Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history

Brownlee-Chapman, Chloe; Chapman, Rohhss; Eardley, Clarence; Forster, Sara; Green, Victoria; Graham, Helen; Harkness, Elizabeth; Headon, Kassie; Humphreys, Pam; Ingham, Nigel; Ledger, Sue; May, Val; Minnion, Andy; Richards, Row; Tilley, Liz; Townson, Lou

doi:10.1080/13527258.2017.1378901

Cited by 11 publications

(9 citation statements)

References 20 publications

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“…Methods employed to include people with intellectual impairments were drawn from multi-media advocacy approaches and included using cameras, videos, sounds and texts to capture thoughts and reflections. Brownlee-Chapman et al (2018) describe how they used an inclusive research process to develop a Living Archive of Learning Disability History. One innovative aspect of their approach to inclusive research was to employ a person with learning disabilities as one of the project research assistants.…”

Section: Approaches To Inclusion and Participation For Museum Visitors With Intellectual Impairmentsmentioning

confidence: 99%

A participatory approach to the evaluation of participatory museum research projects

Tai-Seale

Carrizosa

Rix

et al. 2020

International Journal of Research & Method in Education

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In this paper we will describe, justify and critique a participatory approach that we have developed in order to evaluate the success of a participatory research project that was exploring ways of making museum learning experiences more inclusive for adults who have a diverse range of access preferences. Because we were researching in a unique space at the intersection of inclusive museum education, inclusive technologies and participatory research we have needed to develop an original evaluation approach; informed by methods and frameworks derived from other fields. We present examples of the kind of evaluation information that the framework elicited and use this as a basis to critique the strengths and weaknesses of the framework. Our experience of using creative methods for eliciting evaluation data suggest that useful information about participation can be revealed but that further improvements can be made in order to make the research experience more participatory.

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Section: Approaches To Inclusion and Participation For Museum Visitors With Intellectual Impairmentsmentioning

confidence: 99%

A participatory approach to the evaluation of participatory museum research projects

Tai-Seale

Carrizosa

Rix

et al. 2020

International Journal of Research & Method in Education

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“…Despite significant changes to legislation, policy and service provision in the late twentieth and early twenty-first century, the lives of people with learning disabilities remain under represented within arts, culture and heritage (Fox and McPherson 2015;Brownlee-Chapman et al 2017). The history of learning disability has been largely documented by others (for example, through records from medical practitioners and policy makers) rather than being told from the perspective of people with learning disabilities.…”

Section: The Exclusion Of People With Profound and Multiple Learning Disabilities From History And Heritagementioning

confidence: 99%

“…In England, where this research took place, MCA 2005 (England and Wales) legislation provides a legal framework for the care, treatment and support of people over 16 years who are unable to make a specific decision for themselves. We set out to explore and practically demonstrate implementation of the MCA (2005) in relation to archival decision-making (Brownlee-Chapman et al 2017;Graham et al 2019). We wanted to explore and demonstrate how a person with profound and multiple learning disabilities could be supported to have as much involvement as possible in a decision about depositing their story, materials or artefacts in an archive.…”

Section: The Decision-making Pathway Formatmentioning

confidence: 99%

Enabling People with Profound and Multiple Learning Disabilities to Belong in Public and Community Archive Collections

Tilley¹,

Ledger²,

Haas³

2020

Belonging for People With Profound Intellectual and Multiple Disabilities

Self Cite

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“…A Lifelong Living Archive must be built on principles for acknowledging, respecting, representing, and negotiating multiple rights in records in and through time and space. The intent is to reverse the long‐established trend in recordkeeping, especially in public institutions, that results in records “dominated by the viewpoint of those in power, the decision makers” (Brownlee‐Chapman et al, , p. 4). Our project achieves this through close collaboration, in particular, with Care‐leavers, families, and carers to ensure that the ‘personal’ is included in the record.…”

Section: The Rights In Records Design Approachmentioning

confidence: 99%

Weapons of affect: The imperative for transdisciplinary information systems design

Rolan

Evans

Bone

et al. 2018

Proc. Assoc. Info. Sci. Tech.

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Much has been written about ethical and human‐centred Information Systems (IS) design, most recently regarding the deleterious outcomes and negative affect of some machine learning applications that embed and perpetuate unethical or even inhumane automation. Terms such as ‘harm’, ‘damage’, and surprisingly, ‘weapon’ have entered the language of this discourse. However, these characteristics are not unique to applications of data science but have long manifested in IS that can also can exhibit opacity and establish tight vicious cycles. These, when coupled with a lack of governance feedback, can perpetuate injustice that has community or sector‐wide reach. In this paper, we explore how IS design that sets out with the best of intentions or at least, conceived as a ‘neutral’ system for managing transactional information, can emerge as ‘tools that punish’. We argue that there are crucial principles to be taken from Recordkeeping Informatics, concerned as it is with the entanglement of information and people across space and through time on multi‐generational timescales. In particular we discuss how transdisciplinary and critical approaches are necessary to cover more of the design space and surface issues, rights, stakeholders, and, most importantly, values that may be otherwise hidden from a here‐and‐now, transactional viewpoint.

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Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history

Cited by 11 publications

References 20 publications

A participatory approach to the evaluation of participatory museum research projects

A participatory approach to the evaluation of participatory museum research projects

Enabling People with Profound and Multiple Learning Disabilities to Belong in Public and Community Archive Collections

Weapons of affect: The imperative for transdisciplinary information systems design

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