Beyond the Organ Donor Card: The Effect of Knowledge, Attitudes, and Values on Willingness to Communicate About Organ Donation to Family Members

Morgan, Susan E.; Miller, Jenny K.

doi:10.1207/s15327027hc1401_6

Cited by 201 publications

(192 citation statements)

References 19 publications

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“…Although a spouse provides an available and easy collaborator for compliance with this request, no studies in the literature were found to have reported a significant relationship between marital status and willingness to donate marrow. Considerable research has indicated that the intention to donate solid organs and signing of organ donor cards is related to the willingness to talk to family members about organ donation, 20,21 but this research is largely based on the premise that talking to family members is particularly important for prospective solid organ donors because of the potential need for nextof-kin consent. Thus, although solid organ donation studies are not completely analogous, the mechanism that personal donor registration experiences can increase the intention to speak with family members about the process presents a potentially fruitful and inexpensive means for recruiting prospective donors into marrow donation registries that seem to have been largely ignored.…”

Section: Discussionmentioning

confidence: 99%

Decisions to register for the National Marrow Donor Program: rational vs emotional appeals

Studts

Ruberg

McGuffin

et al. 2009

Bone Marrow Transplant

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Little research has examined how the content of health communications regarding the need for BM and stem cell donation affects the intentions and attitudes of potential National Marrow Donor Program (NMDP) donors. This study used an experimental design to test the hypothesis that an emotional appeal (EA) to potential donors would lead to higher rates of NMDP registration than a rational appeal (RA). Participants were randomly assigned to receive either a RA or an EA and then asked if they would (1) register with the NMDP and (2) talk with family members about NMDP registration. A total of 85% of individuals receiving the EA agreed to register for the NMDP, whereas only 49% of the participants receiving the RA agreed to register. The EA (72%) and RA (54%) groups did not differ significantly in their reported willingness to talk with family members about NMDP registration. However, multivariate logistic regression analyses indicated that the EA group endorsed significantly greater willingness to engage in both outcomes. Results suggest that an EA was more effective in motivating participants, but other sociodemographic factors were also associated with decisions about NMDP registration. EA may provide a useful and cost-effective method for increasing NMDP registration. Bone Marrow Transplantation (2010) 45, 422-428; doi:10.1038/bmt.2009 Despite a substantial roster of volunteer donors, a significant portion of individuals seeking unrelated donors through the NMDP do not find a suitable match. Recent NMDP data indicate that 15% of all individuals seeking matches from unrelated donors were not able to find a match during a preliminary search process.3 In addition, the NMDP has reported that approximately 30% of registered donors who are identified as potential matches are not available for further evaluation at the time of the request. 4 A seemingly logical solution to these challenges would be to continue to expand membership in the NMPD so as to maximize the number of available HLA-typed donors.One of the major challenges of expanding NMDP registration involves communicating relevant information to the public. There remains relatively little awareness of the opportunity and the need to register, particularly among non-Caucasian populations. 5 In addition, there is much confusion about the process of registering for the NMDP and about what NMDP registrants may be asked to do if matched to a transplant recipient. Although greater public education about the NMDP would likely increase registry participation, little research has examined ways to communicate such information to optimize recruitment efforts.A review of the literature examining the factors associated with participation in marrow and stem cell registries revealed a small set of studies. Research on donor recruitment in the early days of the NMDP focused largely on demographic variables and apheresis as predictors of becoming a marrow donor. Such studies found mixed results regarding the relationship between previous apheresis and willingness to donate BM,...

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Section: Discussionmentioning

confidence: 99%

Decisions to register for the National Marrow Donor Program: rational vs emotional appeals

Studts

Ruberg

McGuffin

et al. 2009

Bone Marrow Transplant

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“…Among African Americans in particular, studies using a composite measure of knowledge demonstrate that overall knowledge about organ donation is an important predictor of willingness to donate [6,26,[38][39][40][41]. However, less research has explored how different types of knowledge relate to donation intentions among African Americans.…”

Section: Lack Of Knowledge As a Barrier To Donation Among African Amementioning

confidence: 99%

Understanding the relationship between knowledge and African Americans’ donation decision-making

Arriola

Robinson

Perryman

et al. 2008

Patient Education and Counseling

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Objectives-To explore the association between different types of knowledge related to donation and transplantation and the expression of donation intentions via one's driver's license, a donor card, or sharing one's wishes with family.Methods-Cross-sectional data were gathered via self-administered questionnaire from 425 Black adults, age 18 years and older who were recruited from nine churches in a large metropolitan area in the southeast United States.Results-Results indicate that knowledge of the allocation system and experiential knowledge of a transplant recipient are associated with donation intentions after controlling for age, gender, and highest level of education. However, the following types of knowledge were unrelated to donation intentions: donation-related statistics (including an understanding of African Americans' overrepresentation among those in need), the donation process, the process for determining medical suitability, and religious institutions' support for donation.Conclusions-Findings suggest that the relationship between donation-related knowledge and donation intentions is complex and may depend on the specific type of knowledge being measured.Practice Implications-Knowledge of the allocation system and experiential knowledge of a recipient may be critical aspects of the donation decision-making process. Research findings suggest the need for an educational approach that seeks to improve the specific types of knowledge that are most strongly associated with donation intentions.

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“…This is in keeping with the findings of Morgan and Miller for adults; of those who had signed their donor card, most had discussed their wishes with family members. 14 In our present study, parents also gave different reasons for not starting a discussion on this topic. One reason given was that they had never thought about the possibility of donation by their child.…”

Section: Discussionmentioning

confidence: 71%

An online explorative study towards parents’ opinions about organ donation: from individual decisions to family discussions

Siebelink¹,

Albers

Roodbol³

et al. 2014

Arch Argent Pediat

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Background: Parental decisions about organ donation by their child are influenced by many factors. One of these factors may be a previous discussion under non-crisis circumstances. The question then arises whether parents have thought about this topic for themselves and discussed it with each other or with their child. Methods: An initial exploratory Internet survey to explore these discussions, parental opinions about school lessons on donation, the age threshold for a child to decide about donation, and determinants that influence these aspects. Questionnaire was sent to 14,000 panel members. We selected respondents with children younger than 16 years old. Results: Questionnaire response rate was 35%. Of all 1146 respondents with children, 84% had discussed the topic with their partner and, on average, 46.5% had discussed this with their child aged 10-16 years old. Religion and educational level of the parents were not related. Sixty-nine percent of parents were positive towards school lessons. Most of the children were allowed to decide for themselves at the age of 15/16 years old. Conclusion: Family discussions between spouses about donation do occur frequently; however, discussion with children can be improved. If desired, triggers for beginning these conversations could be provided through public information and school education, which would also contribute to health literacy on this subject.

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Beyond the Organ Donor Card: The Effect of Knowledge, Attitudes, and Values on Willingness to Communicate About Organ Donation to Family Members

Cited by 201 publications

References 19 publications

Decisions to register for the National Marrow Donor Program: rational vs emotional appeals

Decisions to register for the National Marrow Donor Program: rational vs emotional appeals

Understanding the relationship between knowledge and African Americans’ donation decision-making

An online explorative study towards parents’ opinions about organ donation: from individual decisions to family discussions

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