Burden, coping and needs for support of caregivers for patients with a bipolar disorder: a systematic review

Voort, Trijntje Y. G. van der; Goossens, Peter; Bijl, Jaap J. van der

doi:10.1111/j.1365-2850.2007.01158.x

Cited by 63 publications

(75 citation statements)

References 18 publications

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“…Perlick DA et al [13] found that 89%, 52%, and 61% of caregivers, respectively, experienced moderate or higher burden in relation to patient problem behaviors, role dysfunction, or disruption of household routine. S.Chakrabarti et al [17], T Y G Van Der Voort et al [22] found severity of illness among patients to be correlated consistently with severity of burden in caregivers. M. Reinares et al [14] reported that caregiver's highest subjective burden was associated with patient's hyperactivity and irritability.…”

Section: Discussionmentioning

confidence: 99%

Quality of life in caregivers of patients with bipolar mood disorder with current manic episode and its correlation with severity of illness

Panigrahi¹,

Acharya²,

Patel³

et al. 2014

IOSRJDMS

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Section: Discussionmentioning

confidence: 99%

Quality of life in caregivers of patients with bipolar mood disorder with current manic episode and its correlation with severity of illness

Panigrahi¹,

Acharya²,

Patel³

et al. 2014

IOSRJDMS

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“…A substantial amount of research literature confirms the important but very difficult role of next of kin of seriously ill patients [11, 12]. Better involvement of the patient’s family and network in the treatment may improve the patient’s and the relatives’ health, reduce sick leave rates, and reduce health care costs [4].…”

Section: Introductionmentioning

confidence: 99%

Next of kin’s experiences of involvement during involuntary hospitalisation and coercion

et al. 2016

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BackgroundNorway has extensive and detailed legal requirements and guidelines concerning involvement of next of kin (NOK) during involuntary hospital treatment of seriously mentally ill patients. However, we have little knowledge about what happens in practice. This study explores NOK’s views and experiences of involvement during involuntary hospitalisation in Norway.MethodsWe performed qualitative interviews-focus groups and individual-with 36 adult NOK to adults and adolescents who had been involuntarily admitted once or several times. The semi-structured interview guide included questions on experiences with and views on involvement during serious mental illness and coercion.ResultsMost of the NOK were heavily involved in the patient’s life and illness. Their conceptions of involvement during mental illness and coercion, included many important aspects adding to the traditional focus on substitute decision-making. The overall impression was, with a few exceptions, that the NOK had experienced lack of involvement or had negative experiences as NOK in their encounters with the health services. Not being seen and acknowledged as important caregivers and co sufferers were experienced as offensive and could add to their feelings of guilt. Lack of involvement had as a consequence that vital patient information which the NOK possessed was not shared with the patient’s therapists.ConclusionsDespite public initiatives to improve the involvement of NOK, the NOK in our study felt neglected, unappreciated and dismissed. The paper discusses possible reasons for the gap between public policies and practice which deserve more attention: 1. A strong and not always correct focus on legal matters. 2. Little emphasis on the role of NOK in professional ethics. 3. The organisation of health services and resource constraints. 4. A conservative culture regarding the role of next of kin in mental health care. Acknowledging these reasons may be helpful to understand deficient involvement of the NOK in voluntary mental health services.Electronic supplementary materialThe online version of this article (doi:10.1186/s12910-016-0159-4) contains supplementary material, which is available to authorized users.

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“…[14] The burden on the relatives of patients with manic and depressive symptoms is significant and at similar level;[15] severity of symptoms, difficulties in the relationship with the patients, lack of support, and stigma attached to the illness are important predictors of caregiver burden in bipolar disorder. [16]…”

Section: Introductionmentioning

confidence: 99%

Caregivers Burden of Patients with Schizophrenia and Bipolar Disorder: A Sectional Study

Vasudeva¹,

Sekhar

Rao

2013

Indian Journal of Psychological Medicine

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Background:Caregiving has been identified as a basic component of human nature and a primary element of close relationship. This study aims to assess the extent and pattern of burden felt by the caregivers of patients with schizophrenia in comparison with bipolar disorder.Materials and Methods:Fifty-two patients with schizophrenia and fifty-one patients with bipolar disorder attending the outpatient department were assessed in the study. The burden among the caregivers was assessed using Burden Assessment Schedule.Results:The caregivers of schizophrenia group had significantly higher total burden score as compared to caregivers of bipolar disorder. Caregivers of schizophrenia experienced significantly higher burden in area of external support, caregivers routine, and other relations.Conclusion:The extent of burden among families of schizophrenic patients is more than those of bipolar disorder. The families of patients with bipolar disorder do also experience considerable burden. The pattern of burden among families of schizophrenia and bipolar disorder is almost identical in most of the domains except for external support, caregivers routine, and other relations.

show abstract

Burden, coping and needs for support of caregivers for patients with a bipolar disorder: a systematic review

Cited by 63 publications

References 18 publications

Quality of life in caregivers of patients with bipolar mood disorder with current manic episode and its correlation with severity of illness

Quality of life in caregivers of patients with bipolar mood disorder with current manic episode and its correlation with severity of illness

Next of kin’s experiences of involvement during involuntary hospitalisation and coercion

Caregivers Burden of Patients with Schizophrenia and Bipolar Disorder: A Sectional Study

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