Beyond the Medical Model: Interdisciplinary Programs of Community-Engaged Health Research

Sadler, Lois S.; Newlin, Kelley; Johnson-Spruill, Ida; Jenkins, Carolyn

doi:10.1111/j.1752-8062.2011.00316.x

Cited by 10 publications

(11 citation statements)

References 39 publications

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“…Investigators need to understand the characteristics [ 46 , 47 ], demographics [ 33 , 38 ], preferences [ 48 , 49 ], goals [ 50 , 51 ], expectations [ 52 , 53 ] and needs [ 35 , 43 ] of those with whom they are engaging. Skills [ 54 , 55 ] and knowledge [ 56 , 57 ] of participants also influence how older adults engage in healthcare research and planning.…”

Section: Reviewmentioning

confidence: 99%

Engaging older adults in healthcare research and planning: a realist synthesis

et al. 2016

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Plain English summaryThe importance of citizen involvement in healthcare research and planning has been widely recognized. There is however, a lack of understanding of how best to engage older adults, Canada's fastest growing segment of the population and biggest users of the healthcare system. We aimed to address this gap by developing an understanding of the engagement of older adults and their caregivers in healthcare research and planning. We conducted a review of available knowledge on engagement in healthcare research and planning with a focus on older adults and their caregivers. A five stage engagement framework emerged from this study that can be used to guide engagement efforts. We are continuing to collaborate with older adults and decision makers to develop and test strategies based on the presented framework.Abstract Background The importance of engaging the community in healthcare research and planning has been widely recognized. Currently however, there is a limited focus on older adults, Canada’s fastest growing segment of the population and biggest users of the healthcare system. Objective This project aimed to develop an understanding of engagement of older adults and their caregivers in healthcare research and planning. Method A realist synthesis was conducted of the available knowledge on engagement in healthcare research and planning. The search methodology was informed by a framework for realist syntheses following five phases, including consultations with older adults. The synthesis included theoretical frameworks, and both peer-reviewed and grey literature. Results The search generated 15,683 articles, with 562 focusing on healthcare research and planning. The review lead to the development of a framework to engage older adults and their caregivers in healthcare research and planning. The 5 stages environment, plan, establish, build, and transition are accompanied with example context, mechanism, and outcomes to guide the use of this framework. Conclusion We have identified a framework that promotes meaningful engagement of older adults and their caregivers. We are continuing to collaborate with our community partners to further develop and evaluate engagement strategies that align with the presented framework.

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Section: Reviewmentioning

confidence: 99%

Engaging older adults in healthcare research and planning: a realist synthesis

et al. 2016

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“…CEnR is an umbrella term used to describe various types of community-academic collaborations that necessitate varying levels of colearning, power sharing, and a commitment to translating research findings into action for improved outcomes. [1][2][3][4] CEnR challenges the dominant paradigm of traditional research, where communities have historically been excluded from participation and involvement, and puts researchers and communities on a path toward equitable partnership characterized by shared responsibility and decision making. 5 From 2006 to 2012, the CTSA funding mechanism required CE as a core function to foster collaborative partnerships and enhance public trust in research (NIH RFA-RM-10-020).…”

Section: Community Involvement In Community-engaged Research Grant Rementioning

confidence: 99%

“…The emergence of Community‐Engaged Research (CEnR) in CTSAs represents new opportunities to create transformative change in both academic institutions and communities seeking to improve health outcomes. CEnR is an umbrella term used to describe various types of community–academic collaborations that necessitate varying levels of colearning, power sharing, and a commitment to translating research findings into action for improved outcomes . CEnR challenges the dominant paradigm of traditional research, where communities have historically been excluded from participation and involvement, and puts researchers and communities on a path toward equitable partnership characterized by shared responsibility and decision making .…”

Section: Introductionmentioning

confidence: 99%

Strengthening Community Involvement in Grant Review: Insights from the Community–University Research Partnership (CURES) Pilot Review Process

Paberzs

Piechowski

Debra

et al. 2014

Clinical Translational Sci

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In 2007, the Michigan Institute for Clinical and Health Research (MICHR) at the University of Michigan received a Clinical and Translational Science Award (CTSA). Within MICHR, the Community Engagement (CE) program supports partnership efforts between researchers, practitioners, and community-based organizations in specific focal communities throughout Michigan. A key component of the CE program is the Community Engagement Coordinating Council, a group that provides input and guidance on program priorities, strategic planning, and reviews pilot funding proposals for community-academic partnerships. This paper will describe a unique MICHR pilot funding mechanism for Community-University Research Partnerships (CURES) with an emphasis on the ways that community partners are involved in the review process, as well as the benefits, challenges, and insights gained over 5 years of pilot review. There is a growing need for community involvement and expertise in review of funding proposals for community-engaged research at both institutional and federal levels. The CURES pilot review process is one example of an institutional effort to engage community partners in university funding decisions and has demonstrated clear benefit toward accomplishing the aims of the CTSA. Clin Trans Sci 2014; Volume 7: 156-163

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“…These are: relationship, reputation, requirements, rewards, reciprocity, resolution and respect. Sadler et al 29 similarly notes the importance of respect, trust, reciprocity and a long-term commitment to the success of community engagement and, by extension, minority recruitment. Cargo and Mercer 30 also cite the importance of respect, trust, capacity building, and empowerment in relationship building.…”

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confidence: 99%

Building a “Deep Fund of Good Will”: Reframing Research Engagement

Passmore¹,

Fryer²,

Butler³

et al. 2016

Journal of Health Care for the Poor and Underserved

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Background The engagement of underrepresented populations in health research has been an ongoing challenge. Yet, the participation of these groups is recognized as key to health equity. Methods Semi-structured interviews with 31 experienced investigators successful in the recruitment of underrepresented minorities were analyzed with reference to the concept of social capital to determine: 1) if it is actually in use by successful researchers although, yet unidentified as such; and 2) if the rubric could shed light on new directions especially for those who find it difficult to systematically implement community-engaged recruitment methods. Results Findings indicate that some aspects of the concept of social capital are being used successfully, but that there are also substantial barriers to its full implementation. Conclusion A lack of enforceable trust and associated institutional support for researchers is a detriment to research engagement. Efforts to remedy this would benefit large research projects, including clinical trials.

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Beyond the Medical Model: Interdisciplinary Programs of Community-Engaged Health Research

Cited by 10 publications

References 39 publications

Engaging older adults in healthcare research and planning: a realist synthesis

Engaging older adults in healthcare research and planning: a realist synthesis

Strengthening Community Involvement in Grant Review: Insights from the Community–University Research Partnership (CURES) Pilot Review Process

Building a “Deep Fund of Good Will”: Reframing Research Engagement

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