreover, fears of uncertainty are relieved, when certain scenarios have already been simulated, and affected patients will be able to manage affairs important to them, thus retaining control over their life.…”

Section: Discussionmentioning

confidence: 99%

End‐of‐life wishes and care planning for patients with advanced skin cancer

Volberg,

Schrade,

Heers

et al. 2023

J Deutsche Derma Gesell

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SummaryBackgroundPatients with advanced or metastatic skin cancer have a limited life expectancy and the majority die as a result of the tumor despite modern treatment options. The preferences of these patients concerning care during their last phase of life are currently unknown.Patients and methods150 patients with advanced skin cancer (AJCC/UICC stage III or IV) were interviewed using a structured questionnaire.Results75% of the respondents wished to die in their domestic environment, although a more advanced tumor stage and increased reflection upon end‐of‐life care lead away from this wish. However, only 42% reported having communicated this wish to someone else. 55% of the respondents had completed advance directives, while younger patients did this significantly less often (95% CI: 0.11–0.56; p = 0.001). The majority of patients (62%) would like to have discussions about possibilities for end‐of‐life care with the attending dermato‐oncologist.ConclusionsAlthough the moment of death is unpredictable, early initiation of end‐of‐life advance care planning appears prudent. The attending dermato‐oncologists should take the initiative to raise the subject with their patients during routine control visits. In this context, it may be useful to present available care options to patients and relatives and to design strategies for the event of deteriorating health.

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Section: Discussionmentioning

confidence: 99%

End‐of‐life wishes and care planning for patients with advanced skin cancer

Volberg,

Schrade,

Heers

et al. 2023

J Deutsche Derma Gesell

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“…Many professionals have children at the age of these patients, and there is an intimate relationship established with both patients and parents during the hospitalization period. Moreover, the general population believes that this public (child and adolescent) should not die before parents (9)(10) . Thus, death communication due to BD becomes a difficult task, among many that this professional needs to perform in their care practice.…”

Section: Introductionmentioning

confidence: 99%

“…Thus, this activity in daily practice, in most cases, becomes a moment that generates several feelings, such as anguish, fear and stress, and may also trigger different emotions in relation to the age factor and circumstance of death (10) . Studies indicate weaknesses by the health staff to conduct the communication of this death (5,11) , since dealing with this situation becomes even more painful due to these professionals not feeling prepared for communicate.…”

Section: Introductionmentioning

confidence: 99%

Brain death communication with parents of children and adolescents: care strategies

et al. 2022

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Objectives: to identify care strategies developed by professionals from critically ill patients’ units in communicating BD with parents of children and adolescents. Methods: an exploratory and descriptive research with a qualitative approach, carried out in two health institutions between October and December 2019, through semi-structured interviews. Data analysis took place through content analysis. Results: twenty-one professionals participated. Three care strategies were identified: actual clinical situation in suspected brain death; sensitizing families to the real clinical situation after brain death diagnosis; and time to assimilate the death information. Final Considerations: the care strategies for communicating brain death to families identified in this study present the possibility of subsidizing health managers in training and support promotion for professionals in care practice. Moreover, they can be incorporated and validated in the care practice of the studied context.

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“…Muitos dos profissionais têm filhos na idade destes pacientes, e há a relação íntima estabelecida tanto com o paciente quanto com os pais durante o período de hospitalização. Ademais, é presente a crença da população em geral de que esse público (criança e adolescente) não deve morrer antes que os pais (9)(10) . Neste sentido, a comunicação da morte em decorrência da ME torna-se uma tarefa difícil, dentre tantas que este profissional precisa desempenhar em sua prática assistencial.…”

Section: Introductionunclassified

“…Assim, essa atividade na prática diária, na maioria das vezes, torna-se um momento que gera diversos sentimentos, como angústia, medo e estresse, podendo também desencadear diferentes emoções em relação ao fator idade e circunstância da morte (10) . Estudos apontam fragilidades da equipe de saúde para conduzir a comunicação desta morte (5,11) , uma vez que lidar com essa situação se torna ainda mais doloroso devido a esses profissionais não se sentirem preparados para a comunicação.…”

Section: Introductionunclassified

Comunicação da morte encefálica junto aos pais de crianças e adolescentes: estratégias de cuidados

et al. 2022

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RESUMO Objetivos: identificar estratégias de cuidados desenvolvidas pelos profissionais das unidades de pacientes críticos na comunicação da morte encefálica junto aos pais de crianças e adolescentes. Métodos: pesquisa exploratória e descritiva com abordagem qualitativa, realizada em duas instituições de saúde entre outubro e dezembro de 2019, por meio de entrevistas semiestruturadas. A análise dos dados ocorreu através da análise de conteúdo. Resultados: participaram 21 profissionais. Foram três estratégias de cuidados identificadas: real situação clínica na suspeita de morte encefálica; sensibilizando a família da real situação clínica após o diagnóstico de morte encefálica; e tempo para assimilar a informação da morte. Considerações Finais: as estratégias de cuidados para comunicação de morte encefálica às famílias identificadas neste estudo apresentam a possibilidade de subsidiar gestores de saúde na promoção de capacitações e apoio aos profissionais na prática assistencial. Além disso, podem ser incorporadas e validadas na prática assistencial do contexto estudado.

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Barrieren für Gespräche über Tod und Sterben in der Medizin

Cited by 9 publications

References 32 publications

End‐of‐life wishes and care planning for patients with advanced skin cancer

End‐of‐life wishes and care planning for patients with advanced skin cancer

Brain death communication with parents of children and adolescents: care strategies

Comunicação da morte encefálica junto aos pais de crianças e adolescentes: estratégias de cuidados

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