Barriers and Facilitators When Implementing Web-Based Disease Monitoring and Management as a Substitution for Regular Outpatient Care in Pediatric Asthma: Qualitative Survey Study

Wijngaart, Lara S. van den; Geense, Wytske; Boehmer, Annemie L.M.; Brouwer, Marianne; Hugen, Cory M.; Ewijk, Bart E. van; Koenen-Jacobs, Marie-José; Landstra, Anneke M.; Niers, Laetitia E. M.; Onzenoort-Bokken, Lonneke van; Ottink, Mark D; Rikkers-Mutsaerts, Eleonora R.V.M.; Groothuis, Iris; Vaessen-Verberne, Anja; Roukema, Jolt; Merkus, Peter

doi:10.2196/jmir.9245

Cited by 27 publications

(35 citation statements)

References 30 publications

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“…Stevenson and colleagues 35 draw similar conclusions. The findings of our study are in line with van den Wijnaart et al, 36 who demonstrated that web-based monitoring cannot replace face-to-face contacts. Based on our findings, AsthmaTuner was used to collect measured values and self-reported symptoms.…”

Section: Discussionsupporting

confidence: 92%

Nurses’ experiences of using AsthmaTuner – an eHealth self-management system for healthcare of patients with asthma

2022

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Objective This study describes nurses’ experiences of using eHealth for assessment in the healthcare of patients with asthma. Methods Five nurses with experience of using AsthmaTuner in the healthcare of patients with asthma participated in the study. Individual semi-structured interviews were conducted with the nurses to understand their experiences of using the eHealth system. The transcribed interviews were analyzed using qualitative content analysis. Results The results show that nurses as well as patients find the tool useful and easy-to-handle. AsthmaTuner gives the nurses access to more and better information about the patients, which facilitates assessments and makes their work more efficient. The patients become more involved in their care, gain increased control and take more responsibility for their illness and treatment. Conclusions The nurses appreciate eHealth in asthma care. Using AsthmaTuner makes the nurses’ work more efficient and the patients become more involved in their care.

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Section: Discussionsupporting

confidence: 92%

Nurses’ experiences of using AsthmaTuner – an eHealth self-management system for healthcare of patients with asthma

2022

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“…The eHealth platform is used in regular pediatric asthma care to monitor asthma control using the validated (childhood) Asthma Control Test ([C]-ACT), and to support self-management with personalized online asthma action plans [ 19 , 20 ]. Details of the eHealth platform have been published previously [ 16 - 18 ]. For this study the platform was expanded with a module for FEV 1 home measurements.…”

Section: Methodsmentioning

confidence: 99%

“…This study aimed to develop new perspectives on how to use FEV 1 telemonitoring in the future of pediatric asthma care. To achieve this we combined FEV 1 home monitoring with an online eHealth platform [ 16 - 18 ]. Our main research question was “How do patients, their parents, and HCPs want to make use of FEV 1 home monitoring?” Patients who already used the eHealth platform in regular pediatric asthma care to monitor asthma control with questionnaires received FEV 1 monitoring devices which were integrated in the platform.…”

Section: Introductionmentioning

confidence: 99%

It Is Not Just the FEV1 That Matters, but the Personal Goals We Reach Along the Way: Qualitative, Multicenter, Prospective, Observational Study

Oppelaar¹,

Wijngaart²,

Merkus³

et al. 2021

J Med Internet Res

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Background The COVID-19 pandemic has boosted the use of forced expiratory volume in 1 second (FEV1) telemonitoring in pediatric asthma, but a consensus on its most efficient and effective implementation is still lacking. To find answers, it is important to study how such an intervention is perceived, experienced, and used by both patients and health care professionals (HCPs). Objective The aim of this study was to provide perspectives on how FEV1 home monitoring should be used in pediatric asthma. Methods This is a qualitative, multicenter, prospective, observational study which included patients with asthma aged 6-16 and HCPs. Primary outcomes were results of 2 surveys that were sent to all participants at study start and after 3-4 months. Secondary outcomes consisted of FEV1 device usage during 4 months after receiving the FEV1 device. Results A total of 39 participants (26 patients and 13 HCPs) were included in this study. Survey response rates were 97% (38/39) at the start and 87% (34/39) at the end of the study. Both patients and HCPs were receptive toward online FEV1 home monitoring and found it contributive to asthma control, self-management, and disease perception. The main concerns were about reliability of the FEV1 device and validity of home-performed lung function maneuvers. FEV1 devices were used with a median frequency of 7.5 (IQR 3.3-25.5) during the 4-month study period. Conclusions Patients and HCPs are receptive toward online FEV1 home monitoring. Frequency of measurements varied largely among individuals, yet perceived benefits remained similar. This emphasizes that online FEV1 home monitoring strategies should be used as a means to reach individual goals, rather than being a goal on their own.

