Being Seen

Mentis, Helena M.; Shewbridge, Rita; Powell, Sharon; Fishman, Paul S.; Shulman, Lisa M.

doi:10.1145/2702123.2702342

Cited by 11 publications

(2 citation statements)

References 35 publications

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“…These specialists coordinate through an extensive care network that includes: (1) the stroke survivor, (2) caregivers (i.e., the stroke survivor's immediate care network), (3) medical specialists (e.g., physiatrists, cardiologists, and neurologists), and (4) allied health specialists (physical therapists, occupational therapists, and speechlanguage therapists). The network engages in an extensive amount of co-interpretation [24], a collaborative and interpretive process to assess movement and treatment efcacy, and care coordination [22], organizing the diferent aspects of care.…”

Section: Background: Stroke Rehabilitation Process and Specialistsmentioning

confidence: 99%

It’s Not Just the Movement: Experiential Information Needed for Stroke Telerehabilitation

Akinsiku

Avellino

Graham

et al. 2021

Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

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Telerehabilitation systems for stroke survivors have been predominantly designed to measure and quantify movement in order to guide and encourage rehabilitation regular exercises at home. We set out to study what aspect of the movement data was essential, to better inform sensor design. We investigated face-to-face stroke rehabilitation sessions through a series of interviews and observations involving 16 stroke rehabilitation specialists including physiatrists, physical therapists, and occupational therapists. We found that specialists are not solely interested in movement data, and that experiential information about stroke survivors' lived experience plays an essential role in specialists interpreting movement data and creating a rehabilitation plan. We argue for a reconceptualization in stroke telerehabilitation that is more inclusive of non-movement data, and present design implications to better account for experiential information in telerehabilitation systems.

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Section: Background: Stroke Rehabilitation Process and Specialistsmentioning

confidence: 99%

It’s Not Just the Movement: Experiential Information Needed for Stroke Telerehabilitation

Akinsiku

Avellino

Graham

et al. 2021

Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems

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“…These systems and technologies generate data which requires collaborative sense-making and interpretation in order to play a role in clinical practice [1]. Data 'co-interpretation' depends on aligning perspectives between patients, clinical staff, and other caregivers [44]. Information exchange can be compromised as patients and clinicians expect different forms of knowledge, and there is the need to bridge gaps in understanding rather than just share data [27].…”

Section: Technology In Chronic Health Care Provisionmentioning

confidence: 99%

Exploring the Potential for Technology to Improve Cystic Fibrosis Care Provision

Rodger

O’Hara

2019

Proc. ACM Hum.-Comput. Interact.

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Health care systems increasingly promote self-management of chronic conditions outside of traditional clinical environments, often through technologies which help to support patient self-care and engagement with medical professionals. We investigate specialist care provision in cystic fibrosis (CF), a life-shortening genetic condition, to understand the experiences of those living with it and of professionals who provide such care. Our work highlights how the motivations for the use of technology in this context are often intrinsically linked to the nature of CF itself and the constraints that the condition imposes on care provision. These include the high burden associated with self-management and clinic attendance; the ever-present risk of infection and a subsequent decline in health; and patients who are often very well-informed and actively engaged in their care. In exploring enablers and barriers to technology in this context, we highlight the importance of considering its integration into the chronic care cycles, practices, and structures of CF care.

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