Beyond family satisfaction: Family‐perceived involvement in residential care

Irving, Justine

doi:10.1111/ajag.12163

Cited by 18 publications

(36 citation statements)

References 13 publications

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“…This is in line with previous research indicating that relatives are playing an important role as part of holistic and individualized care, in helping the residents achieve well being. [3][4][5][6] The last assumption, with the formal mandate to care, upholds the "involvement discourse" with the rhetoric of a reasoning of formal and informal caregiving based on a traditional division of labor in nursing homes. This specific discourse conditions what caring activities relatives and nursing staff should engage in.…”

Section: Discussionmentioning

confidence: 96%

“…According to Swedish law, all health care should be provided with respect for and considering the dignity of the individual, and contribute to health and well-being among the care recipients. [1,2] Accordingly, the involvement of relatives in nursing homes is an important element in holistic and individualized care, [3,4] for the residents' psychosocial well-being [5,6] as well as for the development of high quality nursing home care. [7,8] In Sweden, approximately 90 000 persons over the age of 65 live in nursing homes.…”

Section: Jessica Holmgren Azita Emami Lars E Eriksson and Henrik Erikmentioning

confidence: 99%

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HOLMGREN¹,

EMAMI²,

ERIKSSON³

et al. 2014

aporia

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The aim of this study was to describe the biopolitics of involvement discourses articulated by nursing staff concerning relatives in nursing home institutions, using a Foucault-inspired discourse analytical approach. Previous research has described how relatives have not been involved in nursing homes on their own terms. This is partly due to a lack of communication and knowledge, but it is also a consequence of an unclear organizational structure. Results from a discourse analysis of six focus group interviews with nursing staff show that the "involvement discourse" in nursing homes can be described as a "new" vs "old" family rhetoric. This rhetoric can be said to uphold, legitimize and provide different subject positions for both nursing staff and relatives concerning the conditions for involvement in nursing homes. As part of a "project of possibility" in elderly care, it may be possible to adopt a critical pedagogical approach among nursing staff in order to educate, strengthen and support them in reflecting on their professional norming and how it conditions the involvement of relatives.

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Section: Discussionmentioning

confidence: 96%

Section: Jessica Holmgren Azita Emami Lars E Eriksson and Henrik Erikmentioning

confidence: 99%

Untitled

HOLMGREN¹,

EMAMI²,

ERIKSSON³

et al. 2014

aporia

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Section: Residential Aged Carementioning

confidence: 99%

“…The evidence suggests that families often try to protect residents’ personal agency and choice . In one study, family involvement in decision‐making and care, assessed with a postal questionnaire of 150 residents’ next of kin, was found to be significantly positively correlated with their satisfaction with the aged care facility . The study described how families appreciated being able to provide support such as advocacy, advice on resident preferences and care oversight, while trusting that day‐to‐day task management was undertaken by appropriately qualified care staff …”

Section: Residential Aged Carementioning

confidence: 99%

Delivering inclusive and quality services in community and residential aged care settings

Parkinson

Radford

2019

Australas J Ageing

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“…Resultatet visar att närstående till äldre personer som bodde hemma hade kontinuerliga behov som inte uppmärksammades och därför fallerade även stödet (Anker-Hansen, Skovdahl, McCormack & TØnnessen, 2018). Andra studier efterlyser forskning om hur närstående kan göras delaktiga och på så sätt känna att de har stöd (Boise & White, 2004;Irving, 2015;Wallerstedt et al, 2018;Ris, Schnepp & Imhof, 2019).…”

Section: Behov Av Stöd Och Anhörigkonsulentens Funktionunclassified

Existentiell ensamhet hos sköra äldre personer : ett närståendeperspektiv

Larsson¹

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The aim of this thesis was to explore existential loneliness from the perspective of significant others, to contrast their perceptions with frail older people's experiences and to describe significant others' and family care advisors' views on existential support. This thesis is part of a larger research project about existential loneliness among frail older people, the LONE study. The thesis embraces three qualitative and one quantitative study. A total of 29 significant others, 15 frail older people and 120 family care advisors participated in the studies. The significant others were husbands, wives, daughters, sons, other relatives and friends to frail older people. The concept 'frail older people' was defined as older persons (≥ 75 years old) dependent on long-term health-or social care. The qualitative studies were based on multistage focus-group interviews (study I) and individual interviews (studies II and III). The quantitative study (IV) had a cross-sectional design and was based on a questionnaire specifically developed for the current study. Different methods to analyse data were used; hermeneutics (study I), content analysis (study II), a case study with thematic analysis (study III) and descriptive statistics (study IV). Findings from the four studies show that existential loneliness emerges when: 1) Longing for, but also striving for, a deeper feeling of connectedness, 2) Being in, but also enduring, an unwanted separation, and 3) Not finding, but still trying to recreate meaning. This thesis also shows that existential loneliness is often experienced in so-called limit situations in life and arises in difficult choices related to close relationships, in connection with experiences of meaninglessness and in the absence of connection to something or someone. The results show that existential loneliness emerges in the process of balancing between what was and what is to come in the unknown future. Significant others navigate themselves, and sometimes together with the older person, through an unfamiliar existence that makes them feel ambivalent about the de-LATE IN LIFE-A HERMENEUTICAL APPROACH

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Beyond family satisfaction: Family‐perceived involvement in residential care

Cited by 18 publications

References 13 publications

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Delivering inclusive and quality services in community and residential aged care settings

Existentiell ensamhet hos sköra äldre personer : ett närståendeperspektiv

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