Body Image and Psychosocial Adjustment in Adolescent Cancer Survivors

Pendley, Jennifer Shroff; Dahlquist, Lynnda M.; Dreyer, ZoAnn E.

doi:10.1093/jpepsy/22.1.29

Cited by 178 publications

(132 citation statements)

References 29 publications

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“…32 Men in particular, in this study, are well below the general population both in height and weight (Table 3). Pendley et al 33 found that young persons with longer post-cancer treatment times reported a more negative body image, and problems can arise long after treatment has ended. 32,34 Most adults in our study group, however, had a predominantly positive self-image.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life in adult survivors after paediatric allo-SCT

Löf

Winiarski

Giesecke

et al. 2008

Bone Marrow Transplant

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Fifty-three adults who had received SCT as children responded to questionnaires on health-related quality of life (HRQoL) (Swedish HRQoL survey (SWED-QUAL)), sense of coherence (SOC), anxiety and depression (HAD) and a health and symptom inventory. Late effects were classified following the Common Terminology Criteria for Adverse Events (CTCAE) v. 3.0. HRQoL was below norm in 9 of 13 SWED-QUAL domains. Poorest domains (Po0.001) were satisfaction with physical health, general health, partner relations and sexual function, whereas emotional wellbeing and satisfaction with family life were on par with the norm. Older age, time elapsed post-SCT and fewer self-reported symptoms correlated with better HRQoL. Unfavourable late effect scores had no or limited impact, whereas age at SCT or TBI did not adversely affect HRQoL. Most subjects were well subjectively and objectively, whereas 24% had more complicated late effects. The median Karnofsky score was 90, 13% of subjects having scores below 80. In total, 53% reported pain, whereas 42.5% had memory and concentration problems. Anxiety and/or depression, reported by 35%, were associated with lower HRQoL and SOC ratings. Overall, 55% reported infertility and expressed difficulty with this. To conclude, childhood SCT did not negatively affect overall health for most of these adult long-term survivors, although poorer HRQoL with psychological and cognitive problems are common.

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Section: Discussionmentioning

confidence: 99%

Health-related quality of life in adult survivors after paediatric allo-SCT

Löf

Winiarski

Giesecke

et al. 2008

Bone Marrow Transplant

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“…Many young adult survivors of cancer have reported disruption to their extracurricular activities at school, 20 and this interruption may have put their social development at risk. 17 Survivors have been found to be more socially isolated, 21 and they do not participate in as many peer activities, such as going out with friends, as those who were never-ill. 22 It has been suggested that friendships during childhood and adolescence are important for later sexual relationships. 23 Mental retardation was strongly related to likelihood and rate of marriage, in that those affected had a rate of marriage nine times less than that seen among survivors not affected by this condition.…”

Section: Synthesis Of Internal Comparisonsmentioning

confidence: 99%

Long‐term population‐based marriage rates among adult survivors of childhood cancer in Britain

Frobisher

Lancashire

Winter

et al. 2007

Intl Journal of Cancer

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The objectives of this study were to assess the number of adult survivors of childhood cancer who ever married and the factors influencing marriage, compare observed marriages to those expected from the general population, and assess age at marriage and influencing factors. The data is based on the British Childhood Cancer Survivor Study (BCCSS), which is a populationbased cohort of 18,119 individuals who were diagnosed with childhood cancer between 1940 and 91 and survived at least 5 years. Fourteen thousand five hundred thirty-nine were alive, aged at least 16 years and eligible to receive a postal questionnaire, which ascertained marriage status. Thirty-four percent of 9,954 survivors had married. Survivors with the following characteristics: males, CNS neoplasm, received radiotherapy, diagnosed with mental retardation, registered blind, low social functioning score (calculated from SF-36 health status measure), and achieved the highest level of educational attainment, were less likely to have married than the complementary survivor groups. The deficits in the proportion ever married compared to the general population were mostly between 9 and 18% among males and 7-10% among females. The largest ever married deficits were among male CNS neoplasm survivors aged 30 years or over (29-38%). Age at first marriage among survivors was related to: sex, childhood cancer type, age at diagnosis, chemotherapy, radiotherapy, mental retardation, and level of educational attainment. Regular follow-up for these survivors should address not just physical late-effects of the childhood cancer and treatment, but also psychosocial needs throughout the lifespan of the survivors to help them achieve life events as they occur in the general population. ' 2007 Wiley-Liss, Inc.Key words: childhood cancer; marriage; late effects; survivorship The survival rates for childhood cancer have increased considerably over the last 40 years. 1 The long term physical, psychological and social consequences of childhood cancer and its treatment have been increasingly investigated in survivors. 2,3 One important outcome is the likelihood that survivors form relationships, and in particular live with a partner or marry.Marriage rates have been found to be lower in adult survivors of childhood cancer than those in control subjects. 4-7 Male survivors appear less likely to marry than female survivors. 4,6,8,9 Also survivors of a central nervous system (CNS) neoplasm have been found to marry less frequently than those of other cancer types, 6 especially in males. 4,10,11 Other factors related to the likelihood of marriage among childhood cancer survivors have been suggested, including age at diagnosis, 4,6,9 exposure to radiotherapy, 4 income 4 and educational attainment. 4,8 Adult survivors of childhood cancer have been found to delay marriage 5,12 ; and to be living more often with their parents. 6 In particular, those who had a CNS neoplasm during childhood were found to be older at first marriage than sibling controls. 4 Unfortunately, all previous...

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“…age and diagnosis). 22 Pendley et al 26 found that the longer the adolescents were off treatment, the more they perceived problems related to self-worth, social anxiety, and greater negative perceptions of body image (although observers did not rate them as less attractive). Reasons for this change in self-perception over time by such survivors have been debated: Is it that the patient's problems are truly becoming worse over time, or was the patient in an 'adaptive-denial' mode of coping with his/her problems during treatment?…”

Section: Psychological/emotional Factorsmentioning

confidence: 99%