Black, Asian and Minority Ethnic Communities and Dementia – Where Are We Now?

Truswell, David

doi:10.4172/2161-0460.1000152

Cited by 12 publications

(12 citation statements)

References 14 publications

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“…Future research could explore the experiences of people with dementia in African Caribbean communities. This would also be in line with previous research which reported a lack of awareness of dementia in Black, Asian and minority ethnic communities in the UK and globally (Berwald, Roche, Adelman, Mukadam & Livingston, ; Truswell, ). Studies could also look at group‐based psychotherapy for people with dementia, building on the work of Cheston, Jones and Gilliard ().…”

Section: Discussionsupporting

confidence: 91%

Psychological support for people with dementia: A preliminary study

Birtwell

Dubrow‐Marshall

2017

Couns and Psychother Res

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Aim/Purpose: Evidence suggests nonpharmacological therapies could improve quality of life in people with Alzheimer's disease (Olazaran et al., 2010). This study aimed to explore attitudes to, and acceptability of, psychological support for people with mild dementia, from their perspective. Design/Methodology: Semi-structured interviews were conducted with five people identified from secondary care services. Questions concerned the experience of being diagnosed, experience of support services and their opinion of alternative support options. Interviews were audio-recorded, transcribed and analysed using thematic analysis. Results/ Findings: Three main themes were identified: loss, coping mechanisms and support. Loss of physical abilities was associated with loss of identity and place in the community. Coping mechanisms included asserting control, and growth and development, including engaging in new activities or using humour. Individual needs and preferences were key to effective support. Social aspects of support and opportunities to talk about their feelings were valued by participants. Counselling, mindfulness and group-based activities, including walking and gardening, were viewed positively. Support from admiral nurses or specialist nurses tended to be viewed in terms of physical health needs, and most needed in later stages of dementia. Research Limitations: Limitations include the small sample size, potential inaccuracies acknowledged by participants regarding recollections of events and researcher bias in hoping that psychological support would be well received. Conclusions/Implications: Talking therapies and psychosocial interventions are acceptable sources of support. Person-centred support which considers personal preferences and abilities can support people to live well with dementia.

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Section: Discussionsupporting

confidence: 91%

Psychological support for people with dementia: A preliminary study

Birtwell

Dubrow‐Marshall

2017

Couns and Psychother Res

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“…The estimates range from under 20,000 in 2011 to 25,000 in 2013 (All Party Parliamentary Group on Dementia (APPG), 2013) of people from BAME groups with dementia. However, this figure is predicted to grow to 160,000 by 2051 (Khan, 2015; Truswell, 2014). It is also acknowledged that any figure is likely to be a considerable under-representation as dementia has been characterised as a ‘hidden problem’ for South Asian people (Brownlie, 1991; Wilkinson, 2002).…”

Section: Dementia In South Asiansmentioning

confidence: 99%

Awareness and understanding of dementia in South Asians: A synthesis of qualitative evidence

Hossain

Crossland²,

Stores³

et al. 2018

Dementia

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Background Despite a growing elderly South Asian population, little is known about the experience of diagnosis and care for those living with dementia. There have been a number of individual qualitative studies exploring the experiences of South Asian people living with dementia and their carers across different contexts. There has also been a growing interest in synthesizing qualitative research to systematically integrate qualitative evidence from multiple studies to tell us more about a topic at a more abstract level than single studies alone. The aim of this qualitative synthesis was to clearly identify the gaps in the literature and produce new insights regarding the knowledge and understanding of the attitudes, perceptions, and beliefs of the South Asian community about dementia. Methods Following a systematic search of the literature, included qualitative studies were assessed by two independent reviewers for methodological quality. Data were extracted and pooled using the Joanna Briggs Institute Qualitative Assessment and Review Instrument (QARI). Findings were synthesized using the Joanna Briggs Institute approach to qualitative synthesis by meta-aggregation. Results Seventeen papers were critically appraised, with 13 meeting the inclusion criteria. Participants were mostly of South Asians of Indian background; followed by Pakistani with a few Sri Lankans. Missing South Asian countries from the current evidence base included those from Bangladesh, Bhutan, Maldives, and Nepal. Three meta-synthesis themes emerged from the analysis: (1) a poor awareness and understanding of dementia, (2) the experience of caregiving, and (3) the attitudes toward dementia care provision. Conclusions A consistent message from this qualitative synthesis was the limited knowledge and understanding of dementia amongst the South Asians. Whilst symptoms of dementia such as ‘memory loss’ were believed to be a part of a normal ageing process, some South Asian carers viewed dementia as demons or God’s punishments. Most studies reported that many South Asians were explicit in associating stigmas with dementia.

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“…As ethnic minority groups in high‐income settings age, the prevalence of dementia in ethnic minority populations is projected to rise . There are concerns that ethnic minority elders may be underrepresented in dementia services, mental health services, and in research . Minority ethnic groups may also access dementia services later in their illness .…”

Section: Introductionmentioning

confidence: 99%

Depression in carers of people with dementia from a minority ethnic background: Systematic review and meta‐analysis of randomised controlled trials of psychosocial interventions

Akarsu

Prince

Lawrence

et al. 2019

Int J Geriat Psychiatry

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Objectives: Systematic review and meta-analysis to determine the effectiveness of interventions in reducing depressive symptoms in ethnic minority carers of people with dementia. Methods: We systematically searched EMBASE, CINAHL, MEDLINE, PsycINFO, PsycARTICLES, Applied Social Sciences Index and Abstracts (ASSIA), The Cochrane Central Register of Controlled Trials (CENTRAL), and Sociological Abstracts and Social Policy and Practices databases from 1990 to 2015, supplemented by a grey literature search, hand searches of bibliographies, and contacting authors. Study quality was assessed independently by two researchers using The Effective Public Health Practice Project Quality Assessment Tool, with an inter-rater reliability of Cohen's kappa of 0.72 (95% CI, 0.42-1.01). Narrative synthesis and meta-analysis were used to assess intervention effectiveness. Meta-regression was used to assess whether factors such as intervention type, peer support, and ethnicity accounted for hetereogeneity. Results: Thirteen studies were eligible for inclusion, with 1076 participants in control groups and 980 participants in intervention groups; 12 studies provided estimates for meta-analysis. All studies were from the United States. Interventions were associated with an overall mean reduction in depression in caregivers (SMD −0.17 (95% CI, −0.29 to −0.05; P = 0.005). Meta-regression did not indicate any potential sources of heterogeneity, although narrative synthesis suggested that interventions developed with the target ethnic minority group's preferred mode of engagement in mind alongside cultural adaptations may have enhanced effectiveness. Conclusions: Psychosocial interventions for depression in ethnic minority carers of people with dementia are effective and could be enhanced through cultural adaptations. High-quality studies targeting minority ethnic groups outside of the United States are needed.

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Black, Asian and Minority Ethnic Communities and Dementia – Where Are We Now?

Cited by 12 publications

References 14 publications

Psychological support for people with dementia: A preliminary study

Psychological support for people with dementia: A preliminary study

Awareness and understanding of dementia in South Asians: A synthesis of qualitative evidence

Depression in carers of people with dementia from a minority ethnic background: Systematic review and meta‐analysis of randomised controlled trials of psychosocial interventions

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