Bereaved Families’ Perspectives of End-of-Life Care. Towards a Bicultural Whare Tapa Whā Older person’s Palliative Care Model

Moeke-Maxwell, Tess; Collier, Aileen; Wiles, Janine; Williams, Lisa; Black, Stella

doi:10.1007/s10823-020-09397-6

Cited by 15 publications

(59 citation statements)

References 18 publications

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“…Third, the concept of holistic care as comfort care was viewed as an ‘extra’ to palliative services and what was expected from palliative care health professionals. 43–45 This interpretation places a high value on curative, medical treatment that predominates the notion that this is the core of palliative care work and that everything else is simply nice to have or declined since it is not necessary. 43…”

Section: Summary Of the Evidencementioning

confidence: 99%

“…Three studies that investigated holistic frameworks broke down areas of care to include physical, psychological, social and spiritual aspects. [43][44][45] There was some variation on psychosocial aspects of care expanded to: psychological/ emotional, emotional/mental and social/family domains. Moeke-Maxwell et al 45 included cultural aspects in addition to the other domains.…”

Section: Holistic Practices Across Domains Of Carementioning

confidence: 99%

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The concept of holism applied in recent palliative care practice: A scoping review

Bryk

Roberts²,

Hudson

et al. 2022

Palliat Med

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Background: Whilst there is a sense of holism existing within palliative care practice, what is not clear is the extent to which holism, as applied in recent palliative care practice, has been adequately researched. Currently, no reviews on this topic were identified through systematic and scoping review registries. Aim: To identify and describe the available published evidence on the key features of holism and the core domains underpinning the application of holism in relation to recent palliative care practice. Design: Scoping review using the Johanna Briggs Institute design. Data sources: MEDLINE, EMCARE, and CINAHL (Ovid), PsycINFO, SocINDEX, SCOPUS and Web of Science. (International, peer-reviewed, published papers in the English language from January 2010to December 2020). Results: Five studies met inclusion criteria. Two studies used qualitative methods, one used mixed-methods, and two were randomised controlled trials. The research investigated (1) frameworks for holistic care and (2) assessment tools applied in palliative care settings. Conclusions: The results from the review led to identifying key features of palliative care that were presented as interconnected aspects of holistic care domains in both assessments and interventions. The literature revealed a focus on curative and biomedical approaches to disease management with holistic aspects acknowledged, but not in the forefront of core service delivery. Holism was generally conceptualised as an overarching theoretical framework to palliative care service provision and positioned as an adjunct to palliative models of care. These findings point to a gap in research that links the concept of holism to applied palliative care practices.

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Section: Summary Of the Evidencementioning

confidence: 99%

Section: Holistic Practices Across Domains Of Carementioning

confidence: 99%

The concept of holism applied in recent palliative care practice: A scoping review

Bryk

Roberts²,

Hudson

et al. 2022

Palliat Med

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“…Several models of healthcare apply directly to Māori people (Durie n.d.;Moeke-Maxwell et al 2020b). One model depicts the concept of 'te whare tapa whā'-the four cornerstones (or sides) of Māori health-and resembles the image of a house.…”

Section: Spiritual Assessment Forms Instruments and Māori Modelsmentioning

confidence: 99%

Spiritual Diversity, Spiritual Assessment, and Māori End-of-Life Perspectives: Attaining Ka Ea

Nelson-Becker

Moeke-Maxwell

2020

Religions

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The contemporary world is endowed with increasingly diverse spiritual and cultural perspectives, yet little is known about the spiritual concerns and spiritual resilience of Māori from Aotearoa New Zealand at the end of life. A context is provided for the value of spiritual assessment and identification of spiritual needs or concerns. Spiritual concerns and the desire to attain a state of ka ea (fulfillment, gratitude, or peace) may point to interventions, helping activities, or referrals that guide treatment. We reflect on qualitative findings from the 2017–2020 Pae Herenga study of 61 caregiving families, their helping professionals, and religious/spiritual leaders. We explore essential spiritual values and practices that support kaumātua (older tribal people) who have a life-limiting illness in achieving a sense of satisfaction and fulfilment at the end of life. Three themes emerged: the relational is spiritual, the need to live into the future, and value of spiritual end-of-life care. While some scholars have lamented the lack of culturally appropriate rapid assessment instruments, we suggest that a more open-ended assessment guide is better suited to understand key elements of spiritual diversity and spiritual concerns, particularly the spiritual strengths and resources that lead to well-being and even thriving at life’s end. Finally, learning about spiritual diversity can assist others to reconnect to lost meanings and regain a more holistic and centred view of life.

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“…Aboriginal and Torres Strait Islander peoples in Australia (Bernardes et al, 2021; Watson et al, 2020) and Māori people of Aotearoa/New Zealand (Gott et al, 2018; Moeke‐Maxwell et al, 2018, 2020; Shahid et al, 2018) develop life‐limiting illnesses at younger average ages than their non‐Indigenous counterparts. Similarly, Indigenous Americans experience more adverse health outcomes than non‐Indigenous non‐Hispanic Americans (Colclough & Brown, 2019; Gebauer et al, 2016; Isaacson & Lynch, 2018).…”

Section: Introductionmentioning

confidence: 99%

Integrative review of the needs and challenges of indigenous palliative care in rural and remote settings

Racine

Fowler‐Kerry

Aiyer

2022

Journal of Advanced Nursing

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Despite 21st century medical and technological advances, accessto palliative care remains tenuous, if not impossible for a majority of people living in low-and middle-income countries (World Health Organization, 2020). The World Health Organization (2020) reports that 40 million people need palliative care services worldwide, but accessibility is limited due to a lack of human or financial resources to provide services or a lack of understanding of palliative care delivery goals. The Canadian Society of Palliative Care Physicians (2016) states that only 30% of Canadians have access to palliative care.Although a majority of Canadians wish to die at home, the Canadian Institute for Health Information (CIHI) underlines that "fewer than 1 in 6 people (15%) who died in 2016-2017 received palliative home care while those who received palliative care received it only in the last month of life" (CIHI,

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Bereaved Families’ Perspectives of End-of-Life Care. Towards a Bicultural Whare Tapa Whā Older person’s Palliative Care Model

Cited by 15 publications

References 18 publications

The concept of holism applied in recent palliative care practice: A scoping review

The concept of holism applied in recent palliative care practice: A scoping review

Spiritual Diversity, Spiritual Assessment, and Māori End-of-Life Perspectives: Attaining Ka Ea

Integrative review of the needs and challenges of indigenous palliative care in rural and remote settings

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