Belief in Karma and Mokṣa at the End of Life in India

Gielen, Joris; Kashyap, Komal

doi:10.1007/978-3-030-18826-9_2

Cited by 7 publications

(4 citation statements)

References 11 publications

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“…[11] Moreover, FACIT-Sp-12, like other spirituality scales and tools, fails to explicitly assess components of spirituality that are of central importance to many palliative care patients in India, such as belief in an all-powerful God and Karma or the conviction that every deed will have a corresponding consequence. [12][13][14] This does not mean that spirituality scales such as FACIT-Sp12 are necessarily useless in Hindi-speaking palliative care patients in India. However, spirituality may be better assessed by a tool that has been specifically developed for this population.…”

Section: Indian Journal Of Palliative Carementioning

confidence: 99%

Psychometric Assessment of SpiDiscI: Spiritual Distress Scale for Palliative Care Patients in India

Gielen

Kashyap

Singh

et al. 2022

IJPC

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Objectives: Spirituality has an impact on the quality of life of palliative care patients and it influences the way in which they experience their disease. Spiritual distress is a common issue among palliative care patients in India that is best assessed through a tool specifically designed for them. This study presents the findings of a psychometric assessment of SpiDiscI: a 16-item spiritual distress scale for Hindi speaking palliative care patients in India. Materials and Methods: This study used a non-experimental cross-sectional sample survey design. 400 cancer patients undergoing pain treatment at the pain and palliative care unit of a tertiary cancer hospital in New Delhi enrolled in the study and completed the study’s questionnaire. The questionnaire contained a section on demographic information, a numerical rating scale (NRS) for pain, SpiDiscI, FACIT-Sp-12, and WHOQOL-BREF. A subset of 50 patients with stable pain completed SpiDiscI a 2nd time 2 weeks after the first administration of the scale to assess test-retest reliability. Results: The scale’s internal consistency is very good (Cronbach’s Alpha 0.85). Spiritual distress scores ranged from 0 to 93.8 (mean 37.1, SD 23.6). Significant negative correlations between SpiDiScI and both FACIT-Sp-12 (R = –0.16, P = 0.001) and WHOQOL-BREF (R = –0.27, P < 0.001) confirmed convergent validity. There was no significant association with NRS pain scores (R = 0.06, P = 0.224). The highly significant association (R = 0.75, P < 0.001) of the scores on assessments 2 weeks apart confirmed test-retest reliability. Conclusion: SpiDiScI is a reliable and valid measure to assess spiritual distress in research among Hindi speaking palliative care patients in India.

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Section: Indian Journal Of Palliative Carementioning

confidence: 99%

Psychometric Assessment of SpiDiscI: Spiritual Distress Scale for Palliative Care Patients in India

Gielen

Kashyap

Singh

et al. 2022

IJPC

Self Cite

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“…This can be contrasted by looking at the religious solution and how it provides God as an outward being that can be projected onto. Gielen and Kashyap (2019) studied a palliative care hospital in India, and interviewed a person who said, "living and dying are in God's hands" (p. 33). Other patients, instead of using God to give their lives meaning, felt deserted by God.…”

Section: The Mind Versus Body Solutionmentioning

confidence: 99%

The Role of Mind-Body Medicine in a Cancer Survivor’s Experience

Gill

2020

INv

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This paper tells the personal story of a cancer survivor and her experience dealing with death. It analyzes Ernest Becker’s thesis, The Denial of Death, by examining the solutions, which he suggests humans use to cope with the fear of death by establishing a sense of purpose and control. The author identifies examples of Becker’s solutions by looking at the mechanisms she used to cope with the possibility of dying through out her journey with cancer. With a tendency toward secularization and a focus on psychology in present day, the solutions people use to deal with death are changing. The author looks at how self-help, in the form of mind-body medicine, is a new solution that is used to deal with the fear of death in the present day socio-cultural landscape. While providing control, this way of dealing with the fear of death can be isolating and lead to self-blame. Keywords: Ernest Becker, Denial of Death, mind-body medicine, psychologize death, self-help.

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“…The fact that many of them did not return to their native countries when they grew older has led to a growing population of elderly ethnic South Asians, who are often in need of advanced medical care because of their advanced age. When they enter Western healthcare systems and treatment decisions must be made, their socio-cultural customs, practices, and beliefs, such as paternalism (Chaturvedi, 2008;Yousuf et al, 2007) and the family's culturally determined unwillingness to discuss a terminal prognosis with the patient (Gielen & Kashyap, 2019), may clash with American notions regarding patient involvement in decision-making.…”

Section: Introductionmentioning

confidence: 99%

Barriers to Patient Involvement in Decision-Making in Advanced Cancer Care: Culture as an Amplifier

Hurst¹,

Potter²,

Naumann³

et al. 2022

Narrative Inquiry in Bioethics

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In advanced cancer care, patient preferences regarding treatment are sometimes insufficiently integrated in the decision-making process. This can be the case with patients from non-Western cultural backgrounds undergoing treatment in the US. This study aimed to understand oncology and palliative care physicians' and nurses' perceptions of factors that impact involvement in treatment decisions by patients from diverse cultural backgrounds. Seventeen participants (6 MDs, 9 RNs, and 2 NPs) were interviewed using a semi-structured guide. Interviews were analyzed using conventional content analysis. Findings revealed six barriers to patient involvement in decision-making: language, socio-economic status, educational status, gender, family attitudes, and healthcare providers' behavior and attitudes. Participants did not view culture itself as a barrier to patient involvement, but rather, noted culture-amplified barriers that occurred with patients across all cultural backgrounds. To overcome these barriers, a wider integration of cultural competence in patient care is needed.Acknowledgements. This study was partly funded by a faculty development grant from Duquesne University.

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Belief in Karma and Mokṣa at the End of Life in India

Cited by 7 publications

References 11 publications

Psychometric Assessment of SpiDiscI: Spiritual Distress Scale for Palliative Care Patients in India

Psychometric Assessment of SpiDiscI: Spiritual Distress Scale for Palliative Care Patients in India

The Role of Mind-Body Medicine in a Cancer Survivor’s Experience

Barriers to Patient Involvement in Decision-Making in Advanced Cancer Care: Culture as an Amplifier

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