Building a Person-Centered Medical Home: Lessons from a Program for People with Developmental Disabilities

Weedon, Dean; Carbone, Paul S.; Bilder, Deborah A.; O'Brien, Stephanie; Dorius, Josette

doi:10.1353/hpu.2012.0175

Cited by 28 publications

(8 citation statements)

References 18 publications

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“…For those adults residing at home with their families, the recent Olmstead Decision related Department of Justice settlements with states and the Jimmo et al vs. Sebelius class action law suit 10 settlement will make it easier for many adults including those with intellectual and developmental disabilities affected by dementia to receive services in the community and to have Medicare pay for qualified home-based care. Also of import is the application of the medical-home and accountable care organization concepts under the Affordable Care Act which emphasize seamless chronic care management, including among families, providers, and disabilities system authorities (Weedon, Carbone, Bilder, O'Brien, & Dorius, 2012). Requirements for seamless care coordination and management among multiple providers will benefit families providing in-home care for adults with intellectual and developmental disabilities affected by dementia.…”

Section: Financialmentioning

confidence: 99%

Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia

Jokinen

Janicki

Keller

et al. 2013

Policy Practice Intel Disabi

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To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. These guidelines are drawn from the research literature as well as clinical experiences and demonstrated best practices. The guidelines delineate what actions should be undertaken and are presented in a manner that reflects the progressive nature of prevalent dementias. To enable the development of the most appropriate and useful services and care management for adults with intellectual disabilities affected by dementia, the NTG adopted the staging model generally accepted for practice among generic dementia services. The staging model follows the flow from a prediagnosis stage when early recognition of symptoms associated with cognitive decline are recognized through to early, mid, and late stages of dementia, and characterizes the expected changes in behavior and function. In keeping with the National Plan to Address Alzheimer's Disease recommendations for earlier and more widespread efforts to detect possible symptoms, the guidelines cite the application of the NTG-Early Detection Screen for Dementia as a first step in documenting early signs of cognitive and functional changes among people with intellectual disabilities. The guidelines also provide information on nonpharmacological options for providing community care for persons affected by dementia as well as commentary on abuse, financial, managing choice and liability, medication, and nutritional issues.

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Section: Financialmentioning

confidence: 99%

Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia

Jokinen

Janicki

Keller

et al. 2013

Policy Practice Intel Disabi

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“…120 Pilot projects to provide medical home services for children with ASD show promise in terms of reducing unmet medical needs, reducing health care utilization, and increasing family-centered care. 121,122 The cost of the EIBI (approximately $40,000 per year) and lack of insurance coverage for it makes access to behavioral therapy impossible for many families. Over the past 5 years there has been a significant increase in grassroots advocacy at the state level to pass legislation that mandates insurance coverage for EIBI and behavioral therapy for children with ASD.…”

Section: Anticipatory Guidance For Parents Of Children With Asdmentioning

confidence: 99%

Moving From Research to Practice in the Primary Care of Children With Autism Spectrum Disorders

Carbone

2013

Academic Pediatrics

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“…Medical homes emphasize chronic care management and encourage coordination of both health and social services in a shared decision-making model. The Healthy Outcomes Medical Excellence (HOME) project, operated by the University of Utah since 2000, was developed to provide medical and mental health care to children and adults with IDD and mental health challenges (Weedon, Carone, Bilder, O'Brien, & Dorius, 2012). HOME provides comprehensive care using a team that includes a family physician, a pediatrician, psychiatrists, advanced practice nurses, behaviorists, social workers, and care coordinators.…”

Section: Access To Health Carementioning

confidence: 99%

“…HOME provides comprehensive care using a team that includes a family physician, a pediatrician, psychiatrists, advanced practice nurses, behaviorists, social workers, and care coordinators. Since its inception, HOME has decreased hospital bed days and hospital readmissions, and has improved clinic outcomes such as vaccine uptake and diabetes management (Weedon et al, 2012). …”

Section: Access To Health Carementioning

confidence: 99%

The State of the Science of Health and Wellness for Adults With Intellectual and Developmental Disabilities

Anderson

Humphries²,

McDermott³

et al. 2013

Intellectual and Developmental Disabilities

169

106

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Historically, people with intellectual and developmental disabilities (IDD) have experienced health disparities related to several factors including: a lack of access to high quality medical care, inadequate preparation of health care providers to meet their needs, the social determinants of health (e.g., poverty, race and gender), and the failure to include people with IDD in public health efforts and other prevention activities. Over the past decade, a greater effort has been made to both identify and begin to address myriad health disparities experienced by people with IDD through a variety of activities including programs that address health lifestyles and greater attention to the training of health care providers. Gaps in the literature include the lack of intervention trials, replications of successful approaches, and data that allow for better comparisons between people with IDD and without IDD living in the same communities. Implications for future research needed to reduce health disparities for people with IDD include: better monitoring and treatment for chronic conditions common in the general population that are also experienced by people with IDD, an enhanced understanding of how to promote health among those in the IDD population who are aging, addressing the health needs of people with IDD who are not part of the disability service system, developing a better understanding of how to include people with IDD in health and wellness programs, and improving methods for addressing the healthcare needs of members of this group in an efficient and cost-effective manner, either through better access to general medical care or specialized programs.

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Building a Person-Centered Medical Home: Lessons from a Program for People with Developmental Disabilities

Cited by 28 publications

References 18 publications

Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia

Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia

Moving From Research to Practice in the Primary Care of Children With Autism Spectrum Disorders

The State of the Science of Health and Wellness for Adults With Intellectual and Developmental Disabilities

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