Burden of care: An important concept for nurses

What is known on the subject?• Relatives of individuals diagnosed with schizophrenia experience financial, social, emotional and physical burden.• There is a lack of studies on the experience and needs of caregivers of individuals diagnosed with schizophrenia in the Arab world. What does this paper add to existing knowledge?• This is the first qualitative study to reflect the voice of parents, siblings and spouses living with schizophrenia in the Arab world.• The study explored the needs of relatives of hospitalized patients.• This study revealed some positive elements of caregiving experience, especially among siblings.• The concept of stigma resistance may guide the establishment of stigma reduction programmes.• Violence towards the relatives or vice versa is a sensitive issue that needs to be addressed and reported. What are the implications for practice?• Nurses should address parents, spouses and siblings' specific needs and challenges to include them in their relatives' treatment plan.• Understanding the experience, feelings and needs of relatives living with schizophrenia would enable mental health nurses to provide a range of interventions to help reduce caregivers' burden and promote the positive gains from the caregiving experience.• The study emphasizes the need for culturally adapted family interventions to effectively assist relatives in providing care and adjusting to the caregiving role.

show abstract

“…The burden of care describes the physical, emotional, social and financial problems experienced by relatives (O'Neill & Ross, 1991).…”

Section: Burdenmentioning

confidence: 99%

Exploring the experience of relatives living with individuals diagnosed with schizophrenia in Oman: A qualitative study

Sawafi

Lovell

Renwick

et al. 2021

Psychiatric Ment Health Nurs

View full text Add to dashboard Cite

show abstract

“…Two broad issues were thus raised concerning the caregiving role: first were the issues of societal expectations regarding women as informal carers. To this, emerging literature has begun to challenge ideologies that make assumptions about the role of women as caregivers (Bridges & Lynam 1993, O'Neill & Ross 1991, Anderson & Elfert 1989. Secondly, mothers came up against numerous challenges in their caregiving role that greatly increased their risk of exhaustion and burnout.…”

Section: Women As Caregiversmentioning

confidence: 99%

Caring for a child with a progressive illness during the complex chronic phase: parents’experience of facing adversity

Gravelle

1997

Journal of Advanced Nursing

View full text Add to dashboard Cite

The qualitative study explored the day-to-day experiences of parents caring at home for a child with a progressive life-threatening illness at a certain point in their illness trajectory. This point in the trajectory is when the child lives with a complex chronic condition, and is in need of specialized and time-consuming care, but is not yet in a terminal phase. The naturalistic research design of phenomenology was chosen for the study's methodology. Parents' experiences of caring for their child were conceptualized as an ongoing process of 'facing adversity', as parents had continuously to redefine and then manage those changes resulting from the progressive nature of their child's condition. Concepts of normalization and chronic sorrow are considered in the conceptualization, as are the challenges of caregiving (particularly of mothers) who faced many hardships in their role, including the myriad of changes related to the increased burden of care. Implications for nursing practice are identified.

show abstract

“…Women, particularly wives and daughters, are the predominant family caregivers in our society (Brody, 1981). Family caregiving includes financial, physic81, and emotional demands (e.g., Brodaty & Hadzi-Pavlovic, 1990;George & Gwyther, 1986;O'Neill & Ross, 1991) and caregiving has been associated with a negative impact on health for some caregivers (Caserta, Lund, Wright, & Redburn, 1987;George & Gwyther, 1986;Given, Collins, & Given, 1988). As life expectancy increases, a growing number of people live with chronic diseases such as dementia and require the assistance of family caregivers (Canadian Study of Health and Aging Working Group, 1994).…”

mentioning

confidence: 99%

Social Networks of Women Caregivers

Fudge

Neufeld

Harrison

1997

Public Health Nursing

View full text Add to dashboard Cite

Social networks and the support that network members provide are important resources for family caregivers in sustaining their caregiving role. Caregivers' perceptions of support from family and friends have been linked to their health status (R. Kahn & T. Antonucci, 1980; I. Sandler & M. Barrera, 1984). The purpose of this study was to explore the social networks and types of perceived support described by women who are caregivers of cognitively impaired older adults. Content analysis was used to examine interview data from a longitudinal qualitative study of 20 women caregivers of cognitively impaired older persons. An important finding of this study was the identification of a typology of social networks of the women caregivers. The caregivers' perceptions of satisfaction with support received and experience of conflict with network members varied according to the characteristics of their social network. Those caregivers who belonged to diverse social networks reported high satisfaction with the support that they received and little or no conflict. Those caregivers with kin-dominated social networks reported little satisfaction with support received and a high degree of conflict.

show abstract

Burden of care: An important concept for nurses

Cited by 18 publications

References 15 publications

Exploring the experience of relatives living with individuals diagnosed with schizophrenia in Oman: A qualitative study

Exploring the experience of relatives living with individuals diagnosed with schizophrenia in Oman: A qualitative study

Caring for a child with a progressive illness during the complex chronic phase: parents’experience of facing adversity

Social Networks of Women Caregivers

Contact Info

Product

Resources

About