Barriers and Motivators to Participating in mHealth Research Among African American Men

James, Delores C.S.; Harville, Cedric

doi:10.1177/1557988315620276

Cited by 45 publications

(36 citation statements)

References 28 publications

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“… 19 , 20 , 23 , 28 , 30 , 45 , 63 The difference by age that we found may be due, at least in part, to the mode of data collection (phone-based), but previous surveys about technology-based studies have found mixed associations between age and willingness to participate. 31 , 32 , 46 Older respondents may also have differing attitudes about research (e.g., concern for experimentation) or face other potential barriers. 23 To ensure equal representation, future studies of chronic pain and medical cannabis should specifically seek to engage older adults.…”

Section: Discussionmentioning

confidence: 99%

Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

Bachhuber

Arnsten

Starrels

et al. 2018

Cannabis and Cannabinoid Research

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Background: Regulatory barriers limit clinical trials of medical cannabis in the United States. Longitudinal cohort studies may be one feasible alternative that could yield clinically relevant information. Willingness to participate in such studies is not known.Materials and Methods: In October 2016, we surveyed a convenience sample of patients with chronic pain from two New York registered organizations (responsible for growing, processing, distributing, and retailing medical cannabis products). After a vignette describing a longitudinal cohort study involving weekly patient-reported outcomes and quarterly assessments of physical functioning and urine and blood tests, we asked about respondents' willingness to participate. We examined willingness to participate, duration of participation, and frequency of data collections overall and by subgroups, using multivariable logistic regression models.Results: Of 405 respondents (estimated response rate: 30%), 54% were women and 81% were white non-Hispanic. Neuropathy was the most common pain condition (67%) followed by inflammatory bowel disease (19%). Of respondents, 94% (95% CI 92–97%) thought that the study should be done, 85% (95% CI 81–88%) would definitely or probably enroll if asked, 76% (95% CI 72–81%) would participate for ≥1 year, and 59% (95% CI 54–64%) would respond to questions at least daily. Older age was the only factor associated with lower willingness to participate, lower willingness to participate for ≥1 year, and lower willingness to respond to questions at least daily.Conclusions: Nearly all respondents were supportive of the proposed study and most reported that they would enroll if asked. Enhanced engagement with older individuals may be needed to promote equal enrollment. Recruitment for longitudinal cohort studies with frequent data collection appears feasible in this patient population.

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Section: Discussionmentioning

confidence: 99%

Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

Bachhuber

Arnsten

Starrels

et al. 2018

Cannabis and Cannabinoid Research

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“…The questionnaire is described elsewhere (19,20). Questions were asked about sociodemographic characteristics (sex, age, marital status [married or not married], birthplace [in United States or not], education, employment status [employed or not], and home ownership [yes or no]), ownership and use of digital devices, health information–seeking behavior, willingness to participate in mHealth research, weight, and health status.…”

Section: Methodsmentioning

confidence: 99%

“…Understanding EHL among African Americans and recruiting them into mobile health (mHealth) interventions are important goals for several reasons. African Americans 1) have a high prevalence of chronic diseases, 2) are the fastest adopters of home broadband Internet compared with other racial/ethnic groups, 3) have one of the highest rates of ownership of smartphones among racial/ethnic groups, and 4) have reported a willingness to participate in mHealth research (2,16–20). The objective of this study was to assess and examine the association between EHL and access to technology, health information–seeking behavior, and willingness to participate in mHealth research among African Americans.…”

Section: Introductionmentioning

confidence: 99%

eHealth Literacy, Online Help-Seeking Behavior, and Willingness to Participate in mHealth Chronic Disease Research Among African Americans, Florida, 2014–2015

James

2016

Prev. Chronic Dis.

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IntroductionThe high rate of ownership of smartphones among African Americans provides researchers with opportunities to use digital technologies to reduce the prevalence of chronic diseases in this population. This study aimed to assess the association between eHealth literacy (EHL) and access to technology, health information–seeking behavior, and willingness to participate in mHealth (mobile health) research among African Americans.MethodsA self-administered questionnaire was completed by 881 African American adults from April 2014 to January 2015 in north central Florida. EHL was assessed by using the eHealth Literacy Scale (eHEALS) with higher scores (range, 8–40) indicating greater perceived skills at using online health information to help solve health problems.ResultsOverall eHEALS scores ranged from 8 to 40, with a mean of 30.4 (standard deviation, 7.8). The highest score was for the item “I know how to find helpful health resources on the Internet,” and the lowest score was for “I can tell high quality from low quality health resources on the Internet.” Most respondents owned smartphones (71%) and searched online for health information (60%). Most were also willing to participate in health research that used text messages (67%), smartwatches/health tracking devices (62%), and health apps (57%). We found significantly higher eHEALS scores among women, smartphone owners, those who use the Internet to seek health information, and those willing to participate in mHealth research (P < .01 for all).ConclusionMost participants owned smartphones, used the Internet as a source of information, and were willing to participate in mHealth research. Opportunities exist for improving EHL and conducting mHealth research among African Americans to reduce the prevalence of chronic diseases.

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“…We selected these variables because previous work indicated they may influence smartphone or mHealth use [60, 61] and because they also tend to be elevated in this sample [56, 58]. All procedures were approved by the University Hospitals, Case Medical Center Institutional Review Board.…”

Section: Methodsmentioning

confidence: 99%

Predictors of willingness to use a smartphone for research in underserved persons living with HIV

Schnall

Cho

Webel

2017

International Journal of Medical Informatics

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Objectives The burden of HIV/AIDS is borne disproportionally by a growing number of racial and ethnic minorities and socioeconomically disadvantaged individuals. Developing mHealth interventions for the everyday self-management needs of persons living with HIV (PLWH) can be challenging given the current constraints of the U.S. healthcare system, especially for those from underserved communities. In order to develop effective, evidence-based mHealth self-management interventions, we need a better understanding of the factors associated with mHealth research. The purpose of this study was to assess factors associated with PLWH's participation in research using smartphones. Methods We conducted a prospective cohort study (parent study) to examine the relationships among HIV self-management, age, gender and mental wellness. Relevant to this study, we analyzed the relationship between self-reported use of smartphones, willingness to use a smartphone for research, and other predictor variables including: HIV stigma, social isolation, social integration functions, and depression. We selected these variables because previous work indicated they may influence smartphone or mHealth use and because they also tend to be elevated in PLWH. Results We found increased age, HIV stigma and social isolation were negatively associated with smartphone use, which supports the use of smartphones for conducting research with PLWH but also suggest that age, stigma, social integration functions and social isolation need to be considered in research involving PLWH. Conclusions Findings here support smartphone use in research involving PLWH. However, future mHealth interventions targeting PLWH should take into account the inverse relationship between smart phone use and age, HIV stigma, and social isolation, and other predictor variables

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Barriers and Motivators to Participating in mHealth Research Among African American Men

Cited by 45 publications

References 28 publications

Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey

eHealth Literacy, Online Help-Seeking Behavior, and Willingness to Participate in mHealth Chronic Disease Research Among African Americans, Florida, 2014–2015

Predictors of willingness to use a smartphone for research in underserved persons living with HIV

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