Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us?

Selick, Avra; Durbin, Janet; Casson, Ian; Lee, Jacques; Lunsky, Yona

doi:10.24095/hpcdp.38.10.01

Cited by 24 publications

(28 citation statements)

References 37 publications

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“…Several studies performed qualitative investigations on the barriers and facilitators to effective communication between health professionals and patients with mild ID. Their findings primarily align with the literature (such as the studies by Alborz et al [1], Krahn et al [2], Ali et al [3], Murphy [13], Hemsley and Balandin [43], Selick [49], Chew et al [50], and Pelleboer-Gunnink [51]) and highlight the factors being targeted by the aids introduced in theme 2-Technological Aids.…”

Section: Communication Barriers and Facilitatorssupporting

confidence: 78%

Alternative and Augmentative Communication Technologies for Supporting Adults With Mild Intellectual Disabilities During Clinical Consultations: Scoping Review

Gibson¹,

Bouamrane²,

Dunlop³

2021

JMIR Rehabil Assist Technol

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Background People with intellectual disabilities (IDs) face significant communication barriers when accessing health care services; they find it difficult to identify and describe conditions clearly enough to support practitioners in making an accurate diagnosis. In addition, medical professionals generally have little knowledge and understanding of the needs of people with ID, which may result in the use of consultation techniques that do not cater to their patients’ skills. Objective This review aims to identify and synthesize the literature on alternative and augmentative communication technologies that are used to support adults with mild ID during the exchange of information with medical practitioners. Methods We performed a scoping review of studies published in English that describe the technologies that are used to promote communication with patients with mild ID during medical consultations. The databases searched were PubMed, ACM Digital Library, and Google Scholar. A qualitative framework-based approach was used to synthesize the data and discern key recurring themes across the identified literature. Results Of the 1557 articles screened, 15 (0.96%) met our inclusion criteria. The bulk of the communication aids used focused on low-tech solutions, including patient passports, note-based prompts, Talking Mats, health diaries, and easy-read information sheets. Their influence on current practice ranged from advancing medical professionals’ knowledge of the health and communication needs of people with ID to increasing interagency collaboration, patient advocacy skills, and health promotion activities. The major barriers to the implementation of low-tech aids were a lack of portability and increased maintenance efforts. Only 3 studies explored the use of mobile apps to promote communication. Their findings indicated that high-tech solutions offer greater customization with regard to the accessibility and health care needs of people with ID. Conclusions Alternative and augmentative communication technologies have the potential to increase the quality of care provided to patients with mild ID; however, little work has been carried out in this area. Greater emphasis must be placed on (high-tech) two-way communication aids that empower patients to become involved in decisions regarding their care. Quantitative evaluation methods should be used to discern the true benefits of such aids, and researchers should describe their study protocols in depth to promote replication and generalizability.

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Section: Communication Barriers and Facilitatorssupporting

confidence: 78%

Alternative and Augmentative Communication Technologies for Supporting Adults With Mild Intellectual Disabilities During Clinical Consultations: Scoping Review

Gibson¹,

Bouamrane²,

Dunlop³

2021

JMIR Rehabil Assist Technol

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“…These may aim at increasing the training of healthcare professionals regarding intellectual disability and supporting their practice with measures like improved health records with electronic decision‐making support tools or incentives to allow for longer medical appointments when needed (e.g. Lennox, Van Driel, & van Dooren, ; Selick, Durbin, Casson, Lee, & Lunsky, ).…”

Section: Resultsmentioning

confidence: 99%

Healthcare services utilization among people with intellectual disability and comparison with the general population

Maltais

Morin

Tassé

2020

Research Intellect Disabil

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Background Studies have reported unmet health needs in individuals with intellectual disability (ID). This study illustrated and analysed patterns of healthcare services utilization among people with intellectual disability and compared their use to that of the general population. Method Participants (N = 791, aged 15–82) were mainly recruited through government‐financed agencies specializing in services for people with intellectual disabilities in Québec, Canada. Comparisons were possible by using health administrative data. Results Some services were more used by people with intellectual disability than the general population (general medicine, psychiatry, PSA blood tests), and others were accessed at significantly lower frequencies (optometry, physiotherapy, Pap tests). Similar rates were found for mammography, dentistry and psychology. Inequities were more salient for individuals who had more severe levels of intellectual disability. Conclusions Our findings support that the population with intellectual disability would benefit from policies and practices aimed at enhancing the access to healthcare services.

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“…People with physical, emotional, cognitive, sensory, and independent living-related functional limitations are less likely to access health services and are more likely to experience unmet health needs in virtually all nations, contributing to greater health disparities 7,8 . People with disabilities, especially those with intellectual and developmental disabilities, are also more likely to develop complex health needs and are less likely to receive preventative care 9 .…”

Section: J O U R N a L P R E -P R O O Fmentioning

confidence: 99%

Findings from an online survey on the mental health effects of COVID-19 on Canadians with disabilities and chronic health conditions

Pettinicchio

Maroto

Chai

et al. 2021

Disability and Health Journal

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This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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Barriers and facilitators to improving health care for adults with intellectual and developmental disabilities: what do staff tell us?

Abstract: This article has been peer reviewed. Tweet this article 349

Cited by 24 publications

References 37 publications

Alternative and Augmentative Communication Technologies for Supporting Adults With Mild Intellectual Disabilities During Clinical Consultations: Scoping Review

Alternative and Augmentative Communication Technologies for Supporting Adults With Mild Intellectual Disabilities During Clinical Consultations: Scoping Review

Healthcare services utilization among people with intellectual disability and comparison with the general population

Findings from an online survey on the mental health effects of COVID-19 on Canadians with disabilities and chronic health conditions

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