Beliefs and Knowledge about Parkinson’s Disease

Moore, Susan; Knowles, Simon R.

doi:10.7790/ejap.v2i1.32

Cited by 33 publications

(49 citation statements)

References 16 publications

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“…One telephone survey conducted among Australian households asked similar questions related to PD causes, symptoms, diagnosis and management with an average of 66% of items answered correctly (Moore & Knowles 2006). Those study participants were younger than those in our sample.…”

Section: Discussionmentioning

confidence: 99%

“…In a study of Alzheimer’s disease, higher levels of knowledge about the disease were associated with greater help-seeking behavior (Werner 2003). Prior studies of PD knowledge and attitudes in the community have shown that reported knowledge of PD is low (Werner & Korczyn 2010), and many associate stigma with the disease (Moore & Knowles 2006). These may act as additional barriers to care, particularly for underserved minorities.…”

Section: Introductionmentioning

confidence: 99%

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Knowledge and Attitudes About Parkinson’s Disease Among a Diverse Group of Older Adults

Pan

Stutzbach

Reichwein

et al. 2014

J Cross Cult Gerontol

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Underserved minorities are vulnerable to diagnostic delays and under-treatment of Parkinson’s disease (PD). The purpose of this mixed-methods study was to understand knowledge and attitudes about PD among a racially/ethnically diverse group of community members. In the qualitative arm, 10 homogeneous focus groups of 6 to 8 White, African-American and Chinese-Americans older adults at senior centers in Philadelphia were conducted. Next, for the quantitative piece, a questionnaire of knowledge and attitudes about PD was administered among a larger group of senior center members. Themes were identified from the focus group discussions. ANOVA and chi-square tests were used to assess differences in PD knowledge and attitudes among the different racial/ethnic groups. Logistic regression analyzed for independent factors associated with barriers to treatment. Seventy-five adults participated in the focus groups (23 Whites, 36 African-Americans and 16 Chinese-Americans) and 154 completed the questionnaire (62 Whites, 47 African-Americans and 45 Chinese-Americans). One common theme about developing PD was fear of losing independence. Racial/ethnic groups identified unique barriers to care: mistrust in the healthcare system by African-Americans and language difficulties by Chinese-Americans. 80% of all participants had no to some knowledge of PD. African-Americans and Chinese-Americans were more likely to perceive PD as a part of normal aging than whites. Chinese-Americans were more likely to perceive barriers to treatment than whites. A diverse sample of older adults demonstrated low levels of PD knowledge through both qualitative and quantitative methods. Many barriers to PD care were identified. Targeted community outreach and education efforts should incorporate information about PD and how to receive care.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Knowledge and Attitudes About Parkinson’s Disease Among a Diverse Group of Older Adults

Pan

Stutzbach

Reichwein

et al. 2014

J Cross Cult Gerontol

View full text Add to dashboard Cite

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“…Quantitative research also has validated the source of stigma by surveying public attitudes toward PD [9] and by examining others’ impressions of PD symptoms [10-12]. Moore and Knowles reported that nearly half of survey respondents considered the disease to be stigmatizing [9].…”

Section: Introductionmentioning

confidence: 99%

Stigma as a key determinant of health-related quality of life in Parkinson’s disease

et al. 2016

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Purpose People with Parkinson's disease (PD) may experience stigma due to their visible features of movement and communication difficulties. This paper aimed to examine the role of experienced stigma in health-related quality of life (QOL), after controlling for personal and clinical characteristics. Methods This is a preliminary analysis of a subset of baseline data from the Social Self-Management of Parkinson's Disease Study (SocM-PD), an ongoing 3-year prospective cohort study. 73 people with PD (Mage = 65.72, 29 women) participated in this study. Hierarchical multiple regression analyses were used to determine the role of stigma in QOL, after controlling for gender, disease severity, depression, and motor difficulties of daily living. Results Significant correlations were found between QOL with gender (r = .26), disease severity (r = .38), depression (r = .65), motor difficulties of daily living (r = .71), and stigma (r = .83). After controlling for the significant covariates, stigma made a significant and unique contribution to the explanation of QOL by 13.7 % (p < 0.001). A final hierarchical multiple regression with stigma and the 4 covariates revealed an overall model that explained 77.8% of the total variance of QOL (F [5, 63] = 48.79, p < 0.001). Conclusions Experienced stigma appears to be a key determinant of QOL in people with PD. The results suggest the importance of further understanding stigma in PD to develop possible intervention strategies. Future work is also needed to verify the results with a larger and longitudinal dataset of the SocM-PD.

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“…Socioeconomic status is a crucial factor to consider when developing public educational programs about PD. Many studies have reported a lack of knowledge and/or misconceptions about PD among diverse older populations, such as different community-based groups or racial/ethnic groups [6,[11][12][13]19] . However, in our study, differences in the awareness and knowledge about PD were not significant when comparing rural and urban areas.…”

Section: Categorymentioning

confidence: 99%

“…Therefore, awareness and knowledge about PD among the general population is crucial for early diagnosis and optimal management of the disease. There have been some survey studies assessing the knowledge of PD in specific regional groups or in diverse groups of elderly patients, and generally, these studies have found a low level of knowledge about PD among those surveyed [6,[11][12][13] . In 2009, the European Parkinson's Disease Association (EPDA) conducted a survey about the perception of PD across Europe [14] .…”

Section: Introductionmentioning

confidence: 99%

Public Awareness and Knowledge about Parkinson's Disease: A National Population Based Survey in South Korea

Youn

Oh²,

Park³

et al. 2016

Neuroepidemiology

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Background: Considering the increasing prevalence of Parkinson's disease (PD), the lack of awareness and knowledge regarding PD may be barriers to the early diagnosis and the provision of optimal care to affected patients. This study aimed to investigate the awareness and knowledge about PD among the general population in South Korea and to identify the factors that are associated with these parameters. Methods: We developed a structured, 22-item questionnaire that consisted of both open-ended and close-ended questions. A total of 1,000 people from the general public were randomly sampled in proportion to the country's population density and were questioned by well-trained interviewers. Multivariate logistic regression analysis was applied to identify the factors associated with awareness and knowledge of PD. Results: Age, household income and education level were independently associated with awareness of PD. Subjects between 40 and 59 years of age and those who had completed more than 12 years of education showed more awareness of PD. Regarding knowledge about PD, younger subjects exhibited the least knowledge compared to respondents between 40 and 59 years of age and those above 60 years of age. Low socioeconomic status tended to be associated with poor knowledge of PD. Conclusions: Awareness and knowledge of PD showed hierarchical gradients with respect to age, income and education level. Pertinent educational strategies and approaches targeting specific subgroups are necessary to improve public awareness and knowledge about PD.

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Beliefs and Knowledge about Parkinson’s Disease

Cited by 33 publications

References 16 publications

Knowledge and Attitudes About Parkinson’s Disease Among a Diverse Group of Older Adults

Knowledge and Attitudes About Parkinson’s Disease Among a Diverse Group of Older Adults

Stigma as a key determinant of health-related quality of life in Parkinson’s disease

Public Awareness and Knowledge about Parkinson's Disease: A National Population Based Survey in South Korea

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