Being in safe hands: Patients’ perceptions of how cancer services may support psychological well‐being

Appleton, Lynda; Poole, Helen; Wall, Christine

doi:10.1111/jan.13553

Cited by 29 publications

(38 citation statements)

References 67 publications

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“…Innovation and technological advances are crucial to nding sustainable solutions to both economic and environmental challenges, that in turn can contribute to e cient and equitable use of resources. Healthcare services and ideals are shifting towards a view of patients as proactive, wellinformed, collaborative partners in healthcare provision (28), and this seems to align with patient preferences (5,29). Effectiveness increases if patients are involved in the process of their own care (1).…”

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confidence: 99%

Patients’ experiences of eHealth in palliative care: an integrative review.

Widberg

Wiklund

Klarare

2020

Preprint

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Background: With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. E-Health involves the use of information and communication technology to provide care, and also to transmit health information through the Internet and related technologies. E-Health can be an effective way of supporting communication between patient and healthcare providers, but it is unclear to how patients regard information and communication technology (ICT) within palliative careMethods: The aim of this study was to describe patients’ experiences of eHealth in palliative care. An integrative review with a systematic literature search of six databases: Cinahl Complete; MEDLINE with Full Text; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO generated 12 scientific articles. The articles were evaluated, data extracted, analyzed and synthesized, according to the aim.Results: The results are presented in the main theme: E-health applications – promoting communication on patients’ and families’ terms, and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care promoted through eHealth applications; and use of eHealth applications increased sense of security and patient safety. Patients described ease of use, usability and feasibility of eHealth applications. Equal and individualized care, security, better symptom management, participation through increased accessibility and increased patient safety were described.Conclusions: E-Health applications promoted equal, individualized care, and may be a tool to promote accessibility and patient participation in palliative care settings. Furthermore, care transparency increased with eHealth communication when patients and families received more information, and experiences were that patient safety and feelings of security also were promoted. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources in palliative care.

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confidence: 99%

Patients’ experiences of eHealth in palliative care: an integrative review.

Widberg

Wiklund

Klarare

2020

Preprint

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“…HCPs creating partnerships is therefore one way of meeting standards of care in the provision of specialist palliative care. Patients' well-being is closely tied to experiences of healthcare encounters (Appleton, Poole, & Wall, 2018), both in relation to people and environment. Meaningful relationships, or partnerships, are created in a supportive atmosphere.…”

Section: Discussionmentioning

confidence: 99%

“…Patients learn to avoid staff that seem emotionally unavailable. The manner and behaviour of HCPs are crucial in fostering a positive and safe care atmosphere (Appleton et al, 2018;Klarare et al, 2016;Rasmussen & Edvardsson, 2007). This may be especially challenging in home care, where care is provided in the patients' homes.…”

Section: Discussionmentioning

confidence: 99%

Actions helping expressed or anticipated needs: Patients with advanced cancer and their family caregivers’ experiences of specialist palliative home care teams

et al. 2018

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Patients with advanced cancer and family caregivers in palliative care face physical, psychological, social and existential challenges, much of the time home alone. Specialist palliative home care team services can be instrumental for sense of security in an uncertain situation. The aim of this study was to describe patients’ and family caregivers’ experiences of specialist palliative home care team actions that are identified by the participants as helping or hindering interventions. Six patients and seven family caregivers were interviewed using the enhanced critical incident technique. Ninety‐five critical incidents and wish list items were identified. Providing adequate resources, keeping promises and being reliable, and creating partnerships are actions by specialist palliative care teams that patients and family caregivers experienced as helping in meeting expressed or anticipated needs in patients and family caregivers. Being reliable and including patients and family caregivers in partnerships help to continue with daily life, even though death may be close. Unmet needs resulted in experiences of disrespect or violation of personal space/integrity.

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“…Nesse cenário, o conhecimento sistemático da resiliência consiste em um instrumento válido para a superação Research, Society and Development, v. 9, n. 4, e117942922, 2020 (CC BY 4.0) | ISSN 2525-3409 | DOI: http://dx.doi.org/10.33448/rsd-v9i4.2922 20 das dificuldades encontradas no cotidiano. Além de aumentar a efetividade da assistência e possibilitar elaborações adaptativas mais positivas por parte do profissional, pode permitir também a identificação precoce daqueles que precisam de intervenções sejam colegas de profissão ou pacientes (López-Pina et al, 2016;Appleton, Poole & Wall (2018).…”

Section: Resiliência Do Paciente Com Ferida Tumoral Malignaunclassified

Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa

Beretta

Santos

et al. 2020

RSD

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1 Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa Resilience in the process of care in patients with malignant tumor wounds: integrative review Resiliencia en el proceso de atención para pacientes con heridas de tumor maligno: revisión integrativa 2 Resumo A assistência ao paciente com feridas tumorais consiste em tarefa complexa; a resiliência confere adaptabilidade para o manejo nos diversos contextos. O objetivo foi verificar a resiliência no processo do cuidar aos pacientes com feridas tumorais malignas. Trata-se de uma revisão integrativa da literatura realizada nas bases de dados LILACS, MEDLINE, COCHRANE, CINAHL e SCOPUS (2003-2019) com a questão norteadora: Como ocorre a resiliência na dinâmica do cuidado a pacientes com feridas tumorais malignas? Identificaramse dezessete evidências científicas, sendo elaboradas três categorias de discussão: 1) Resiliência do paciente com ferida tumoral maligna; 2) Resiliência do familiar e/ou cuidador informal no processo do cuidar ao paciente com ferida tumoral maligna; 3) Resiliência da equipe multidisciplinar no processo do cuidar ao paciente com ferida tumoral maligna.Conclui-se que o estigma, a mudança da imagem corporal, a imprevisibilidade e descontrole do odor e do exsudato e a constante evidência de possuir uma doença incurável permite a prática de múltiplas estratégias de enfrentamento por parte dos atores envolvidos no cuidado, culminando em uma melhor vivência. Assim, deve-se considerar os aspectos psicossociais na práxis da enfermagem oncológica no cuidado de pacientes com feridas tumorais malignas. Palavras-chave: Cuidados Paliativos; Ferimentos e Lesões; Resiliência psicológica. AbstractAssistance to patients with tumor wounds is a complex task; resilience provides adaptability for handling in different contexts. The objective was to verify the resilience in the process of caring for patients with malignant tumor wounds. This is an integrative literature review carried out in the LILACS, MEDLINE, COCHRANE, CINAHL and SCOPUS (2003-2019) databases with the guiding question: How does resilience occur in the dynamics of care for patients with malignant tumor wounds? Seventeen scientific evidences were identified and three categories of discussion were elaborated: 1) Resilience of the patient with a malignant tumor wound; 2) Resilience of the family member and / or informal caregiver in the process of caring for patients with malignant tumor wounds; 3) Resilience of the multidisciplinary team in the process of caring for patients with malignant tumor wounds. It is concluded that the stigma, the change in body image, the unpredictability and uncontrolled odor and exudate and the constant evidence of having an incurable disease allow the practice of multiple coping strategies by the actors involved in the care, culminating in a better experience. Thus, psychosocial aspects must be considered in the practice of oncology nursing in the care of patients with malignant tumor wounds. ResumenLa asistencia a pacien...

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Being in safe hands: Patients’ perceptions of how cancer services may support psychological well‐being

Cited by 29 publications

References 67 publications

Patients’ experiences of eHealth in palliative care: an integrative review.

Patients’ experiences of eHealth in palliative care: an integrative review.

Actions helping expressed or anticipated needs: Patients with advanced cancer and their family caregivers’ experiences of specialist palliative home care teams

Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa

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