“…One hundred sixteen findings were abstracted from the included studies and grouped into subthemes. The subthemes were classified into four major themes: inadequate knowledge (i.e., definition and disease course [8-11, 13, 15, 23, 29, 31], risk factors and prevention [9,11,13,20,21,26,27], diagnosis and treatment [11,16,17,26,27,29] [9,10,14,20,24,27], implications of diagnosis [17,19,22,25,27], medications [10,11,16,17,25]), and lack of information from health care providers [9,10,14,20,28,29]. Inadequate knowledge.…”