Building Community-Based Participatory Research Partnerships with a Somali Refugee Community

Johnson, Crista; Ali, Sagal A.; Shipp, Melvin D.

doi:10.1016/j.amepre.2009.09.036

Cited by 130 publications

(132 citation statements)

References 26 publications

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“…Using inductive coding with the participants, themes were then collapsed with axial coding (Creswell, 2007;Creswell & Plano Clark, 2007). Johnson et al (2009) used a conceptual theoretical framework as an interpretive tool throughout in a mixed methods study of Somali refugees with experiences of female genital cutting in an effort to understand their health-seeking behaviors. Although Johnson et al (2009) did not use ecological theories, their study design was mixed methods and grounded in critical theory with an emancipatory focus for its participants.…”

Section: Discussionmentioning

confidence: 99%

“…Johnson et al (2009) used a conceptual theoretical framework as an interpretive tool throughout in a mixed methods study of Somali refugees with experiences of female genital cutting in an effort to understand their health-seeking behaviors. Although Johnson et al (2009) did not use ecological theories, their study design was mixed methods and grounded in critical theory with an emancipatory focus for its participants. Building on Johnson et al's work andMerten's (2003, 2009) avocation for theory being conceived throughout the study, the following conceptual framework was created (Figure 2).…”

Section: Discussionmentioning

confidence: 99%

“…Although this is a beneficial condition for refugee families, availability does not always promote culturally responsive accessibility. Agencies assist in identifying primary care physicians, but providers function within their same framework, utilizing the service of an interpreter to convey a standard health message (Johnson, Ali, & Shipp, 2009;Kumar, 2013). This technical transference limits cultural responsiveness by diminishing it to a task orientation of "language translation only," ignoring cultural differences on perspectives for healthful living.…”

Section: Introductionmentioning

confidence: 99%

“…A medical model of tuberculosis uses the practice of surveillance, which seeks to establish methods for its eradication at the onset of immigration, but such interventions have found to have low impact (Kimbrough, Saliba, Dahab, Haskew, & Checchi, 2012;Lobou & Moser, 2004;Uppaluri et al, 2002). This diagnostic or medical model focuses on the presence of disease and creates mechanisms that serve to modulate and disquiet the refugee community, potentially invoking their own self-care for resolution (Foucault, 1995;Johnson et al, 2009;Kopecky, 2011;Kumar, 2013).…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Health Perceptions and Practices of Burmese Refugee Families: A Participatory Mixed Method Study

Kercood¹,

Morita‐Mullaney²

2015

Journal of Southeast Asian American Education and Advancement

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Healthcare providers in the United States often view the lifestyle choices made by refugees from Burma through the lenses of America's norms for healthy living. Although healthcare providers often recognize the role that language plays in the refugees' ability to communicate their healthcare needs, they often ignore the role of culture. This lack of understanding of cultural difference contributes to the marginalization of refugees in the healthcare system. Using a transformative mixed method methodology, this study employed the East Asian Acculturation Scale (EAAM) to identify participants' perceived level of acculturation within health care contexts. The researchers then engaged participants in a qualitative exploration of their lifestyle choices using a Photovoice protocol. These two methods, girded by critical and ecological theories, elucidate the participants' counter-stories that provide insight into how the refugees are negotiating culturally relevant lifestyle choices in their new American contexts.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Health Perceptions and Practices of Burmese Refugee Families: A Participatory Mixed Method Study

Kercood¹,

Morita‐Mullaney²

2015

Journal of Southeast Asian American Education and Advancement

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“…The study focused on looking at experiences of stakeholders at higher levels of authority within district level health systems, rather than those of community level stakeholders, which have been studied more extensively. [21,22] Thus, the aim of this article is to explore stakeholders’ experiences of the PAR approaches about strengthening local health systems capacity, such as management, which is essential for sustaining effective interventions to improve maternal and neonatal health outcomes.…”

