Burden assessment in caregivers of patients with home artificial nutrition: a need and a challenge

Villar-Taibo, Rocío; Olmos, Miguel; Guerrero, Diego Bellido; Calleja-Fernández, Alicia; Peinó-García, Roberto; Martis-Sueiro, Aurelio; Camarero-González, E.; Ríos-Barreiro, V; Cao-Sánchez, P; Duran-Martinez, R.; Rodríguez-Iglesias, M-J; Rodríguez-Blanco, B.; Rojo-Valdes, J

doi:10.1038/ejcn.2016.239

Cited by 20 publications

(21 citation statements)

References 19 publications

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“…On the other hand, a high percentage of the sample is not responsible for care tasks (instrumental exchange). The results of our study related to the profile of the main caregiver are similar to those previously reported in other studies; the main caregiver is characterized as female, a firstdegree relative, married, with primary schooling and in the middle class (Del Pino-Casado et al 2014;Fern andez-Mayoralas et al 2015;Ruiz-Adame et al 2017;Villar-Taibo et al 2016).…”

Section: Discussionsupporting

confidence: 89%

Social support for elderly people over 65 years in Spain

López-Cerdá¹,

Carmona‐Torres

Rodríguez-Borrego

2018

International Nursing Review

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Section: Discussionsupporting

confidence: 89%

Social support for elderly people over 65 years in Spain

López-Cerdá¹,

Carmona‐Torres

Rodríguez-Borrego

2018

International Nursing Review

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“…In a group of older patients undergoing home artificial nutrition, Villar-Taibo and colleagues found that the administration of oral supplements in combination with enteral nutrition was associated with a higher caregiver burden than total enteral nutrition [43]. Dysphagia and malnutrition were associated with higher caregiver burden also in long-term care residents [44].…”

Section: Discussionmentioning

confidence: 99%

Impact of Nutritional Status on Caregiver Burden of Elderly Outpatients. A Cross-Sectional Study

et al. 2019

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The assistance to older community-dwellers provided by family caregivers is crucial for the maintenance of an acceptable quality of life, especially when dementia is present. The caregiver burden may be extremely high, but few data are available on what patient domains mainly affect the caregiver. The aim of this cross-sectional study, performed in older outpatients, was to examine the impact of cognitive, physical and nutritional status of elderly community-dwellers on the caregiver burden, as evaluated by the Caregiver Burden Inventory (CBI). A group of 406 elderly outpatients (161 M, 245 F, mean age of 83.20 ± 6.40) was enrolled. A significant correlation was observed between Mini Nutritional Assessment Instrument-Short Form (MNA-SF) and CBI (r = −0.34; p < 0.001), suggesting that a poor nutritional status is significantly associated with the caregiver burden. There was also a significant correlation between CBI and Short Physical Performance Battery score (r = −0.29; p < 0.001), hand grip strength (r = −0.25; p < 0.001), Mini-Mental State Examination score (r = −0.39; p < 0.001), Geriatric Depression Scale (r = 0.23; p < 0.001), Body Mass Index (BMI) (r = 0.01; p = 0.03), Activities of Daily Living and Instrumental Activities of Daily Living (ADL/IADL) (r = −0.61 and −0.62, respectively; p < 0.001), and with the 4-m walking speed (r = −0.42; p < 0.001). In the multivariate analysis, only the relationships of the CBI (in particular the physical subcomponent) with ADL, IADL and MNA-SF remained statistically significant (β ± SE −0.89 ± 0.20, p < 0.001; −0.58 ± 0.15, p < 0.001 and −0.25 ± 0.11, p = 0.02, respectively). The relationship between CBI and BMI remained statistically significant only for the physical subcomponent (β ± SE 0.14 ± 0.05; p = 0.006). Thus, in this study, we confirmed that the impairment in the activities of daily living is associated with a significant impact on the caregiver burden, and we found also that a poor nutritional status of the older outpatient is independently more associated with the caregiver burden than cognitive and physical disability. The combined evaluation of both patients and caregivers can improve the knowledge and assistance to the elderly subjects.

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“…In a recent research (18) , it was found that among the HEN users, the majority were women (59.7%), with an average age of 79 years old, and the percentage of users above 65 years old was 78.6%. Regarding the diagnosis, 51.7% of the users had neurological disorders.…”

Section: Discussionmentioning

confidence: 98%

“…Recent data (18) demonstrated that female caregivers were four times greater than males, aged 53.1+13,4 years old and the family bond of child (50%), followed by wife/ husband (16%).…”

Section: Discussionmentioning

confidence: 99%

Nutrição enteral domiciliar: perfil dos usuários e cuidadores e os incidentes relacionados às sondas enterais

Naves

Tronchin²

2018

Rev. Gaúcha Enferm.

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Resumo OBJETIVOS Caracterizar o perfil de usuários e cuidadores em nutrição enteral domiciliar (NED) e analisar os incidentes relacionados às sondas enterais. MÉTODO Estudo de coorte prospectivo realizado com 36 usuários e seus cuidadores. A coleta de dados foi conduzida por um período de seis meses em um programa de assistência domiciliária de um hospital universitário. Adotou-se análise descritiva e curva de sobrevida de Kaplan-Meier. RESULTADOS 66,7% dos sujeitos eram do sexo feminino, 77,8% com idade ≥ a 60 anos e 88,9% estavam acamados. 88,9% dos cuidadores pertenciam ao sexo feminino, possuíam vínculo familiar e idade de 51,2 ±13 anos. A incidência de extubação gástrica não planejada foi 0,67/100 pacientes-dia. CONCLUSÕES Apesar da escassez de estudos na temática de qualidade e segurança em assistência domiciliar, ações como o monitoramento das extubações e a implantação de medidas que reduzam ou mitiguem tais eventos, podem contribuir para assistência segura e livre de danos.

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Burden assessment in caregivers of patients with home artificial nutrition: a need and a challenge

Abstract: HAN type appears to be a factor influencing caregiver burden and therefore, evaluation of caregiver burden should be part of HAN programs.

Cited by 20 publications

References 19 publications

Social support for elderly people over 65 years in Spain

Social support for elderly people over 65 years in Spain

Impact of Nutritional Status on Caregiver Burden of Elderly Outpatients. A Cross-Sectional Study

Nutrição enteral domiciliar: perfil dos usuários e cuidadores e os incidentes relacionados às sondas enterais

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