#Boycottautismspeaks: communicating a counternarrative through cyberactivism and connective action

Parsloe, Sarah M.; Holton, Avery E.

doi:10.1080/1369118x.2017.1301514

Cited by 37 publications

(16 citation statements)

References 32 publications

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“…Although over a third of participants were Twitter users, they also rated it poorly as a platform for people with disabilities to follow the election. This is counter-intuitive as other research highlighted efforts Twitter made recently to become more accessible, which have enabled it to support participatory disability advocacy campaigns (Parsloe & Holton, 2018) and “give voice” to specific sections of the disability community (Brunner et al, 2018).…”

Section: Social Media Experiencesmentioning

confidence: 92%

“Do You Want to Be a Well-Informed Citizen, or Do You Want to Be Sane?” Social Media, Disability, Mental Health, and Political Marginality

Trevisan

2020

Social Media + Society

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This article examines the experiences of people with disabilities, a traditionally marginalized group in US politics, with social media platforms during the 2016 presidential election. Using focus groups with participants with a wide range of disabilities, the significance of YouTube, Twitter, and Facebook is discussed. Results highlight ambivalent experiences with these platforms, which support some elements of political inclusion (more accessible and more relevant election information) but at the same time also exacerbate aspects of marginality (stress, anxiety, isolation). Four coping strategies devised by participants to address digital stress (self-censorship, unfollowing/unfriending social media contacts, signing off, and taking medication) are illustrated. The relationship between these contrasting findings, social media design and affordances, as well as potential strategies to eliminate an emerging trade-off between discussing politics online and preserving mental health and social connectedness for people with disabilities are discussed.

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Section: Social Media Experiencesmentioning

confidence: 92%

“Do You Want to Be a Well-Informed Citizen, or Do You Want to Be Sane?” Social Media, Disability, Mental Health, and Political Marginality

Trevisan

2020

Social Media + Society

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“…Meanwhile, in the #boycottautismspeak case, Parsloe and Holton proposed the concept of cyberactivism (Parsloe and Holton 2017). This concept is part of connective action, emphasizing the importance of the peer production process in a self-motivated sharing culture that makes individuals or participants distribute various forms of digital artifacts to address specific issues.…”

Section: Connective Actionmentioning

confidence: 99%

Online Donation for Covid-19 as Connective Action in Indonesia and Vietnam

Effendi¹,

Xuan²

2021

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This study discusses how the internet facilitated the online donation movement to help deal with the Covid-19 in Indonesia and Vietnam. The internet has critical roles in online donations by spreading information, connecting individuals, and making an online donation movement. We use the connective action concept to explain how the social movement is developed by connecting people through the loose organizational or no-organizational platform. We find that the internet and social media have an essential role in informing, connecting, and simultaneously being a means of online donation activities of individuals from various backgrounds. In this action, individuals are connected emotionally and encourage their empathy and solidarity across identities. In other words, the online connection encourages people to gather and donate as social action. However, in contrast to the connective action concept based on real (offline) action, the online donation for Covid-19 shows that individuals are connected and act online. Therefore, conceptually, the online donation case could enrich the connective action concept in the context of online connection and online action.

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“…SUEs' platforms are dependent on people engaging with the content produced. Such loosely structured communication networks replace the function of an organisation in connective action (Bennett and Segerberg 2013;Parsloe and Holton 2018). SUEs are often dependent on public sector actors contracting them to for instance give lectures but otherwise have fewer formal connections to the public sector, compared to MHSUOs.…”

Section: Organisations and Entrepreneursmentioning

confidence: 99%

Collective Deliberations and Hearts on Fire: Experiential Knowledge Among Entrepreneurs and Organisations in the Mental Health Service User Movement

Näslund

2020

Voluntas

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Previous research has shown that experiential knowledge plays an important role for service user movements and has also discussed ambiguities in the definition of this type of knowledge. This study contributes to clarifying how experiential knowledge is understood within the service user movement. Through semi-structured interviews, it explores how Swedish mental health service user organisations (MHSUOs) and service user entrepreneurs (SUEs) regard the role of experiential knowledge for their endeavours. The study shows that SUEs and MHSUOs view experiential knowledge as complementary to established medical and expert knowledge. Both groups further reflect on the functions of individual and collective dimensions of experiential knowledge. Emotions are important in conveying experiential knowledge, although emotional commitment can be short-lived. The study discusses challenges for SUEs and MHSUOs in developing strategies to manage risks tied to strategic essentialism, and also in maintaining a critical standpoint towards established service providers.

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#Boycottautismspeaks: communicating a counternarrative through cyberactivism and connective action

Cited by 37 publications

References 32 publications

“Do You Want to Be a Well-Informed Citizen, or Do You Want to Be Sane?” Social Media, Disability, Mental Health, and Political Marginality

“Do You Want to Be a Well-Informed Citizen, or Do You Want to Be Sane?” Social Media, Disability, Mental Health, and Political Marginality

Online Donation for Covid-19 as Connective Action in Indonesia and Vietnam

Collective Deliberations and Hearts on Fire: Experiential Knowledge Among Entrepreneurs and Organisations in the Mental Health Service User Movement

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