Section: Introductionmentioning

confidence: 99%

Experiences of using a participatory action research approach to strengthen district local capacity in Eastern Uganda

Tetui

Coe

Hurtig

et al. 2017

Global Health Action

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Background: To achieve a sustained improvement in health outcomes, the way health interventions are designed and implemented is critical. A participatory action research approach is applauded for building local capacity such as health management. Thereby increasing the chances of sustaining health interventions. Objective: This study explored stakeholder experiences of using PAR to implement an intervention meant to strengthen the local district capacity. Methods: This was a qualitative study featuring 18 informant interviews and a focus group discussion. Respondents included politicians, administrators, health managers and external researchers in three rural districts of eastern Uganda where PAR was used. Qualitative content analysis was used to explore stakeholders’ experiences. Results: ‘Being awakened’ emerged as an overarching category capturing stakeholder experiences of using PAR. This was described in four interrelated and sequential categories, which included: stakeholder involvement, being invigorated, the risk of wide stakeholder engagement and balancing the risk of wide stakeholder engagement. In terms of involvement, the stakeholders felt engaged, a sense of ownership, felt valued and responsible during the implementation of the project. Being invigorated meant being awakened, inspired and supported. On the other hand, risks such as conflict, stress and uncertainty were reported, and finally these risks were balanced through tolerance, risk-awareness and collaboration. Conclusions: The PAR approach was desirable because it created opportunities for building local capacity and enhancing continuity of interventions. Stakeholders were awakened by the approach, as it made them more responsive to systems challenges and possible local solutions. Nonetheless, the use of PAR should be considered in full knowledge of the undesirable and complex experiences, such as uncertainty, conflict and stress. This will enable adequate preparation and management of stakeholder expectations to maximize the benefits of the approach.

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Supporting Southern-led Research: Implications for North—South Research Partnerships

Muldoon

Birungi

Berry

et al. 2012

Can J Public Health

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lobal health research typically takes place within the North-South divide, 1-3 where the Northern partner is highly trained in research methods and comes from a resource-rich environment, while the Southern partner has a paucity of these skills and resources. 4 As a result, Southern partners often have little input into the research process (e.g., research design, development of instruments, etc.) and remain dependent on Northern partners to conduct research. 4-10 Accordingly, many North-South partnerships are criticized for remaining semi-colonial in nature, as the control and benefits of research (e.g., publications, results, research skills, etc.) continue to accrue in the North. 6,7 Unfortunately, there are very few successful models of how to develop a mutually beneficial research relationship. One of the few comes from community-based participatory research (CBPR), which is designed to mitigate the challenges inherent in asymmetric research relationships. 11,12 Although beginning to gain traction, 13,14 CBPR projects remain uncommon in the context of global health. Another collaborative model that may have relevance to the North-South divide was the development of the Canadian First Nations Information Governance Committee and the principles of Ownership, Control, Access and Possession (OCAP). OCAP principles help Aboriginal people in Canada regain control over research to mitigate neo-colonial aspects of research. 15 Globally, Southern partners continue to 'host' research led by Northern researchers, while struggling to build the necessary capacity for Southern-led research. 16 The objective of this study was to document North-South research collaborations and provide insight into the ongoing benefits and challenges of engaging in the research process from the Southern perspective. These examples demonstrate that opportunities to build research capacity in the South are often present within global research partnerships, but not always optimized. METHODS The AIDS Support Organization (TASO) in Uganda was founded in 1987 and since that time has been involved in research with organ

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Building Community-Based Participatory Research Partnerships with a Somali Refugee Community

Cited by 130 publications

References 26 publications

Health Perceptions and Practices of Burmese Refugee Families: A Participatory Mixed Method Study

Health Perceptions and Practices of Burmese Refugee Families: A Participatory Mixed Method Study

Experiences of using a participatory action research approach to strengthen district local capacity in Eastern Uganda

Supporting Southern-led Research: Implications for North—South Research Partnerships

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