BSPAR Standards of Care for children and young people with juvenile idiopathic arthritis

Davies, Karen; Cleary, Gavin; Foster, HE; Hutchinson, E.; Baildam, Eileen

doi:10.1093/rheumatology/kep460

Cited by 121 publications

(82 citation statements)

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“…Clinical practice guidelines recommend multidisciplinary care for children/adolescents with JIA (12). There is emerging evidence that a multi-disciplinary team (MDT) approach to care may be effective in rheumatology settings (13).…”

Section: Introductionmentioning

confidence: 99%

The effectiveness of a multidisciplinary foot care program for children and adolescents with juvenile idiopathic arthritis: An exploratory trial

et al. 2013

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Objectives:To evaluate the effectiveness of multidisciplinary foot-care, and to evaluate the methodological considerations of a trial of multidisciplinary care in juvenile idiopathic arthritis. Design: Exploratory randomised controlled trial. Subjects/Patients: Children/adolescents with juvenile idiopathic arthritis and inflammatory joint disease affecting the foot/ankle. Methods: Standard medical care was compared with a 12 month program of multidisciplinary foot-care informed by musculoskeletal ultrasound. This program was centred on strict disease control through rigorous examination and interventions delivered by a team comprised of a paediatric rheumatologist, podiatrist, physiotherapist and musculoskeletal ultrasonographer. Patients were assessed on foot impairment and disability scores using the Juvenile Arthritis Foot Disability Index. Results: Forty-four participants, aged 3-17 years were randomly assigned to receive the experimental (n = 21) or usual care (n = 23) interventions. There was an overall improvement in levels of foot related impairments in both groups over 12 months. Between-group differences in change scores for the Juvenile Arthritis Foot Disability Index were not statistically significant at 6 or 12 month follow-ups. Conclusion: The integrated multidisciplinary foot care interventions described in this trial were safe, but did not improve foot impairment levels relative to usual care. This trial identified several methodological challenges including recruitment/retention, difficulties with outcome tools and potential confounders.

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Section: Introductionmentioning

confidence: 99%

The effectiveness of a multidisciplinary foot care program for children and adolescents with juvenile idiopathic arthritis: An exploratory trial

et al. 2013

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“…rheumatology to be made after 3e4 weeks of symptoms or signs. The British Society for Paediatric and Adolescent Rheumatology have written Standards of Care for JIA, which recommend review by the paediatric rheumatology team of all children and young people with suspected JIA within 10 weeks of onset of symptoms and 4 weeks of referral[39].…”

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confidence: 99%

The child with joint pain in primary care

Sen

Clarke

Ramanan

2014

Best Practice & Research Clinical Rheumatology

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“…Prior to development of the JIA quality measures in the United States, BSPAR generated 'standards of care' for JIA that were first published in 2009 [67]. These were complemented by a joint effort of BSPAR and the Arthritis and Musculoskeletal Alliance to create 44 standards of care for children and young people with JIA [68].…”

Section: Quality Measuresmentioning

confidence: 99%

Improving care delivery and outcomes in pediatric rheumatic diseases

Harris

Bingham²,

Morgan

2016

Current Opinion in Rheumatology

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Purpose of review-To highlight efforts in pediatric rheumatology related to optimizing the care provided to patients with pediatric rheumatic diseases and describe various approaches to improve health outcomes.Recent findings-Recent studies report low rates of remission, frequent occurrence of comorbidities, disease damage, and decreased health-related quality of life in pediatric rheumatic diseases. Pediatric Rheumatology Care and Outcomes Improvement Network is a quality improvement learning network that has demonstrated improvement in process of care measures through use of a centralized patient registry, and interventions including pre-visit planning, population management, shared decision making, and patient/parent engagement. A pediatric rheumatology patient-powered research network was established to enable patient and caregiver participation in setting research priorities and to facilitate data sharing to answer research questions. Quality measure development and benchmarking is proceeding in multiple pediatric rheumatic diseases.Summary-This review summarizes the current efforts to improve care delivery and outcomes in pediatric rheumatic diseases through a learning health system approach that harnesses knowledge from the clinical encounter to serve quality improvement, research and discovery. Incorporating standard approaches to medication treatment plans may reduce variation in care. Including the patient voice to design of research studies brings focus on more patient relevant outcomes. (See Video, Supplemental Digital Content 1).

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BSPAR Standards of Care for children and young people with juvenile idiopathic arthritis

Cited by 121 publications

References 0 publications

The effectiveness of a multidisciplinary foot care program for children and adolescents with juvenile idiopathic arthritis: An exploratory trial

The effectiveness of a multidisciplinary foot care program for children and adolescents with juvenile idiopathic arthritis: An exploratory trial

The child with joint pain in primary care

Improving care delivery and outcomes in pediatric rheumatic diseases

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