Breathing Easier? The Contradictory Experience of Leisure Among People Living with COPD

Genoe, M. Rebecca; Zimmer, Chantelle

doi:10.1080/01924788.2017.1306382

Cited by 10 publications

(10 citation statements)

References 39 publications

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“…There is overlap between the breathing space concept and that of the "shifting perspectives model of chronic illness" [140]. The opposite ends of the continuum of breathing space are illustrated in recent articles; however, each of these papers tend to focus only on one [56,60,106] or other [42,84] end of the continuum, rather than bringing them together as a more integrative concept.…”

Section: Discussionmentioning

confidence: 99%

Living with breathlessness: a systematic literature review and qualitative synthesis

et al. 2018

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What is the experience of people living with breathlessness due to medical conditions, those caring for them and those treating them, with regard to quality of life and the nature of clinical interactions?Electronic databases (Ovid MEDLINE, Embase, CINAHL Plus and PsycINFO) were searched (January 1987 to October 2017; English language), for qualitative studies exploring the experience of chronic breathlessness (patients, carers and clinicians). Two independent reviewers screened titles, abstracts and papers retrieved against inclusion criteria. Disagreements were resolved with a third reviewer. Primary qualitative data were extracted and synthesised using thematic synthesis.Inclusion and synthesis of 101 out of 2303 international papers produced four descriptive themes: 1) widespread effects of breathlessness; 2) coping; 3) help-seeking behaviour; and 4) clinicians' responsiveness to the symptom of breathlessness. The themes were combined to form the concept of "breathing space", to show how engaged coping and appropriate help-seeking (patient) and attention to symptom (clinician) helps maximise the patient's quality of living with breathlessness.Breathlessness has widespread impact on both patient and carer and affects breathing space. The degree of breathing space is influenced by interaction between the patient's coping style, their help-seeking behaviour and their clinician's responsiveness to breathlessness itself, in addition to managing the underlying disease.

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Section: Discussionmentioning

confidence: 99%

Living with breathlessness: a systematic literature review and qualitative synthesis

et al. 2018

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“…Relationships with others were vital to living well with COPD as family members and friends not only provided support by taking over tasks that were difficult but were often instrumental in supporting engagement in meaningful activities. Although relying on a loved one, particularly a spouse, to take over tasks was difficult for participants, it could have positive implications (Kanervisto, Kaistila, & Paavilainen, 2007), particularly as the risk of breathlessness was reduced, allowing more energy and time to engage in other meaningful pursuits (Genoe & Zimmer, 2017).…”

Section: Discussionmentioning

confidence: 99%

“…Accepting limitations meant having to replace former activities that were difficult to engage in due to symptoms, although participants believed they continued to maintain well-being (Stridsman et al, 2015). Leisure activities were used as a means of distraction on bad days in order to remain positive (see also Genoe & Zimmer, 2017), and participation in physical activity helped participants to maintain physical and mental well-being.…”

Section: Adapting To Life With Copdmentioning

confidence: 99%

“…In preparation for the second interview, participants were provided a digital camera to take photos of subjects, objects, or spaces they considered meaningful for their engagement in leisure activities. The second interview primarily focused on the photos participants had taken (see Genoe & Zimmer, 2017 for findings related to leisure engagement). The third interview then allowed us to go into more depth about their management of COPD.…”

Section: Data Collectionmentioning

confidence: 99%

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“At First I Couldn’t Catch My Breath”: Process and Strategies for Managing Chronic Obstructive Pulmonary Disease

Genoe

Zimmer

2017

Int J Aging Hum Dev

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In this article, we describe the process and strategies that study participants living with chronic obstructive pulmonary disease in central Canada utilized to manage and live well with their illness and its associated symptoms. Drawing on interpretive phenomenology, we interviewed eight participants three times, followed by a member checking focus group and individual interviews. We analyzed interview transcripts using detailed line by line analysis. Our findings suggest participants engaged in a challenging process of recognizing that changes had occurred and then coming to terms with these changes by acknowledging the severity of their condition and the resulting limitations. Then, participants drew upon several strategies to minimize feelings of breathlessness, including taking care of themselves, managing risk, and altering behavior. Participants acknowledged the challenges inherent to this process, yet described how they were able to live well with chronic obstructive pulmonary disease through their adaptations.

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“…(125,138,139) The concept of Breathing Space extends and adds to "total dyspnea", ( 126) by describing how the interaction between the patient's coping and help-seeking behaviour and clinicians' responsiveness to breathlessness determine the overall experience of both patients and carers living with breathlessness. There is overlap between the Breathing Space concept and that of the "Shifting perspectives model of chronic illness" (140).The opposite ends of the continuum of Breathing Space are illustrated in recent papers, however each of these papers tend to focus only on one (56,60,106) or other end (42,84) rather than bringing them together as a more integrative concept.…”

Section: Discussionmentioning

confidence: 99%

Living with breathlessness: a systematic literature review and thematic synthesis

Hutchinson¹,

Barclay-Klingle²,

Galvin³

et al. 2017

General Practice and Primary Care

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Question: What is the experience of people living with breathlessness due to medical conditions, those caring for and those treating them, with regard to quality of life and the nature of clinical interactions? Methods: Electronic databases (Ovid MEDLINE, Embase, CINAHL Plus, PsycINFO) were searched (1987 to October 2017; English language), for qualitative studies exploring the experience of chronic breathlessness (patients, carers, clinicians).Two independent reviewers screened titles, abstracts and papers retrieved against inclusion criteria. Disagreements were resolved with a third reviewer. Primary qualitative data were extracted and synthesised using thematic synthesis.Results: Inclusion and synthesis of 101/2,303 international papers produced four descriptive themes: 1) widespread effects of breathlessness, 2) coping, 3) helpseeking behaviour, and 4) clinicians' responsiveness to the symptom of breathlessness. The themes were combined to form the concept of "Breathing Space", to show how engaged coping and appropriate help-seeking (patient) and attention to symptom (clinician) helps maximise the patient's quality of living with breathlessness.Answers: Breathlessness has widespread impact on patient and carer and affects Breathing Space. The degree of Breathing Space is influenced by interaction between the patient's coping style, their help-seeking behaviour and their clinician's responsiveness to breathlessness itself in addition to managing the underlying disease. 10 family nurse units Narrative Analysis Pinnock (94) UK COPD Patients (14m, 7f) Carers (13 informal, professional) Unspecified Roberts 1993 (95) Canada Cancer patients (4m, 6f), Clinicians (12 -all nurses, gender unspecified) Cancers -Lung (4), Breast (2), Throat (1), Stomach (1), Prostate (1) Kidney (1) Unspecified Robinson 2005

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Breathing Easier? The Contradictory Experience of Leisure Among People Living with COPD

Cited by 10 publications

References 39 publications

Living with breathlessness: a systematic literature review and qualitative synthesis

Living with breathlessness: a systematic literature review and qualitative synthesis

“At First I Couldn’t Catch My Breath”: Process and Strategies for Managing Chronic Obstructive Pulmonary Disease

Living with breathlessness: a systematic literature review and thematic synthesis

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