Barriers to Social Participation in Caregivers of Older People: A Systematic Review

Pinto, J. M.

doi:10.22158/rhs.v1n2p78

Cited by 6 publications

(9 citation statements)

References 22 publications

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“…Findings from the Wave 2 data suggest that social participation is negatively associated with CEs’ depressive symptoms, which is consistent with existing literature for informal carers in general (Sibalija et al, 2020 ; Pinto, 2016 ; Vlachantoni et al, 2013 ). These findings indicate that the protective moderating effect of social participation gradually becomes significant against depressive symptoms.…”

Section: Discussionsupporting

confidence: 88%

“…Our study provides the evidence needed to ensure that CEs remain socially engaged, via social participation. Vlachantoni et al (2013) suggest that time, energy and finances are barriers to social participation among carers, which is consistent with the work of Pinto (2016) and Innes et al (2016), who studied barriers to leisure participation for people with dementia and their carers. The provision of certain CFWPs would alleviate many of the noted barriers while providing an opportunity to have CEs engage in social participation activities.…”

Section: Discussionsupporting

confidence: 77%

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Social participation and depressive symptoms of carer-employees of older adults in Canada: a cross-sectional analysis of the Canadian Longitudinal Study on Aging

Wang

Kitchen

et al. 2021

Can J Public Health

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Objectives This study used two waves of data from the Canadian Longitudinal Study on Aging (CLSA) to investigate the association between social participation and depressive symptoms in carer-employees (CEs) and non-carer-employees (NCEs). Methods Adopting Pearlin et al.’s stress model, multivariate linear regression was used to examine the relationships among carer role, social participation, and depressive symptoms in Canadian employees using the first two waves of CLSA data, while controlling for possible confounders. Results Higher levels of social participation were found to be associated with lower depressive symptoms in both waves. Social participation was found to moderate depressive symptoms for CEs when compared with NCEs in Wave 2 but not in Wave 1. Conclusion The present study highlights the importance of social participation in reducing CEs’ depressive symptoms. The findings provide support for innovative policy and intervention efforts to encourage and enhance social participation at work via carer-friendly workplace policies for CEs across Canada.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionsupporting

confidence: 77%

Social participation and depressive symptoms of carer-employees of older adults in Canada: a cross-sectional analysis of the Canadian Longitudinal Study on Aging

Wang

Kitchen

et al. 2021

Can J Public Health

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“…This could be a proxy of proximal or family support in terms of the care provision, or a potential protective factor by itself. In addition, the qualitative results have provided new evidence in that time, energy, and finance are considered to be barriers to social participation among carers in Great Britain, which enriched Pinto’s (2016) review and Innes, Page, and Cutler’s (2016) study on barriers to leisure participation for people with dementia and their carers.…”

Section: Discussionmentioning

confidence: 99%

“…People who did not engage in social participation were more likely to have low mental health or CASP, which is consistent with Sibalija’s (2017) study showing that social participation could influence the caregivers’ mental health. Social participation could provide emotional support, companionship, and affection for caregivers and protect them against health risks (Pinto, 2016). However, caregivers who participate in social activities could reflect that they have more time or resources to be engaged in these types of activities.…”

Section: Discussionmentioning

confidence: 99%

Social Participation and Health Outcomes Among Caregivers and Noncaregivers in Great Britain

et al. 2019

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This study investigates the relationship between social participation and health outcomes between caregivers and noncaregivers in Great Britain. Previous studies indicate that the impact of informal caregiving on the carer’s health is complex, and the intensity of care provision has an adverse impact on the caregivers’ health, while social participation could have a protective role in this respect. Using qualitative and quantitative data from Wave 8 of the 1958 National Child Development Study, the analysis shows that social participation has a positive effect on the carers’ mental health and subjective well-being. Individuals who did not engage in social participation reported lower levels of mental health and control, autonomy, self-realization and pleasure (CASP) scores than those engaged in social participation. The qualitative results showed the barriers to social participation of caregivers to be time, energy, and finance. We discuss ways in which the government could address such barriers to improve the level of social participation among caregivers.

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“…Moreover, due to strong emotional ties between family members, and cultural context, families do not place the elderly in long-term care centers [ 7 ]. Caring for others is recognized as an important social role that can improve caregiver’s self-esteem and overall well-being; however, it can be a source of stress, tension, unhealthy behaviors, and social restrictions [ 8 , 9 ]. It may also decrease quality of life of caregiver and increase mortality [ 8 ].…”

Section: Introductionmentioning

confidence: 99%

Effect of “Mehrpishegan” web-based support group on depression, anxiety, and stress among elderly informal caregivers: a protocol for a randomized-controlled trial

Rahimi

Shirzad

Ashoorkhani

et al. 2022

Trials

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Background Elderly population in low- and middle-income countries is rapidly growing, which indicates an increase in the number of dependent people needing long-term care. Caring for the elderly is difficult and stressful and threatens physical and mental health of informal caregivers. We aim to design a web-based support group and assess its effectiveness on depression, anxiety, and stress among elderly informal caregivers. Methods This is a protocol for a two-arm randomized controlled trial. A total of 160 informal elderly caregivers will be recruited from the southern area of Tehran. Eligible participants will be randomly allocated to two intervention and control groups. The inclusion criteria include not receiving salary for caring, having primary responsibility for care, having smartphone/tablet/computer, being able to use the contents and web applications, having at least one month of experience in caring for the elderly, and having access to the Internet at least once weekly. The intervention will be implemented by giving an account access to the designed website. Depression, anxiety, and stress will be assessed using the DASS21 questionnaire at baseline, and at the end of third and sixth months. Discussion Our findings can pave the way for improving the mental health of informal caregivers of the elderly through provision of web-based supportive services. This study stands as an opportunity to address the needs of caregivers and help them support each other in a novel way. Trial registration Iran Randomized Clinical Trial Center IRCT20201012048999N1. Registered on 25 December 2020 (current status: ongoing). The World Health Organization Trial Registration Data Set is in Additional file 1 Protocol version Second version 2021-05-27

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Barriers to Social Participation in Caregivers of Older People: A Systematic Review

Abstract: Abstract

Cited by 6 publications

References 22 publications

Social participation and depressive symptoms of carer-employees of older adults in Canada: a cross-sectional analysis of the Canadian Longitudinal Study on Aging

Social participation and depressive symptoms of carer-employees of older adults in Canada: a cross-sectional analysis of the Canadian Longitudinal Study on Aging

Social Participation and Health Outcomes Among Caregivers and Noncaregivers in Great Britain

Effect of “Mehrpishegan” web-based support group on depression, anxiety, and stress among elderly informal caregivers: a protocol for a randomized-controlled trial

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