Bereaved Siblings’ Advice to Health Care Professionals Working With Children With Cancer and Their Families

Lövgren, Malin; Bylund-Grenklo, Tove; Jalmsell, Li; Wallin, Alexandra Eilegård; Kreicbergs, Ulrika

doi:10.1177/1043454215616605

Cited by 51 publications

(58 citation statements)

References 25 publications

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“…Similar to the findings by Lövgren et al (2016), O'Shea et al (2012 reported that siblings did not want to be left out, and school-age and adolescent siblings often wanted to help the ill child by participating in their care. Similar to the findings by Lövgren et al (2016), O'Shea et al (2012 reported that siblings did not want to be left out, and school-age and adolescent siblings often wanted to help the ill child by participating in their care.…”

Section: Need For Informational and Special Desiressupporting

confidence: 71%

“…Other siblings voiced a desire for more resources within the hospital setting (D'Urso et al, 2017). Lövgren, Bylund-Grenklo, Jalmsell, Wallin, and Kreicbergs (2016) conducted a study that asked bereaved siblings to determine what advice they wanted to give to healthcare providers regarding childhood cancer. They reported that siblings wanted to be paid attention to, and desired information about their brother or sister's cancer, treatment, and prognosis (Lövgren et al, 2016).…”

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

“…Lövgren, Bylund-Grenklo, Jalmsell, Wallin, and Kreicbergs (2016) conducted a study that asked bereaved siblings to determine what advice they wanted to give to healthcare providers regarding childhood cancer. They reported that siblings wanted to be paid attention to, and desired information about their brother or sister's cancer, treatment, and prognosis (Lövgren et al, 2016). Additionally, siblings wanted healthcare providers to give advice to their parents about how to support their healthy children during this cancer journey, and teach parents how to involve siblings in the ill child's care.…”

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

“…They reported that siblings wanted to be paid attention to, and desired information about their brother or sister's cancer, treatment, and prognosis (Lövgren et al, 2016). Siblings asked for healthcare providers to provide hope but are as realistic and honest as possible (Lövgren et al, 2016). Siblings asked for healthcare providers to provide hope but are as realistic and honest as possible (Lövgren et al, 2016).…”

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

“…Ultimately, siblings thought it was important to take time for themselves by spending time with friends, listening to music, playing sports, or studying(Jenholt Nolbris et al, 2014).6 | DISCUSSION AND IMPLICATIONS FOR PRACTICEA review of the current literature reveals that siblings experience a variety of responses when childhood cancer impacts their families.Nurses must recognize that siblings are an essential part of the cancer journey and that they must be included in the care of the ill child. Nurses can also provide age-appropriate resources for siblings to help them to better understand the cancer diagnosis and treatment plan(Jenholt nolbris et al, 2014;Lövgren et al, 2016;O'Shea et al, 2012). The depth and gravity of grief and fear displayed by siblings across this data set suggest that the cancer experience is overwhelming for all family members.…”

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confidence: 93%

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An integrative review of sibling responses to childhood cancer

Weiner

Woodley

2018

Child Adoles Psych Nursing

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Topic Siblings of children with cancer experience extraordinary responses and changes to their lives over the course of their family's cancer journey. Purpose The purpose of this paper is to conduct an integrative literature review to synthesize and analyze relevant findings related to the siblings’ experiences of childhood cancer. Sources Used CINAHL, PubMed, Embase, MEDLINE, and PsycINFO were searched using the key terms: “sibling*” AND “pediatric*” AND “cancer” AND “experienc*” OR “experience*.” Inclusion criteria for this review were research studies focused on sibling responses to having a brother or sister with cancer, published in English between January 1, 2012 and December 31, 2017. Conclusions Siblings of children with cancer experience many changes to their emotions, relationships, family and home life, school life, and extracurricular activities. They have specific needs and desires including the need for information. Whereas they undergo many changes during the cancer journey, siblings often demonstrate resilience and personal growth and find ways to problem‐solve and cope.

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Section: Need For Informational and Special Desiressupporting

confidence: 71%

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

Section: Need For Informational and Special Desiresmentioning

confidence: 99%

mentioning

confidence: 93%

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An integrative review of sibling responses to childhood cancer

Weiner

Woodley

2018

Child Adoles Psych Nursing

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Much is left unspoken: Self‐reports from families in pediatric oncology

Lövgren

Udo

Alvariza

et al. 2020

Pediatric Blood & Cancer

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Background: Communication about illness-related subjects is complex and difficult. To support entire families in pediatric oncology, health care professionals need to know what family members think, but leave unspoken. The aim of this study was to explore how families in pediatric oncology experienced illness-related information and communication with professionals and within the family. Procedure: A cross-sectional web survey was used. Families were recruited from one pediatric oncology center in Sweden, 2-3 months after diagnosis. One hundred eighteen family members (ill children, siblings, and parents) representing 27 families filled out age-adapted surveys. Results: Eighty-six percent of the parents and 71% of the siblings reported that they had not received enough or any information about how the cancer and its treatment could affect the child's psychological health. The families reported that they did not dare ask professionals questions about psychosocial issues and future-related subjects. Nor did they talk with one another, even though 55% of the parents and 24% of the children wanted to reveal more about how they felt to someone in the family. The parents reported the lowest family communication, and few families had all members reporting the same perception of family communication. Conclusions: Much is still left unspoken in pediatric oncology and the needs of the families are prominent. Assessments of each family member's needs might form a basis for professionals to give each person adequate information and family support. An increased awareness in families about family members' different needs might lead to mutual understanding.

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Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences

Ivéus¹,

Eklund

Kreicbergs

et al. 2021

Pediatric Blood & Cancer

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Background Childhood cancer affects the whole family. Illness‐related stressors increase the risk for poor family communication, affecting the family's well‐being. Siblings describe worry and poor illness‐related information. As there are few evaluated family interventions in pediatric oncology, this study aimed to pilot‐test a family‐centered intervention, the family talk intervention (FTI), in pediatric oncology. This paper examined the feasibility in terms of acceptability from the siblings’ perspectives. Methods This study derives from a pilot study of 26 families including 37 siblings recruited from one pediatric oncology center. Standard FTI comprises six meetings with the family, led by two interventionists, with the main goal to facilitate family communication on illness‐related topics (e.g., prognosis, the invisibility of healthy siblings). This paper focuses on interview and survey data from siblings after participation in FTI. The study is registered at ClinicalTrials.gov (Identifier NCT03650530). Results The siblings, aged 6 to 24 years, stated that the interventionists made the meetings feel like a safe environment and that it was a relief for the siblings to talk. They reported that FTI helped the family talk openly about illness‐related topics, which they felt led to increased family understanding and improved relationships. The siblings described that FTI also helped them with their school situation. The majority of the siblings reported that FTI came at the right time and involved an appropriate number of meetings. Conclusion According to the siblings, the timing, content, and structure of FTI were appropriate. FTI showed benefits for both the siblings and each family as a whole.

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Bereaved Siblings’ Advice to Health Care Professionals Working With Children With Cancer and Their Families

Abstract: Information, communication, and involvement should be emphasized by HCPs to support siblings' psychosocial needs in both the health care setting and within the family.

Cited by 51 publications

References 25 publications

An integrative review of sibling responses to childhood cancer

An integrative review of sibling responses to childhood cancer

Much is left unspoken: Self‐reports from families in pediatric oncology

Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences

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