Burden of Care and Childhood Cancer: Experiences of Parents in an Asian Context

Ow, Rosaleen

doi:10.1093/hsw/28.3.232

Cited by 35 publications

(59 citation statements)

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“…Changes in the domestic routine, and also in the family and professional spheres, along with somatic symptoms are responses common to both groups Lou, 2006;Wong & Chan, 2006;Yeh, 2002). The initial months of treatment demand more from parents regardless of culture; these have to adapt to the treatment requirements (Han, 2003;Leavitt et al, 1999;Ow, 2003). Some elements such as social support and seeking out information are commonly valued (Han, 2003;Ow, 2003;Wong & Chan, 2006).…”

Section: Psychosocial Distressmentioning

confidence: 99%

“…The initial months of treatment demand more from parents regardless of culture; these have to adapt to the treatment requirements (Han, 2003;Leavitt et al, 1999;Ow, 2003). Some elements such as social support and seeking out information are commonly valued (Han, 2003;Ow, 2003;Wong & Chan, 2006). The care system also usually changes regardless of the cultural context, including overprotective behavior, changes in the imposition of limits, and in family relationships (Chao, Chen, Wang, Wu, & Yeh, 2003;Martinson et al, 1999).…”

Section: Psychosocial Distressmentioning

confidence: 99%

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Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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A diagnosis of childhood cancer represents challenges for patients, family members, and health workers. The parents of a child or adolescent have to play an expanded role because they need to reconcile parental tasks and treatment demands. This study presents an integrative literature review concerning difficulties experienced by pediatric caregivers during onco-hematological treatment. The CAPES periodicals portal and the Scientific Library Online (SciELO) were searched for papers published between 1999 and 2009. Relevant themes are highlighted in Brazilian and international studies published in the field, such as psychological disorders experienced by caregivers, the professional and financial impact associated with treatment, changes in educative practices and family dynamics, and the influence of cultural practices on the experience of treatment. Suggestions for further research are presented to support efficient psychosocial interventions and minimize the psychosocial costs experienced by pediatric caregivers over the course of onco-hematological treatments.Keywords: Childhood Cancer, Caregivers, Children, Psycho-oncology. Impacto Psicossocial do Câncer Pediátrico para Pais: Revisão da LiteraturaResumo: O diagnóstico de câncer infantil representa desafios para pacientes, familiares e profissionais de saúde. Os pais de uma criança ou adolescente em tratamento têm seu papel estendido, pois precisam administrar práticas parentais e exigências do tratamento. Este artigo objetiva realizar revisão integrativa da literatura relacionada a dificuldades vivenciadas pelos cuidadores pediátricos durante tratamento onco-hematológico. Foi realizada revisão da literatura publicada entre 1999 e 2009, a partir da busca em bases de dados Portal de Periódicos CAPES e Scientific Library Online (SciELO). Com base na literatura nacional e internacional recentemente publicada na área destacam-se temas importantes, como perturbações psicológicas vivenciadas pelos cuidadores, impacto profissional e financeiro associado ao tratamento, mudanças em práticas educativas, alterações na dinâmica familiar e influência de práticas culturais na vivência do tratamento. São apresentadas sugestões para pesquisas que possam subsidiar intervenções psicossociais eficientes para diminuir custos psicossociais vivenciados por cuidadores pediátricos ao longo do tratamento onco-hematológico. Palavras-chave:Câncer em Crianças, Cuidadores, Crianças, Psico-oncologia. Impacto Psicosocial del Cáncer en la Infancia para Padres: Revisión de la LiteraturaResumen: El diagnóstico del cáncer en la infancia es desafío para enfermos, familia y profesionales Hoekstra de salud. Los padres del niño o adolescente en tratamiento tienen su papel extendido y necesitan asociar prácticas de paternidad a exigencias del tratamiento. Constituí objetivo de este artículo realizar revisión integrativa de literatura, con atención para dificultades vivenciadas por cuidadores pediátricos en tratamiento onco-hematológico. Fue realizada busca en la literatura publicada entre...

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Section: Psychosocial Distressmentioning

confidence: 99%

Section: Psychosocial Distressmentioning

confidence: 99%

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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“…The survival for most diagnoses has improved continuously, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes [1] . Therefore, families report various degrees of psychological stress, as the treatment for children and its side effects are very trying [2] .…”

Section: Introductionmentioning

confidence: 99%

Family participation in childhood cancer care

Kästel

Enskär

2013

JNEP

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Background: Child cancer care is becoming increasingly successful, the treatment brought more success through intensified therapy, but this development has not been easy to achieve due to the pain and anxiety that the treatment often causes. It is not possible to eliminate the chaos the family experiences, but it can be reduced through a deepened understanding of the situation. Purpose:The aim of the study is to highlight families views on participation in childhood cancer care. Method:A qualitative design, appropriate to gain a holistic view, has been chosen. Eight families with children diagnosed with cancer, of various ages and gender and from various backgrounds, participated in five interviews each during the first year of the child´s illness. Findings:The families constitute a cornerstone in paediatric oncology care today, but the results indicate that all the various tasks and commitments for the families, sometimes entail too heavy a burden. They are in need of better support and clearer instructions to be able to cope with the situation including rules and measures concerning the child. Therefore, it is urgent to clarify who has the formal responsibility for medical consequences that might occur in connection with delegated responsibility. The study shows that there is a lack of pedagogical thought and a need to create a pedagogical model. Conclusion:There is a need for guiding principles and education for the parents, which would contribute to their increased confidence.

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“…They reported to experience poorer physical and psychosocial quality of life [5,6]. The majority of studies suggest that, at some point of time, the parents display a range of emotional challenges especially anxiety and stress symptoms [7] and these two were found to be significantly correlated [8].…”

mentioning

confidence: 99%

Psychological Distress and Associated Factors in Parents of Children with Cancer

Othman¹,

Mohamad²,

Hussin³

et al. 2011

IJSSH

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Abstract-Introduction: Diagnosis of cancer in children poses a challenging situation for parents to cope with. Method: Seventy-nine (N = 79) parents whose children are receiving treatment for cancer in Hospital Universiti Sains Malaysia participated in this cross-sectional descriptive study. They completed a set questionnaire measuring their level of anxiety and stress, knowledge about cancer, and amount of activities they perform with or for the child to enhance the child's coping abilities, in addition to children's psychological problems. Socio-demographic information was obtained. Results: Parents with higher cancer knowledge reported reduced stress (p<0.01) and anxiety (p<0.05). The higher the income (p<0.05) and education (p<0.01), the higher cancer knowledge. Parental stress was negatively correlated with income (p<0.05) and education (p<0.01), indicating that the better educated and higher the salary, less stress symptoms. Highly educated parents engaged in more activities with their children (p<0.05). Parental anxiety was correlated significantly with children's current treatment including chemotherapy procedure (p<0.01), 'In-patient' Vs 'Outpatient' (p<0.01), and children's condition (p<0.01). Parents of hospitalized children who underwent chemotherapy were significantly more anxious than their counterparts. Parents who perceived their children's current condition as 'very good', reported reduced anxiety, compared to those who reported their child's condition as 'ok'. The more psychological problems the children had, the higher parental anxiety (p<0.05) and stress symptoms (p<0.01). Discussion: Some groups of parents reported more psychological difficulties compared to others. Ongoing psychological assessment and intervention may reduce parental stress by increasing coping and reducing children psychological problems.

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Burden of Care and Childhood Cancer: Experiences of Parents in an Asian Context

Cited by 35 publications

References 0 publications

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Family participation in childhood cancer care

Psychological Distress and Associated Factors in Parents of Children with Cancer

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