Brilliant renal care: A really positive study of patient, carer, and staff experiences within an Australian health service

Kippist, Louise; Fulop, Liz; Smyth, Anne

doi:10.1017/jmo.2019.55

Cited by 5 publications

(5 citation statements)

References 24 publications

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“…For comparative value, this also required consideration of experiences that were less than brilliant-those that were mediocre, uninspiring, disappointing, and frustrating, among others. 43 Informed by this understanding of brilliant palliative care nursing, co-researchers and nurses participated in four reflexive sessions to analyse select exemplars of brilliant palliative care (see Figure 1). In preparation for these sessions, the researchers and co-researchers selected footage that epitomised brilliance.…”

Section: Discussionmentioning

confidence: 99%

“…They considered the dimensions that gave rise to and sustained brilliance—the dimensions that enabled individuals and collectives to have extraordinary experiences. For comparative value, this also required consideration of experiences that were less than brilliant—those that were mediocre, uninspiring, disappointing, and frustrating, among others 43 …”

Section: Methodsmentioning

confidence: 99%

“…For comparative value, this also required consideration of experiences that were less than brilliant—those that were mediocre, uninspiring, disappointing, and frustrating, among others. 43 …”

Section: Methodsmentioning

confidence: 99%

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‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Hodgins

Womsley

Collier

2023

Health Expectations

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Introduction To redress the scholarly preoccupation with gaps, issues, and problems in palliative care, this article extends previous findings on what constitutes brilliant palliative care to ask what brilliant nursing practices are supported and promoted. Methods This study involved the methodology of POSH‐VRE, which combines positive organisational scholarship in healthcare (POSH) with video‐reflexive ethnography (VRE). From August 2015 to May 2017, inclusive, nurses affiliated with a community health service who delivered palliative care, contributed to this study as co‐researchers (n = 4) or participants (n = 20). Patients who received palliative care (n = 30) and carers (n = 16) contributed as secondary participants, as they were part of observed instances of palliative care. With a particular focus on the practices and experiences that exceeded expectations and brought joy and delight, the study involved capturing video‐recordings of community‐based palliative care in situ; reflexively analysing the recordings with the nurses; as well as ethnography to witness, experience, and understand practices and experiences. Data were analysed, teleologically, to clarify what brilliant practices were supported and promoted. Results Brilliant community‐based palliative care nursing largely involved maintaining normality in patients’ and carers’ lives. The nurses demonstrated this by masking the clinical aspects of their role, normalising these aspects, and appreciating alternative ‘normals’. Conclusion Redressing the scholarly preoccupation with gaps, issues, and problems in palliative care, this article demonstrates how what is ordinary is extraordinary. Specifically, given the intrusiveness and abnormalising effects of technical clinical interventions, brilliant community‐based palliative care can be realised when nurses enact practices that serve to promote a patient or carer to normality. Patient or Public Contribution Patients and carers contributed to this study as participants, while nurses contributed to this study as co‐researchers in the conduct of the study, the analysis and interpretation of the data, and the preparation of the article.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Hodgins

Womsley

Collier

2023

Health Expectations

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“…Kippist [92] 2020 Findings from the first of a twopart study exploring user experiences of brilliant renal care within the Regional Dialysis Centre in Blacktown (RDC-B).…”

Section: Data Analysis Key Findings Relating To Relational Practicementioning

confidence: 99%

Relational practice in health, education, criminal justice, and social care: a scoping review

Lamph,

Nowland,

Boland

et al. 2023

Syst Rev

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Background Establishing and maintaining relationships and ways of connecting and being with others is an important component of health and wellbeing. Harnessing the relational within caring, supportive, educational, or carceral settings as a systems response has been referred to as relational practice. Practitioners, people with lived experience, academics and policy makers, do not yet share a well-defined common understanding of relational practice. Consequently, there is potential for interdisciplinary and interagency miscommunication, as well as the risk of policy and practice being increasingly disconnected. Comprehensive reviews are needed to support the development of a coherent shared understanding of relational practice. Method This study uses a scoping review design providing a scope and synthesis of extant literature relating to relational practice focussing on organisational and systemic practice. The review aimed to map how relational practice is used, defined and understood across health, criminal justice, education and social work, noting any impacts and benefits reported. Searches were conducted on 8 bibliographic databases on 27 October 2021. English language articles were included that involve/discuss practice and/or intervention/s that prioritise interpersonal relationships in service provision, in both external (organisational contexts) and internal (how this is received by workers and service users) aspects. Results A total of 8010 relevant articles were identified, of which 158 met the eligibility criteria and were included in the synthesis. Most were opinion-based or theoretical argument papers (n = 61, 38.60%), with 6 (3.80%) critical or narrative reviews. A further 27 (17.09%) were categorised as case studies, focussing on explaining relational practice being used in an organisation or a specific intervention and its components, rather than conducting an evaluation or examination of the effectiveness of the service, with only 11 including any empirical data. Of the included empirical studies, 45 were qualitative, 6 were quantitative, and 9 mixed methods studies. There were differences in the use of terminology and definitions of relational practice within and across sectors. Conclusion Although there may be implicit knowledge of what relational practice is the research field lacks coherent and comprehensive models. Despite definitional ambiguities, a number of benefits are attributed to relational practices. Systematic review registration PROSPERO CRD42021295958

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“…Inspired by Simpson and Farr-Wharton (2019), it would be helpful to know who should assume responsibility for ‘embedding compassion within… [an] organization’, why, how and the associated implications – be they intended or unintended? Although this special issue illuminates ‘relational-centred care’ (Kippist, Fulop, Dadich, & Smyth, 2019), there is now opportunity to examine its other manifestations, as well as the parameters that demarcate ‘high-quality connections and relational coordination’. This might involve the use of innovative methodologies – like POSH-VRE – given its demonstrated value when ‘navigat[ing] complex… organisations’ (Dadich, Collier, & Hodgins, 2019).…”

Section: Where To Next?mentioning

confidence: 99%

Positive organisational scholarship in healthcare

Farr‐Wharton¹

2020

Journal of Management & Organization

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Brilliant renal care: A really positive study of patient, carer, and staff experiences within an Australian health service

Cited by 5 publications

References 24 publications

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Relational practice in health, education, criminal justice, and social care: a scoping review

Positive organisational scholarship in healthcare

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