Burden of Stroke Caregivers: Evidence from a Qualitative Study in Sarawak, Malaysia

Rahman, Mizanur; Suut, Norlizabinti; Putit, Zabidahbinti; Arif, Mohamad; Said, Asri; Suhaili, Mohd Raili Bin; Fadzillah, Mohd; AkBakon, Florence; Tambi, Zainab binti; Kee, Ling How

doi:10.3329/bjms.v17i4.38321

Cited by 13 publications

(33 citation statements)

References 7 publications

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“…Young people are commonly associated with active social life, various wants and needs, the uncertainty of life direction, and the unemployed. Several studies have shown that commitment while caring for stroke patients results in a lack of leisure time with friends and an inability to attend events [ 40 ]. Similar to the theme of life alterations by Wagachchige et al [ 44 ], the family caregivers lacked leisure time and commonly missed attending social gatherings because the stroke patients could not be left alone to manage themselves.…”

Section: Discussionmentioning

confidence: 99%

“…Strengthening social support was found to reduce caregiver burden, anxiety, and depression levels in a statistically significant way [ 47 , 48 ]. According to a local study, employed stroke caregivers had difficulty completing their jobs well and performing caregiving chores, which hampered their work performance [ 40 ]. Thus, the formal obligation responsibilities subtheme emergence represented the overburdened employed caregivers with additional work demands during the pandemic.…”

Section: Discussionmentioning

confidence: 99%

“…High: higher vocational education or university education [ 39 ]. b The employment status was categorized based on Rahman et al [ 40 ]. F = female, M = male, MCA = middle cerebral artery, TACI = total anterior circulation infarct.…”

Section: Tablementioning

confidence: 99%

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Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

Mukhti

Ibrahim

Ismail

et al. 2022

IJERPH

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Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

Mukhti

Ibrahim

Ismail

et al. 2022

IJERPH

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“…Evidence from a qualitative study in Sarawak, Malaysia (Rahman et al, 2018) Caregivers burden is exacerbated by financial problems, multiple responsibilities, behavioral changes in stroke survivors, and lack of social support. 17 Caregiver burden among caregivers of individuals with severe mental illness: Testing the moderation and mediation models of resilience (Mulud & McCarthy , 2017) Female caregivers felt more burdened.…”

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confidence: 99%

A review on family caregiving challenges in Malaysia

Chan

Matsah²,

Yusuf³

et al. 2022

ProGCouns

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Family caregiving often involves family members, relatives, and partners with whom the patients have a personal relationship to assist the care. The roles of caregivers are extensive and require a lot of effort, time, and commitment. These demands might possibly affect the life of caregivers. This paper aims to identify how family caregiving in Malaysia might have jeopardized the caregiver's life. A systematic approach analysis was utilized in this study while including seventeen articles. The exclusion criteria were articles published in reputable journals containing the research topic with the keywords “burden”, “finance”, and “stress”. The focus of the study was on the impact, mental health status, quality of life, and burden related to caregivers in Malaysia. The articles were categorized into four themes: mental health status, impact, quality of life, and burden towards family caregiving in Malaysia. The results showed that in the theme of mental health status, caregivers experienced significant stress and one of the factors is the family's lack of knowledge in dealing with stress. Meanwhile, in terms of impact, the results indicated that caregivers experienced negative impacts on their emotions and health. In the quality of life theme, the results presented that family caregiving had a positive impact on increasing bonding between patients and caregivers. The results also showed that caregivers experienced burdens related to financial issues and lack of social support. This study recommends mental health professionals provide support, knowledge, and training for caregivers to maintain their psychological well-being.

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“…Electrical current is applied through electrodes to one or more targeted muscles. 12-15, 18 The muscle size, the position of the electrodes, and the amount of intervening tissue between muscle and skin dictate the intensity needed from the electrical stimulation unit to cause a contraction. Electrical stimulation therapy was given to this patient in the form of a faradic current.…”

mentioning

confidence: 99%

A 60-year-old male presented with left-sided weakness and difficulty in speech

Khan

Islam

Ranjan

et al. 2021

Bangabandhu Sheikh Mujib Medical University Journal

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This article has no abstract. The first 100 words appear below: A 60-year-old male presented with weakness of the left side of the body followed by a sudden fall on the ground while working in the field, with difficulty in speech for 03 months. Weakness was sudden in onset which involved left upper and lower limbs with the inability to move the left side of the body and difficulty in walking. The patient also noticed that there was a deviation of the face towards the right side associated with dribbling of food with difficulty in speech but can follow the command with difficulty. There was also urinary incontinence for the same duration, but the bowel movement was normal.

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Burden of Stroke Caregivers: Evidence from a Qualitative Study in Sarawak, Malaysia

Cited by 13 publications

References 7 publications

Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

Family Caregivers’ Experiences and Coping Strategies in Managing Stroke Patients during the COVID-19 Pandemic: A Qualitative Exploration Study

A review on family caregiving challenges in Malaysia

A 60-year-old male presented with left-sided weakness and difficulty in speech

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