Bringing an Ethnographic Sensibility to Children’s Rehabilitation: Contributions and Potential

Pozniak, Kinga; King, Gillian

doi:10.1007/978-981-16-8317-6_8

Cited by 2 publications

(2 citation statements)

References 43 publications

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“…The qualitative findings provided rich information attesting to multifaceted benefits for youth, and the session-specific quantitative measures captured program opportunities and youth experiences in-the-moment. Furthermore, observations of opportunities in the program context, and examination of the after-hours social context, provided important perspectives on what is actually afforded to youth; these context-based aspects of the research reflect an ethnographic sensibility [ 55 ].…”

Section: Research Implicationsmentioning

confidence: 99%

The Transformative Nature of Residential Immersive Life Skills Programs: Integrating Findings from a Five-Year Prospective Study of Program Opportunities, Youth Experiences, and Outcomes

King

McPherson

Kingsnorth

et al. 2022

IJERPH

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Youth with disabilities often experience limited opportunities to acquire the life skills needed in adulthood. As a result, life skills programs are provided to support life skill development; however, little is known about the active ingredients of these programs, and the sustainability of their effects over time. Accordingly, the aim was to synthesize the findings of a five-year study examining the opportunities, experiences, and outcomes of residential immersive life skills (RILS) programs for youth with disabilities. A multi-method prospective study was conducted involving 38 youth ages 14 to 21 with disabilities (e.g., cerebral palsy, spina bifida) attending one of three RILS programs held over three summers. Program opportunities, youth experiences, and outcomes (self-determination, self-efficacy) were assessed pre- and post-program and 3 and 12 months post-program using standardized questionnaires. Pre-program, 3-month, and 12-month follow-up interviews were held with youth and parents. This research synthesis integrates the findings from nine published articles that used a variety of qualitative, quantitative, and mixed methods approaches. RILS programs provided rich opportunities for youth to experience meaningful social connections, psychological engagement, and choice and control, which were associated with changes over time in multiple domains related to personal growth and preparation for adulthood. Overall, the findings point to the transformative power of RILS programs to propel new life directions for some youth. By creating opportunities for meaningful, challenging, and supportive experiences fulfilling basic needs for relatedness, competency, and autonomy, RILS programs motivate youth to grow and change. More study is needed of program opportunities and capacity-enhancing experiences, as well as longitudinal studies of youth life outcomes. RILS programs have appreciable value in preparing youth for the transition to adult roles and responsibilities.

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Section: Research Implicationsmentioning

confidence: 99%

The Transformative Nature of Residential Immersive Life Skills Programs: Integrating Findings from a Five-Year Prospective Study of Program Opportunities, Youth Experiences, and Outcomes

King

McPherson

Kingsnorth

et al. 2022

IJERPH

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“…Thus, the impressions of team members (the authors of this paper), who had clinical and research roles, were key sources of data (31). The perspective taken was that of the "insider"-an "emic" perspective that reflects an ethnographic approach (35).…”

Section: Case Study Designmentioning

confidence: 99%

A case study of a strategic initiative in pediatric rehabilitation transition services: An insiders' perspective on team principles and practices

King

Bowman

Curran

et al. 2022

Front. Rehabilit. Sci.

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AimsThe aim was to describe an innovative initiative that took place in a pediatric rehabilitation hospital. The goal of this organization-wide strategic initiative, called the Transition Strategy, was to improve service delivery to children/youth with disabilities and their families at times of life transition. The research question was: What are the key elements that have contributed to the success of the Strategy, from the perspective of team members? The objectives were to describe: (a) the guiding principles underlying team functioning and team practices, (b) key enablers of positive team functioning, (c) the nature of effective team practices, and (d) lessons learned.MethodsA holistic descriptive case study was conducted, utilizing historical documents, tracked outcome data, and the experiences and insights of multidisciplinary team members (the authors). Reflecting an insiders' perspective, the impressions of team members were key sources of data. The perspectives of team members were used to generate key teamwork principles, enablers of team functioning, team practices, and key learnings.Findings and DiscussionTeam members identified four guiding humanistic principles (respect, support, partnership, and open communication). These principles underpinned three novel practices that contributed to team effectiveness in the eyes of team members: supportive relational practices, human-centered co-design, and solution-focused communication. Key enablers were the relational style of leadership, and a team climate of innovation, autonomy, and trust, supported by the organizational vision. This team climate fostered a sense of psychological safety, thereby encouraging both experimentation and learning from failure.ConclusionsThis article provides information for other healthcare organizations interested in understanding the Strategy's value and its implementation. It provides a practical example of how to adopt a humanistic approach to health care, leading to both innovative service development and thriving among team members.

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Bringing an Ethnographic Sensibility to Children’s Rehabilitation: Contributions and Potential

Cited by 2 publications

References 43 publications

The Transformative Nature of Residential Immersive Life Skills Programs: Integrating Findings from a Five-Year Prospective Study of Program Opportunities, Youth Experiences, and Outcomes

The Transformative Nature of Residential Immersive Life Skills Programs: Integrating Findings from a Five-Year Prospective Study of Program Opportunities, Youth Experiences, and Outcomes

A case study of a strategic initiative in pediatric rehabilitation transition services: An insiders' perspective on team principles and practices

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