British Thoracic Society Clinical Statement on pulmonary rehabilitation

Man, William; Chaplin, Emma; Daynes, Enya; Drummond, Alistair; Evans, Rachael A; Greening, Neil J; Nolan, Claire; Pavitt, Matthew J; Roberts, Nicola J; Vogiatzis, Ioannis; Singh, Sally J

doi:10.1136/thorax-2023-220439

Cited by 26 publications

(11 citation statements)

References 188 publications

(172 reference statements)

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“…Sowohl Patienten mit COPD als auch mit ILD oder anderen pneumologischen Erkrankungen profitieren von einer pneumologischen Rehabilitation z. B. in Form einer Verbesserung ihrer Gehstrecke [6]. Aktuell wird die prospektive, randomisierte ReLoAd-Studie bei Post-COVID-Patienten durchgeführt, die testet, ob eine pneumologische Rehabilitation der "Usual care"-Therapie in Bezug auf Lebensqualität überlegen ist [7].…”

Section: Youngdgpunclassified

Highlights vom DGP-Kongress 2024 aus Sicht der YoungDGP

Buschulte,

Büscher,

Franzen

et al. 2024

Pneumologie

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Section: Youngdgpunclassified

Highlights vom DGP-Kongress 2024 aus Sicht der YoungDGP

Buschulte,

Büscher,

Franzen

et al. 2024

Pneumologie

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“…62 There are obvious synergies between the established pulmonary rehabilitation model and the treatable traits approach, including multidimensional assessment and individualized management, and a multidisciplinary approach to care. In addition, pulmonary rehabilitation is recommended for patients with a variety of respiratory conditions including COPD, bronchiectasis and ILD, 61,63,64 which may provide opportunity to deliver a treatable traits approach to a wide range of patients.…”

Section: Treatable Traits In Pulmonary Rehabilitationmentioning

confidence: 99%

Treatable traits models of care

McDonald,

Holland

2023

Respirology

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Treatable traits is a personalized approach to the management of respiratory disease. The approach involves a multidimensional assessment to understand the traits present in individual patients. Traits are phenotypic and endotypic characteristics that can be identified, are clinically relevant and can be successfully treated by therapy to improve clinical outcomes. Identification of traits is followed by individualized and targeted treatment to those traits. First proposed for the management of asthma and chronic obstructive pulmonary disease (COPD) the approach is recommended in many other areas of respiratory and now immunology medicine. Models of care for treatable traits have been proposed in different diseases and health care setting. In asthma and COPD traits are identified in three domains including pulmonary, extrapulmonary and behavioural/lifestyle/risk‐factors. In bronchiectasis and interstitial lung disease, a fourth domain of aetiological traits has been proposed. As the core of treatable traits is personalized and individualized medicine; there are several key aspects to treatable traits models of care that should be considered in the delivery of care. These include person centredness, consideration of patients' values, needs and preferences, health literacy and engagement. We review the models of care that have been proposed and provide guidance on the engagement of patients in this approach to care.

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“…This is relevant as patient advocacy is an essential component of service development and little is known about the needs and preferences of people with ILD regarding remote PR models. Furthermore, national and international guidelines state that PR should be tailored to suit the needs of the service-user, 4 16 a point emphasised by people living with ILD, who expressed a desire for services designed specifically for their condition 17 including disease-specific education as well as psychological and palliative support. 18 19 …”

Section: Introductionmentioning

confidence: 99%

Remote pulmonary rehabilitation for interstitial lung disease: developing the model using experience-based codesign

Brighton,

Spain,

Gonzalez-Nieto

et al. 2024

BMJ Open Resp Res

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BackgroundRemote delivery may improve access to pulmonary rehabilitation (PR). Existing studies are largely limited to individuals with COPD, and the interventions have lacked codesign elements to reflect the needs and experiences of people with chronic respiratory disease, their carers/families and healthcare professionals. The aim of this study was, using experience-based codesign (EBCD), to collaborate with people with interstitial lung disease (ILD), their carers/families and healthcare professionals, to codesign a remote PR programme ready for testing in a future study.MethodsEBCD comprises interviews, stakeholder workshops and codesign meetings. One-to-one videorecorded interviews with purposively selected people with ILD with experience of PR, their carers/families and healthcare professionals, were edited into a 20 min film. The film was shown at three audiorecorded stakeholder feedback events to identify key themes and touchpoints, and short-list key programme components. The programme was finalised at two further codesign workshops.ResultsTen people with ILD, four carers/families and seven healthcare professionals were interviewed. Participants in the codesign workshops included service-user group: n=14 and healthcare professional group: n=11; joint event: n=21. Final refinements were made with small codesign teams, one comprising three people with ILD and one carer/family member, one with five healthcare professionals. The final codesigned model is a group based, supervised programme delivered by videoconference. Key elements of programme specific to ILD include recommendations to ensure participant safety in the context of desaturation risk, dedicated time for peer support and adaption of the education programme for ILD needs, including signposting to palliative care.ConclusionIn this EBCD project, a remote PR programme for people with ILD was codesigned by service-users, their carers/families and multidisciplinary healthcare professionals. Future research should explore the feasibility and acceptability of this intervention.

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British Thoracic Society Clinical Statement on pulmonary rehabilitation

Cited by 26 publications

References 188 publications

Highlights vom DGP-Kongress 2024 aus Sicht der YoungDGP

Highlights vom DGP-Kongress 2024 aus Sicht der YoungDGP

Treatable traits models of care

Remote pulmonary rehabilitation for interstitial lung disease: developing the model using experience-based codesign

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