Benefits of the epilepsy specialist nurses (ESN) role, standardized practices and education around the world

Prevos-Morgant, Marielle; Leavy, Y.; Chartrand, Dominic; Jurasek, Laura; Shafer, Patty; Shinnar, Ruth C.; Goodwin, Mel

doi:10.1016/j.neurol.2018.10.003

Cited by 21 publications

(24 citation statements)

References 13 publications

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“…Specialized nurses can also improve access to treatment, which can ensure that a greater number of patients infected with COVID-19 are treated accordingly. [32] The specialized nurses in isolation wards can perform their respective duties, improve the quality of nursing services, and provide patients with the most professional and refined nursing services. Furthermore, the implementation of specialized nurses can decrease the workload of current frontline nurses, which can prevent burnout and in-crease their psychological health by allowing them to spend more time with their families.…”

Section: Implementation Of Specialized Nurses In Isolation Wardsmentioning

confidence: 99%

Psychological experiences of nurses in COVID-19 isolation wards in China: A qualitative examination

Chen

Zou²,

Zhou³

et al. 2020

JNEP

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Objective: This study explores the psychological experiences and factors affecting the psychological health of isolation ward nurses during the COVID-19 pandemic in China. Findings from this study will inform on future initiatives that can support frontline nurses, improve their ability to cope with public health emergencies, and create effective nursing management strategies.Methods: A qualitative phenomenological research method was applied. In-depth interviews with 10 first-line clinical nurses in isolation wards during the COVID-19 pandemic were conducted. Collected data were analyzed with the Colaizzi seven-step analysis method.Results: Three themes were emerged, including the evolution of the psychological health of nurses, positive factors that affect psychological health, and negative factors that affect psychological health. Nurses experienced various changes to their psychological health during the pandemic. When nurses were supported by team members, appreciated by their patients, and cared for by their organizations, their psychological health was enhanced. When nurses felt disconnected from their families and experienced physical discomfort due to protective equipment, their psychological health was negatively impacted.Conclusions: Changes in the psychological health of isolation ward nurses should be constantly monitored. Proper strategies should be implemented to reduce the physical discomfort experienced by nurses due to protective equipment, increase perceptions of familial and workplace support, and determine ways to increase displays of patient appreciation for nursing work.

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Section: Implementation Of Specialized Nurses In Isolation Wardsmentioning

confidence: 99%

Psychological experiences of nurses in COVID-19 isolation wards in China: A qualitative examination

Chen

Zou²,

Zhou³

et al. 2020

JNEP

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“…Among respondents followed up by ESN and not follow up by a specialist (neurologist/pediatrician) significantly more of these have been informed on risk of injuries. The patients should be assured that seizure-related injuries occur far more seldom than many think [36], and ESNs may educate them about seizure-precipitating factors and help them to remove unnecessary restrictions in their lifestyle [10].…”

Section: Lifestyle and Risk Of Injuriesmentioning

confidence: 99%

“…The ESNs should be natural members of the multidisciplinary team treating patients with epilepsy, providing a variety of practical care as well as information and education regarding the diagnosis and the potential impacts of epilepsy [10]; ESNs can also support other nurses in providing information and advice [11].…”

Section: Introductionmentioning

confidence: 99%

Patient satisfaction with information provided by epilepsy specialist nurses: Results of an online survey

Hauge

Henning

Nakken

et al. 2020

Epilepsy & Behavior

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The aim of this study was to investigate the perspective of Norwegian patients with epilepsy regarding the information that they have received about epilepsy-related issues and to determine whether there was a difference in information received between those who had been followed up by an epilepsy specialist nurse (ESN) and those who had not. Further, were there differences regarding satisfaction with the information between the two groups?We conducted an online survey in close collaboration with the Norwegian Epilepsy Association. A total of 1859 respondents (1182 patients with epilepsy and 677 carers for patients with epilepsy) completed a web-based questionnaire. They were asked about epilepsy-related issues on which they had received information, the extent to which they were satisfied with this information, and whether they were being followed up by an ESN or not. Significantly more patients followed up by an ESN had received information about the epilepsy diagnosis, antiseizure drugs (ASDs), routine use of ASD, and risk of seizure-related injuries as compared to those not followed up by an ESN. In addition, patients followed by an ESN were more likely to be satisfied with the information they received. Just above or under half of the respondents had received or were satisfied with information about depression, anxiety, premature death, and sexual wellbeing. Our results indicate that follow-up by ESNs results in improvements in the information provided to patients with epilepsy; ESNs should be an integral part of comprehensive epilepsy service.

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“…Studies have highlighted the difficulties in demonstrating the benefits of epilepsy nurses (Bradley et al, 2016) and their recognition as a viable means of healthcare delivery (Jakimowicz et al, 2017). Patients and families have shown a clear perception of the benefits provided by nurses in qualitative (Kirton et al, 2012) and quantitative interventional studies (Pfäfflin et al, 2016; Prevos‐Morgant et al, 2019). Studies have shown clear evidence of the leadership of epilepsy nurses in the empowerment of patients (Higgins et al, 2019), highlighting positive changes in health services, educational activities, increasing patient self‐care and patients perceptions of confidence, making them more open to discussing problems (Higgins, Downes, Varley, Doherty, et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

“…In these studies, patients were even more satisfied with the emotional and practical support offered (Higgins, Downes, Varley, Tyrell, et al, 2018). Some studies have also reported the impact of epilepsy nursing care on the education and care of chronic epilepsy patients (Prevos‐Morgant et al, 2019), their quality of life (Locatelli, 2019) and satisfaction (Pfäfflin et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

The emerging role of the advanced practice epilepsy nurse: A comparative study between two countries

Manzanares

Guerra

Peña-Ceballos

et al. 2021

Journal of Clinical Nursing

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Background: Europe has recently faced the challenge of providing high-quality care for patients with epilepsy, a disease that generates many health demands. In some countries, such as the United Kingdom, advanced practice nursing is well established and could serve as a guide for implantation in countries where it is still in development, as is the case of Spain.Design: A multicentre cross-sectional descriptive cohort study compared differences in the roles of advanced practice nurses in Spain and the United Kingdom. Methods:The Advanced Practice Role Delineation Tool and its validated Spanish version were administered using an online questionnaire in a cohort of advanced practice epilepsy nurses in both countries. A convenience sample was recruited between January to December 2019. The study complied with the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) checklist.Results: Most United Kingdom nurses in our sample came from community environments, in contrast to Spanish nurses who worked in hospital. All domains analysed in the survey had significantly higher scores in the United Kingdom than in the Spanish cohort, especially in the research and leadership domains.

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Benefits of the epilepsy specialist nurses (ESN) role, standardized practices and education around the world

Cited by 21 publications

References 13 publications

Psychological experiences of nurses in COVID-19 isolation wards in China: A qualitative examination

Psychological experiences of nurses in COVID-19 isolation wards in China: A qualitative examination

Patient satisfaction with information provided by epilepsy specialist nurses: Results of an online survey

The emerging role of the advanced practice epilepsy nurse: A comparative study between two countries

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