Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia

Widyastuti, Rita Hadi; Sahar, Junaiti; Rekawati, Etty; Kekalih, Aria

doi:10.14710/nmjn.v13i2.55729

Cited by 3 publications

(1 citation statement)

References 38 publications

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“…This is important to reveal the real constraints they felt when evacuating injured victims due to the earthquake. All IDI recordings were immediately transcribed verbatim after the interview to prevent memory bias, as was done in [33].…”

Section: Discussionmentioning

confidence: 99%

Constraints on Transport of Injured Victims after the Earthquake for Disaster Victims’ Evacuation Model Development: A Phenomenological Study

Muhammad,

Kamil,

Adlim

et al. 2024

Heca J. Appl. Sci.

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The big earthquake has an impact on the risk of injury to the victims. The wounded victim needed urgent medical assistance to survive. The effectiveness of this service depends heavily on the response speed of stakeholders. To increase the response rate, a detailed emergency response plan is needed. The study aims to identify restrictive factors in evacuating victims of post-earthquake injuries. This qualitative research has a phenomenological design. Participants in this study were 15 nurses who participated in the Disaster Victim Evacuation (DVE) process and who met the criteria with the purposive sampling technique. Data is collected through a deep interview (IDI) using open questions. Data analysis is done using the inductive content analysis method. Two themes contributed to the DVE process as an ERP, namely, 1) restriction of institutional support and 2) cancellation of evacuation routes. These findings have provided an overview of several factors that directly contributed to the implementation of the DVE process.

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Section: Discussionmentioning

confidence: 99%

Constraints on Transport of Injured Victims after the Earthquake for Disaster Victims’ Evacuation Model Development: A Phenomenological Study

Muhammad,

Kamil,

Adlim

et al. 2024

Heca J. Appl. Sci.

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Development of Online Training Modules on Dementia Care at Home for Family Caregivers

Widyastuti,

Sahar,

Rekawati

et al. 2024

TONURSJ

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Introduction To improve the quality of care and reduce the negative effects of caregiving, modules that address the needs of caregivers must be developed. There hasn't been much progress in Indonesia in creating online training programs for dementia care at home. Objective This study aims to develop online training modules on dementia care at home that are especially suited to the needs of family caregivers. Methods The modules were developed using the Sidek Module Development Model (SMDM), which consisted of two stages: [a] developing the module drafts and [b] testing and evaluating the modules. The study involved semi-structured in-depth interviews with fifteen family caregivers caring for older adults with dementia that focused on [i] existing problems and challenges that family caregivers face in caring for older adults with dementia, [ii] the needs of family caregivers in caring for older adults with dementia and self-care, and [iii] strategies to meet those needs. The interview results were analyzed using the collaizi method. Results Seven modules were developed based on the family needs in this study, including aging processes in older adults, dementia and its impact, communication adapted to the older adults’ condition, management of issues arising in older adults with dementia, becoming resilient family caregivers, addressing issues faced by family caregivers, and self-help groups. The module content validity scores ranged between 90.73% and 94.73% based on the respective aspects of the modules, with an overall content validity score of 92.79%. Conclusion The findings suggest that the online training modules on dementia care at home for family caregivers are appropriate and applicable for online training programs aimed to improve the knowledge and abilities of caregivers in providing self-care and care for older adults with dementia.

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Dementia knowledge of family caregivers in Indonesia: A cross-sectional survey study

Andrews,

Mulyani,

Saifullah

et al. 2024

Belitung Nurs J

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Background: As the population ages, the prevalence of dementia in Indonesia is rapidly increasing. In Indonesia, dementia care is primarily provided by informal or family caregivers. However, there is limited information about these caregivers’ understanding of dementia and the factors that may influence their knowledge. Given that family members are the primary source of dementia care in Indonesia, it is essential to understand their knowledge and identify any gaps to inform future educational interventions. Objective: To explore the knowledge of dementia among Indonesian family caregivers and identify the sociodemographic factors associated with dementia knowledge. Methods: A cross-sectional survey was conducted in 2022 with 200 family caregivers who were members of Alzheimer’s Indonesia (ALZI) support groups. These caregivers received invitations via ALZI to complete a translated version of the Dementia Knowledge Assessment Scale (DKAS-I). Independent t-tests and ANOVAs were used to examine differences in dementia knowledge across various subgroups, such as gender, education, and age. Results: Seventy-six family caregivers completed the DKAS-I (38% response rate). Respondents had an average age of 49 years, were mostly female, and the majority were children of people with dementia. Over two-thirds of the DKAS-I items were answered correctly by family caregivers, with the ‘care considerations’ domain scoring the highest. Age, relationship to the person with dementia (being a child), and prior dementia education were significantly correlated with higher dementia knowledge in our sample. Conclusion: Family caregivers of people living with dementia across 10 Indonesian provinces who were members of dementia support groups demonstrated moderate dementia knowledge. Targeted education is needed to address gaps in knowledge about communication and behavioural changes in people with dementia and other areas related to quality of care. There is an opportunity for gerontological nurses with specialised dementia knowledge to lead educational initiatives for family caregivers to enhance their capacity. Future research should also investigate the dementia knowledge of caregivers in the general population, who may be older and less educated compared to the participants in this study.

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Barriers and Support for Family Caregivers in Caring for Older Adults with Dementia: A Qualitative Study in Indonesia

Cited by 3 publications

References 38 publications

Constraints on Transport of Injured Victims after the Earthquake for Disaster Victims’ Evacuation Model Development: A Phenomenological Study

Constraints on Transport of Injured Victims after the Earthquake for Disaster Victims’ Evacuation Model Development: A Phenomenological Study

Development of Online Training Modules on Dementia Care at Home for Family Caregivers

Dementia knowledge of family caregivers in Indonesia: A cross-sectional survey study

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