Barriers and facilitators to participation in everyday activities for children with intellectual disabilities in China

Shi, Linjun; Granlund, Mats; Wang, Lan; Huusa, Karina

doi:10.1111/cch.13052

Cited by 10 publications

(5 citation statements)

References 45 publications

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“…This model was developed using the approach of the International Classification of Functioning, Disability and Health and highlights the influence of environmental and personal factors and their determinants (barriers and facilitators) that can affect the participation of people with disabilities. 58 Thus, the reported data here represent the perspective of this model. Future studies aiming to address other research questions and expand knowledge in this area could use other models, such as the fPRC.…”

Section: Leisure Participationmentioning

confidence: 78%

“…to summarize the data on the basis of a previous conceptual model of physical activity for people with disabilities. This model was developed using the approach of the International Classification of Functioning, Disability and Health and highlights the influence of environmental and personal factors and their determinants (barriers and facilitators) that can affect the participation of people with disabilities 58 . Thus, the reported data here represent the perspective of this model.…”

Section: Discussionmentioning

confidence: 99%

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What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

Souto,

de Sousa,

Ferreira

et al. 2024

Develop Med Child Neuro

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AimTo determine the barriers and facilitators of active community participation of children, adolescents, and adults with Down syndrome.MethodSearches were completed in five electronic databases to identify original studies about participation of children, adolescents (ages < 18 years), and adults (ages 18–59 years) with Down syndrome. Barriers and facilitators to participation were categorized into four factors: personal, social, environmental, and policy and programme. Findings were analysed and validated by a young adult with Down syndrome and a family member, using the public and patient involvement strategy.ResultsFourteen studies were included: eight with children and adolescents and six with adults. Of the 14 studies, 10 were qualitative and four quantitative. Most studies (n = 9) investigated participation in physical activities, while only a few examined participation in community/social activities (n = 3), daily activities (n = 2), and leisure activities (n = 1). The most commonly cited barriers and facilitators were the availability of programmes and specialized professionals, transportation, as well as attitudes and behaviours. Physical and psychological characteristics of people with Down syndrome and facilities were also frequently mentioned as barriers. On the other hand, the desire to stay active and personal interest in the activity were among the most frequently reported facilitators.InterpretationThe participation of people with Down syndrome is mainly influenced by physical or psychological factors, the support and attitudes of parents/caregivers, and the availability of specialized programmes. Given the scarcity of research investigating the participation of people with Down syndrome in community activities, daily activities, and leisure, especially in adults, more studies are still needed.

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Section: Leisure Participationmentioning

confidence: 78%

Section: Discussionmentioning

confidence: 99%

What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

Souto,

de Sousa,

Ferreira

et al. 2024

Develop Med Child Neuro

View full text Add to dashboard Cite

show abstract

“…para resumir os dados, baseada em um modelo conceitual anterior de atividade física para pessoas com deficiência. Este modelo foi desenvolvido a partir da abordagem da CIF e destaca a influência de fatores ambientais e pessoais e seus determinantes (barreiras e facilitadores) que podem influenciar a participação de pessoas com deficiência 58 …”

Section: Discussionunclassified

“…Este modelo foi desenvolvido a partir da abordagem da CIF e destaca a influência de fatores ambientais e pessoais e seus determinantes (barreiras e facilitadores) que podem influenciar a participação de pessoas com deficiência. 58 Assim, os dados relatados aqui representam a perspectiva desse modelo. Estudos futuros, visando responder a outras perguntas de pesquisa e expandir o conhecimento nessa área, podem utilizar outros modelos, como o fPRCs.…”

Section: Participação Em Lazerunclassified

Quais são as barreiras e facilitadores para a participação de pessoas com Síndrome de Down? Uma Revisão de Escopo

Souto,

de Sousa,

Ferreira

et al. 2024

Develop Med Child Neuro

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ResumoObjetivoDeterminar as barreiras e facilitadores da participação ativa na comunidade de crianças, adolescentes e adultos com Síndrome de Down (SD). Métodos: Foram realizadas buscas em cinco bases de dados eletrônicas para identificar estudos originais sobre a participação de crianças, adolescentes (idades <18 anos) e adultos (idades de 18 a 59 anos) com SD. Barreiras e facilitadores para a participação foram categorizados em fatores: pessoais, sociais, ambientais e de políticas e programas. Os achados foram analisados e validados por um jovem adulto com SD e um membro da família, utilizando a estratégia de Envolvimento do Público e Paciente. Resultados: Quatorze estudos foram incluídos, oito com crianças e adolescentes e seis com adultos. Dos 14 estudos, dez eram qualitativos e quatro quantitativos. A maioria dos estudos (n = 9) investigou a participação em atividades físicas, enquanto apenas alguns estudos examinaram a participação em atividades comunitárias/sociais (n = 3), atividades diárias (n = 2) e atividades de lazer (n = 1). As barreiras e facilitadores mais frequentemente citados foram a disponibilidade de programas e profissionais especializados, transporte, bem como atitudes e comportamentos. As características físicas e psicológicas das pessoas com SD e as instalações também foram frequentemente mencionadas como barreiras. Por outro lado, o desejo de se manter ativo e o interesse pessoal na atividade estavam entre os facilitadores mais frequentemente relatados.InterpretaçãoA participação de pessoas com SD é principalmente influenciada por fatores físicos ou psicológicos, o apoio e as atitudes dos pais/cuidadores e a disponibilidade de programas especializados. Dada a escassez de pesquisas investigando a participação de pessoas com SD em atividades comunitárias, atividades diárias e lazer, especialmente em adultos, mais estudos ainda são necessários.

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“…Parents of children with disabilities have reported a high level of desire to change their children's participation patterns at home and in the community [26,27]. Adults play the key role in strengthening a child's participation in daily life, and the child's experience of participation is formed in these everyday situations [2,14,28]. The concept of family-professional collaboration emphasizes the roles of children and family working together alongside professionals [29].…”

Section: Introductionmentioning

confidence: 99%

Partnership Working among Families, Therapists and Educationalists to Enhance Collaboration Enabling Participation of Children with Intellectual Disabilities

et al. 2023

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Backround: The collaboration of families, therapists and educationalists has been found to be an important factor in the successful rehabilitation of children with intellectual disabilities. Previous studies have focused on the effects of therapies and the perspectives of parents on collaboration in rehabilitiation. This study aims to describe the facilitators of, and barriers to, collaboration with adults in enhancing the participation of children with intellectual disabilities in education environments. Methods: In a qualitative study, the data were collected in 2021–2022 through individual interviews with parents (n = 16), focus group interviews (n = 17) with education professionals and an online survey tool with open-ended questions from therapists (n = 309). The data were analyzed using thematic analysis. Results: Two overaching themes were identified: the prerequisites of collaboration and the sharing of expertise in collaboration from the perspective of all the participants, which included the factors facilitating and hindering collaboration. Conclusions: In optimizing the benefits of collaboration, all these themes are essential to enhancing functioning and participation. There is a need for the development of participatory practises to improve and intensify collaboration. The development of collaboration and practises should be supported by the managers. Digital solutions should be further explored in order to improve the partnership of adults and children.

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Barriers and facilitators to participation in everyday activities for children with intellectual disabilities in China

Cited by 10 publications

References 45 publications

What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

Quais são as barreiras e facilitadores para a participação de pessoas com Síndrome de Down? Uma Revisão de Escopo

Partnership Working among Families, Therapists and Educationalists to Enhance Collaboration Enabling Participation of Children with Intellectual Disabilities

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