Barriers and Facilitators to Family-centred Paediatric Physiotherapy
                        Practice in the Home setting: A Pilot Study

Vajravelu, Saipriya; Solomon, Patricia

doi:10.5463/dcid.v24i4.220

Cited by 5 publications

(4 citation statements)

References 11 publications

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“…In India, cultural beliefs perpetuate negative attitudes towards disability. For example, mothers are blamed for their child’s disability (Singal, et al, 2011; Vajravelu & Solomon, 2014) and are not allowed to make decisions about their child when living in extended families (Edwardraj, et al, 2010; Nimbalkar & Raithatha, 2014). These factors affect mothers’ occupational performance (Ahmadi, et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

“…Possible barriers to coaching models could be educational status, protective family members, and cultural beliefs similar to those found in FCP. Despite cultural and environmental barriers, studies have shown that Indian mothers adopt a problem-solving approach by educating themselves about the condition and therapy (Joshi & Vaishampayan, 2008), and actively participating and creating opportunities in the treatment process (Vajravelu & Solomon, 2014). They take pride in their children's achievements, do not underestimate them, have patience and persistence, and hope for their children's growth and well-being (Dickinson, 2018).…”

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confidence: 99%

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Occupational Performance Coaching for Mothers of Children with Disabilities in India

Angelin¹,

Sugi²,

Rajendran³

2020

Can J Occup Ther

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Background. Occupational Performance Coaching (OPC) aims to help mothers plan and manage theirs and their children’s occupational performance. Purpose. To assess the effectiveness of OPC in improving occupational performance and parenting competence of mothers of children with disabilities in an Indian context. Methods. Mixed method design was used. Thirty-six mothers were assigned to intervention or control groups. Occupational performance and parenting competence were measured at three time points. Semi-structured interviews were used. Findings. OPC had significant effects on children’s occupational performance ( p < 0.001), mothers’ occupational performance ( p < 0.001), and self-competence ( p = 0.003). There was also a significant difference between control and intervention groups in occupational performance ( p = 0.001) and satisfaction ( p = 0.003). Interviews revealed three themes: acceptance, self-learning, and challenges during OPC. Implications. OPC is effective in improving the occupational performance and parenting competence of mothers of children with disabilities in varied cultural contexts.

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Section: Introductionmentioning

confidence: 99%

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confidence: 99%

Occupational Performance Coaching for Mothers of Children with Disabilities in India

Angelin¹,

Sugi²,

Rajendran³

2020

Can J Occup Ther

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“…How the therapist handles the patient must be convincing not only to the physician but also to the patient’s parents, a key element in supporting patient satisfaction as well as improving adherence. Improvements brought about in the child’s case will improve the confidence of the parents and the reputation of the profession [ 19 - 21 ].…”

Section: Discussionmentioning

confidence: 99%

Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach

Kanniappan,

Rajeswari,

Padma Lawrence

et al. 2024

JPMPH

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Objectives: Children with disabilities may exhibit a multitude of symptoms, and treatment requires a multidisciplinary approach for a satisfactory outcome. Lack of awareness among physicians, lack of referral, and lack of inter-sectoral coordination have hindered paediatric practice in Tamil Nadu, a state in India with a striking childhood disability rate that warrants a timely interdisciplinary approach. However, the perspectives of paediatricians on paediatric physiotherapy are unknown. The aim of the study was to investigate the perspectives of practicing paediatric physicians in Chennai on the role of physiotherapy in paediatrics.Methods: For an in-depth exploration, qualitative semi-structured interviews were conducted in person with 10 paediatricians. Audio from the sessions was recorded and transcribed, and data saturation was achieved through iterative analysis.Results: A grounded theory analysis of the results yielded 5 domains under which the perspectives and expectations of the physicians were described, along with the barriers experienced by patients’ parents as explained by their paediatrician. The responses highlighted deficits in awareness, structural support, accessibility and direct communication between physicians and physiotherapists.Conclusions: Paediatric physicians have different opinions, and some ignorance persists concerning paediatric physiotherapy. This study warrants a proper structure of the paediatric rehabilitation unit and regular interdisciplinary meetings and focus group discussions to increase access for parents and improve patient outcomes.

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“…This led to a display of negative behaviours from nurses, such as a resistance to communicate and delegate tasks. Previous studies have shown that nonsupportive behaviours in nurses can discourage family participation in FCC (Nyirenda & Mukwato, 2016;Vajravelu & Solomon, 2013). Similarly, nurses have observed negative behaviours in families, such as an unwillingness to follow instructions.…”

Section: Negative Perceptionsmentioning

confidence: 99%

Nurses' and Families' perceptions and practices and factors influencing the implementation of family‐centred care for hospitalised children and their families

Wong

Phiri

Chan

et al. 2023

Journal of Clinical Nursing

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Aims and ObjectivesTo explore the perceptions of family‐centred care among nurses and the family members of hospitalised children and investigate the facilitators of and barriers to the implementation of family‐centred care in Malawi.BackgroundIn Malawi, approximately 34% of children have long‐term illnesses that require hospitalisation. Family‐centred care ensures that the delivery of healthcare is grounded in partnerships between healthcare providers, patients and their families, which can improve the psychological well‐being of families. However, there is lack a good understanding of how families and nurses perceive this concept, its facilitators and the barriers.DesignThis was an exploratory qualitative study. Data were analysed deductively and inductively using the five‐step qualitative content analysis method.MethodsTwenty‐nine nurses and 31 families were recruited. Data were collected through in‐depth, semi‐structured and face‐to‐face individual interviews. The study was reported using the COREQ checklist.ResultsBoth nurses and families of hospitalised children recognised the importance of nurse–family partnerships in family‐centred care. Four themes emerged as follows: Perceptions of family‐centred care, elements of family‐centred care, facilitators of family‐centred care and barriers to family‐centred care. Specific information to families and the religious beliefs of families were identified as important facilitator and barrier to family‐centred care, respectively.ConclusionThe implementation of family‐centred care is promising in Malawi, as it is positively perceived by nurses and families, and its implementation is consistent with the Institute for Patient and Family‐Centred Care Framework.Relevance to clinical practiceOur findings present the best practices, gaps and challenges in the context of a low‐income country regrading implementation of family‐centred care. Education programmes on family‐centred care are crucial for sustaining the current gains.

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Barriers and Facilitators to Family-centred Paediatric Physiotherapy Practice in the Home setting: A Pilot Study

Cited by 5 publications

References 11 publications

Occupational Performance Coaching for Mothers of Children with Disabilities in India

Occupational Performance Coaching for Mothers of Children with Disabilities in India

Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach

Nurses' and Families' perceptions and practices and factors influencing the implementation of family‐centred care for hospitalised children and their families

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