Between Inclusion and Participation: Young Carers Who Are Absent From School

Kaiser, S.; Schulze, Gisela C.

doi:10.1891/1945-8959.14.3.314

Cited by 38 publications

(21 citation statements)

References 16 publications

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“…For example, Cluver et al (2013) showed that children in sub-Saharan Africa who look after parents with AIDS are at greater risk themselves of pulmonary tuberculosis. Second, a wide range of qualitative studies have shown that young carers and young adult carers may experience various economic and social disadvantages and difficulties, including restricted educational opportunities and employment (e.g., Kaiser and Schulze 2015), difficulties in meeting the demands on them in university education (e.g., Kettell 2018), reduced social capital (e.g., Barry 2011), and experience of stigma leading to secrecy and social withdrawal (e.g., Bolas et al 2007). Metzing-Blau and Schnepp (2008) found that families turn to secrecy as a means to keep the family together as it is felt to be under threat, thus the disadvantages can become compounded.…”

Section: Prevalence and Effects Of Caringmentioning

confidence: 99%

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

et al. 2019

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Many children, adolescents, teenagers, and young adults have caring responsibilities for parents and family members. These young carers and young adult carers are present in every country. Their responsibilities include domestic chores as well as intimate personal care and other forms of helping which are generally seen as the responsibility of adult professionals. First, this article provides an overview and critical perspective on young carers research. Research suggests that 2-8% of children and young people are carers and that the caring role has an impact on their education, health, wellbeing, social opportunities and employment prospects. Various countries have responded differently with regards to policy: some have well developed services and recognition in law whilst others are only just beginning to recognise the problem. Second, we discuss the issues and challenges for research and propose a new agenda for the development of policy, research rigour, more theoretical sophistication, and a greater awareness of the need for interdisciplinary and multiagency working. Furthermore, we call for participatory and action led research that can provide greater insights into the lived experiences of young people, their needs and how these can be met.

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Section: Prevalence and Effects Of Caringmentioning

confidence: 99%

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

et al. 2019

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“…Nevertheless, taking care of a family member can also have negative caregiving outcomes, especially for adolescents who have still to define a personal sense of identity, adopt a subjective value system, and re-negotiate relationships with parents as carers, during this developmental and transitional phase to adulthood [ 8 ]. A young caregiving role may indeed exacerbate the risk of experiencing mental health problems [ 38 ], health inequalities during the life course [ 5 , 12 , 39 , 40 ], poor well-being [ 41 , 42 ], restrictions in education and employment opportunities [ 43 , 44 ], as well as stigma leading to social isolation [ 45 ], frustration [ 35 ], and stress [ 25 ]. Furthermore, the recent Covid-19 pandemic, and the lockdown imposed by European governments as a response to the outbreak, had a dramatic impact on the mental health and well-being of family carers of all ages [ 46 ], and AYCs especially experienced a worsening of their mental health and social isolation [ 47 ].…”

Section: Introductionmentioning

confidence: 99%

Positive and Negative Impacts of Caring among Adolescents Caring for Grandparents. Results from an Online Survey in Six European Countries and Implications for Future Research, Policy and Practice

Santini

Socci

D’Amen

et al. 2020

IJERPH

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Although up to 8% of European youngsters carry out high-intensity care for a family member, adolescent young carers (AYCs), especially those caring for their grandparents (GrPs), remain an under-researched group. This study aimed at addressing the current knowledge gap by carrying out an online survey in Italy, the Netherlands, Slovenia, Sweden, Switzerland, and the United Kingdom. The analysis included a final sample of 817 AYCs aged 15–17 years old. AYCs of grandparents (GrPs) were compared to AYCs of other care recipients (OCRs), in order to identify any difference in positive and negative caregiving outcomes and exposure factors between the two groups. Linear or logistic regression models were built, and multivariate analyses were repeated, including a fixed effect on the country variable. AYCs of GrPs experienced more positive caregiving outcomes than AYCs of OCRs across all six countries. Being female or non-binary, and having a migration background, were associated with more negative outcomes, regardless of the relationship with the care recipient. Further research on intergenerational caregiving outcomes is recommended for shaping measures and policies, which preserve the intergenerational emotional bonds, whilst protecting AYCs from inappropriate responsibilities, undermining their mental health and well-being.

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“…Kindern und Jugendlichen bereitet die Vereinbarung von familiären Pflegeaufgaben mit den Anforderungen der Schule Mühe, was zu einem Einbruch des Leistungsniveaus führen kann; dies kann wiederum Folgen für die zukünftige Entwicklung haben. Als weiteres Resultat der nicht-entwicklungsgerechten Übernahme von Pflegeverantwortung können körperliche wie auch psychische Probleme, Probleme in der Schule (Bullying) und Restriktionen in der Ausübung von Freizeitaktivitäten (Hobbys, Freunde treffen) auftreten (Kaiser & Schulze, 2015;Metzing-Blau & Schnepp, 2008). Im Vergleich zu Kindern ohne Pflegeaufgaben kann sich diese Chancenungleichheit negativ auf die Entwicklung der betroffenen Kinder und Jugendlichen auswirken und eine zukünftige soziale Teilhabe verhindern (Aldridge & Becker, 1993;Bjorgvinsdottir & Halldorsdottir, 2014;Kaiser & Schulze, 2015;Metzing-Blau & Schnepp, 2008).…”

Section: Schritt: Bestimmung Der Voraussetzungen Und Folgenunclassified

Who are „Young Carers”? Analysis of the Use of the Term in German Speaking Countries and Development of a Definition / Wer sind Young Carers? Analyse der Begriffsverwendung im deutschsprachigen Raum und Entwicklung einer Definition

Frech¹,

Nagl‐Cupal²,

Leu³

et al. 2019

International Journal of Health Professions

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Introduction Children and adolescents with caring responsibility who are looking after a family member or a person close are often hiding from the view of the public. They are not well recognised from professionals from health care, education and social services. Several research as well as support programmes have been initiated within the last years. It became obvious that the term ‘young carers’ was translated in various ways into German and connected with different attributes. An integral understanding is yet of high relevance for the international dialogue as well as for the transfer from theory to practice. Aim The aim of this article is to analyse and conceptualize the use of different terminologies for ‘young carers’ by professionals when providing support for these young people. A definition for the target population was developed for German speaking countries that will provide the groundwork for the scientific and public discourse. Methods A concept analysis by Walker und Avant (2014) was conducted. Results The analysis illustrated the various use of terms as well as defining key characteristics – the presence of an ill person that needs support, the age of these young people, the tasks they perform as well as the involved high responsibility. Discussion Not all children of family members or persons close who have an illness or impairment perform a support role. Only part of these young people take on caring tasks and provide support on a significant level. Conclusion The analysis showed the need for a clarification of the terms used in German speaking countries for ‘young carers’. A commonly applied definition enables an identification of the target group by professionals and the persons concerned. Additionally, it facilitates the alignment to the proceeding international discourse.

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Between Inclusion and Participation: Young Carers Who Are Absent From School

Cited by 38 publications

References 16 publications

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Young Carers Research, Practice and Policy: An Overview and Critical Perspective on Possible Future Directions

Positive and Negative Impacts of Caring among Adolescents Caring for Grandparents. Results from an Online Survey in Six European Countries and Implications for Future Research, Policy and Practice

Who are „Young Carers”? Analysis of the Use of the Term in German Speaking Countries and Development of a Definition / Wer sind Young Carers? Analyse der Begriffsverwendung im deutschsprachigen Raum und Entwicklung einer Definition

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