Beyond patient-centered care: person-centered care for Parkinson’s disease

Buetow, Stephen; Martinez‐Martín, Pablo; Hirsch, Mark A.; Okun, Michael S.

doi:10.1038/npjparkd.2016.19

Cited by 17 publications

(17 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Thus, involving both patients and spouses is an important feature of the intervention. According to Buetow et al (2016), the matter of involvement is closely linked to personcentred care, based on the professional and personal involvement of all parties in each specific case (Buetow et al, 2016). Their, as well as our findings in this study, reflect involvement at different levels, especially related to knowing the personal stories of those involved.…”

Section: Involvement Of the Individual And The Couple As A Key Featuresupporting

confidence: 68%

Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson’s disease

Haahr

Norlyk

Hall

et al. 2020

International Journal of Qualitative Studies on Health and Well

View full text Add to dashboard Cite

show abstract

Section: Involvement Of the Individual And The Couple As A Key Featuresupporting

confidence: 68%

Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson’s disease

Haahr

Norlyk

Hall

et al. 2020

International Journal of Qualitative Studies on Health and Well

View full text Add to dashboard Cite

show abstract

“…Considering that PD is fundamentally a disorder of frontal lobe function, 17 it may be that PwP are less aware than observers of their change in motor and no-motor function. While there may be concerns that OM in PD may impinge on person centred care, 18 this study suggests to the contrary, that OM provides both the PwP and the clinician with better information to inform decision making. In other diseases, it is well accepted that we should collect objective data around factors that can lead to better outcomes (such as targets for blood sugar) so as inform the individual patient about the benefits and consequences of the various options for treating their blood sugar.…”

Section: Discussioncontrasting

confidence: 56%

Objective measurement in routine care of people with Parkinson’s disease improves outcomes

Farzanehfar

Woodrow

Braybrook

et al. 2018

npj Parkinson's Disease

View full text Add to dashboard Cite

It is common in medicine to titrate therapy according to target ranges of objectively measured parameters. Objective measurement of motor function is available for Parkinson’s Disease (PD), making it possible to optimise therapy and clinical outcomes. In this study, an accelerometry based measurement and predefined target ranges were used to assess motor function in a Northern Tasmania PD cohort managed by a Movement Disorder clinic. Approximately 40% (n = 103) of the total PD population participated in this study and motor scores were within target in 22%. In the 78% above target, changes in oral therapy were recommended in 74%, Advanced Therapy in 12% and treatment was contraindicated in 9%. Following changes in oral therapy, there was a further objective measurement and clinical consultation to establish whether scores had reached target range: if so subjects left the study, otherwise further changes of therapy were recommended (unless contraindications were present). Seventy-seven cases completed the study, with 48% achieving target (including 22% at outset), Advanced Therapy recommended in 19% and contraindications preventing any change in therapy in 17%. In the 43% of cases in whom oral therapy was changed, total UPDRS improved significantly (effect size = 8) as did the PDQ39 in cases reaching target. NMS Quest and MOCA scores also improved significantly. This study shows that many people in a representative cohort of PD would benefit from objective assessment and treatment of their PD features against a target.

show abstract

“…This would result in holistic collaborative management of the patients moving towards ‘person-centred care’. 40 This may be an interesting aspect to explore in future research.…”

Section: Discussionmentioning

confidence: 99%

How do specialist trainee doctors acquire skills to practice patient-centred care? A qualitative exploration

Patel

Buchanan

Hui³

et al. 2018

BMJ Open

View full text Add to dashboard Cite

ObjectivesThe importance of patient-centred care (PCC) has been increasingly recognised. However, there is limited work exploring what doctors actually understand by PCC, and how they perceive they acquire PCC skills in the workplace. The objectives of our study were to explore (1) what UK doctors, in specialist training, perceive to be the essential components of PCC, (2) if/how they acquire these skills, (3) any facilitators/barriers for engaging in PCC and (4) views on their PCC training.DesignQualitative study using in-depth individual semi-structured interviews with UK specialist trainees. Interview transcripts were thematically analysed.Setting and participantsThirty-one specialist trainee doctors, with at least 4 years postgraduate experience, were interviewed. Participants worked in various medical specialities within the Medical Directorate of an acute hospital in the East Midlands of England.ResultsInterview data were transcribed verbatim and categorised into three main themes. The first theme was ‘Understanding PCC’ where the doctors gave varied perspectives on what they understood by PCC. Although many were able to highlight key components of PCC, there were also some accounts which demonstrated a lack of understanding. The second theme was ‘Learning PCC skills: A work in progress’. Learning to be patient-centred was perceived to be an ongoing process. Within this, trainee doctors reported ‘on-the-job’ learning as the main means of acquiring PCC skills, but they also saw a place for formal training (eg, educational sessions focussing on PCC, role play). ‘Delivering PCC: Beyond the physician’ referred to the many influences the doctors reported in learning and delivering PCC including patients, the organisation and colleagues. Observing consultants taking a patient-centred approach was cited as an important learning tool.ConclusionsOur findings may assist clinical educators in understanding how trainee doctors perceive PCC, and the factors that influence their learning, thereby helping them shape PCC skills training.

show abstract

Beyond patient-centered care: person-centered care for Parkinson’s disease

Cited by 17 publications

References 23 publications

Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson’s disease

Sharing our story individualized and triadic nurse meetings support couples adjustment to living with deep brain stimulation for Parkinson’s disease

Objective measurement in routine care of people with Parkinson’s disease improves outcomes

How do specialist trainee doctors acquire skills to practice patient-centred care? A qualitative exploration

Contact Info

Product

Resources

About