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“…Lessons learnt from the study are: to develop the tool from the patient’s perspective; to aim for sustainable implementation from the start and anticipate on what is needed; to involve patients and patient organisations in developing and improving the platform; to create obvious personal benefits for patients, aiming for a WIN – WIN situation; to address barriers for implementation (financial and interoperability) adequately; to provide convincing evidence for added value and cost-effectiveness to health insurance companies, hospitals and governments; to invest in a team with common ambition; to ask for professional help in particular with relation to privacy, information technology, legal contracts and similar; to get out of the comfort zone as a researcher and connect with the national governmental institutions and bodies; and, finally, to expect that the processes will take some time [ 44 ].…”

Section: Introductionmentioning

confidence: 99%

Clinical data for paediatric research: the Swiss approach

et al. 2021

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Background and purpose Continuous improvement of health and healthcare system is hampered by inefficient processes of generating new evidence, particularly in the case of rare diseases and paediatrics. Currently, most evidence is generated through specific research projects, which typically require extra encounters with patients, are costly and entail long delays between the recognition of specific needs in healthcare and the generation of necessary evidence to address those needs. The Swiss Personalised Health Network (SPHN) aims to improve the use of data obtained during routine healthcare encounters by harmonizing data across Switzerland and facilitating accessibility for research. The project “Harmonising the collection of health-related data and biospecimens in paediatric hospitals throughout Switzerland (SwissPedData)” was an infrastructure development project funded by the SPHN, which aimed to identify and describe available data on child health in Switzerland and to agree on a standardised core dataset for electronic health records across all paediatric teaching hospitals. Here, we describe the results of a two-day symposium that aimed to summarise what had been achieved in the SwissPedData project, to put it in an international context, and to discuss the next steps for a sustainable future. The target audience included clinicians and researchers who produce and use health-related data on children in Switzerland. Key highlights The symposium consisted of state-of-the-art lectures from national and international keynote speakers, workshops and plenary discussions. This manuscript summarises the talks and discussions in four sections: (I) a description of the Swiss Personalized Health Network and the results of the SwissPedData project; (II) examples of similar initiatives from other countries; (III) an overview of existing health-related datasets and projects in Switzerland; and (IV) a summary of the lessons learned and future prospective from workshops and plenary discussions. Implications Streamlined processes linking initial collection of information during routine healthcare encounters, standardised recording of this information in electronic health records and fast accessibility for research are essential to accelerate research in child health and make it affordable. Ongoing projects prove that this is feasible in Switzerland and elsewhere. International collaboration is vital to success. The next steps include the implementation of the SwissPedData core dataset in the clinical information systems of Swiss hospitals, the use of this data to address priority research questions, and the acquisition of sustainable funding to support a slim central infrastructure and local support in each hospital. This will lay the foundation for a national paediatric learning health system in Switzerland.

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Barriers and Facilitators When Implementing Web-Based Disease Monitoring and Management as a Substitution for Regular Outpatient Care in Pediatric Asthma: Qualitative Survey Study

Cited by 27 publications

References 30 publications

Nurses’ experiences of using AsthmaTuner – an eHealth self-management system for healthcare of patients with asthma

Nurses’ experiences of using AsthmaTuner – an eHealth self-management system for healthcare of patients with asthma

It Is Not Just the FEV1 That Matters, but the Personal Goals We Reach Along the Way: Qualitative, Multicenter, Prospective, Observational Study

Clinical data for paediatric research: the Swiss approach

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