Burden on family caregivers of the elderly in oncologic palliative care

Rezende, Gabriela; Gomes, Cristiane A.; Rugno, Fernanda Capella; Eva, Gail; Lima, Nereida K. C.; Carlo, Marysia Mara Rodrigues Prado De

doi:10.1016/j.eurger.2017.06.001

Cited by 18 publications

(15 citation statements)

References 30 publications

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“…The current study further supports the OECD report from 2011 on the participation on women in informal care. The results are also consistent with that of Rezende et al [28], who noted that family caregivers are mostly middle-aged and elderly women, either daughters or wives of the care recipient. Middle-aged male carers are few; nevertheless, there are more male caregivers aged 75 and above than females [21].…”

Section: Discussionsupporting

confidence: 92%

The social and economic burden on family caregivers for older adults in the Czech Republic

2020

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Background: In this paper, we analyse the economic burden of elder care in the Czech Republic by assessing how family members of senior citizens engage in caregiving. To do this, we examined the time and cost associated with caregiving as a function of age, gender, and income of the caregiver. Methods: A questionnaire comprising 17 items was used to gather data from 155 informal caregivers whose seniors are affiliated with 200 registered home care agencies. Spearman rank correlation was adopted to analyse how caregivers' income, age and gender influences the costs accrued and time spent in caring for elders. The expenses are divided into direct and indirect. Publicly available sources are used to establish expenses on treatment and medication, which cannot be determined by the questionnaire survey. Results: Results show that around-the-clock care is the most common. Spouses of care recipients make up the highest number of caregivers, and women represent the largest portion of this group. Additionally, the more the time spent caring for an elder, the higher the cost associated with such care. The total annual burden of informal caregivers is determined by the sum of annual average indirect costs, amounting to € 36,888, and annual direct costs, amounting to € 2775, resulting in a total of € 39,663 per year. Conclusion: Czech social policymakers should begin to consider better packages for caregivers in the form of incentives and other monetary benefits to improve living standards and care for ageing seniors.

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Section: Discussionsupporting

confidence: 92%

The social and economic burden on family caregivers for older adults in the Czech Republic

2020

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“…Guerriere et al argued that caregivers' anxiety and depression symptoms are triggered by their disrupted schedules. The disruption of daily life and psychological distress are generally found in caregiver burden research …”

Section: Resultsmentioning

confidence: 99%

Analysis of caregiver burden in palliative care: An integrated review

Choi

Seo

2019

Nurs Forum

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The inclusion of caregivers in a holistic care approach represents a basic principle in palliative care. However, many palliative care professionals have a lack of understanding of difficulties or unmet needs among caregivers. To enhance the quality of life of caregivers and the quality of care for patients, healthcare professionals should be better informed about the constructs of caregiver burden. The aim of this study is to synthesize the concept of caregiver burden in palliative care, providing implications for the caregivers and their support systems. This concept analysis study adopts the integrative review approach and the basic text analysis method (ie, word frequency). The PubMed, CINAHL, Embase, and PsycINFO databases are explored for eligible studies.From this literature search, 66 articles from 1998 to 2018 are located. After data collection is completed, the two authors independently evaluate the quality of studies published before 1 September 2018. The caregiver burden is then redefined with its attributes, antecedents, consequences, empirical referents, and facilitators. It is recommended that the multidimensional concept of caregiver burden in palliative care be measured by considering caregiver characteristics and the caregiving context. K E Y W O R D S caregiver burden, concept analysis, integrative review, palliative care, word frequency 1 | BACKGROUND Developments in medical technology and the management of illness have increased the prognosis of terminally ill patients. As a result, caregivers have experienced the increased burden of caring for family members for an extended period of time. 1 Due to the decreasing number of days in hospital stays and the lack of financial support for home care services in palliative care, family caregivers are regarded as hidden patients or second-order patients. 2 Previous studies have reported that family caregivers experience a considerable burden from caregiving, and they become severely depressed and socially isolated from their communities. 3-5 For example, Grunfeld et al 6 and Grant et al 7 identified caregiver burden as one of the factors that most influence anxiety and depression in caregivers and more caregivers suffer from higher levels of perceived burden at the patientsʼ end-of-life than at the start of the palliative care according to their longitudinal studies. This increasing caregiver burden in palliative care can be explained by patientsʼ declining health status, increasing demands for patientsʼ symptom management, and the need for decisions regarding terminal care (ie, enteral tube feeding, advance care planning, and do-not-resuscitate). Nevertheless, numerous family caregivers do not perceive their burden as problematic. De Korte-Verhoef et al, 8 found that even though 66% of family caregivers experienced a severe burden from caregiving, only 25% indicated that their burden had a negative impact on their daily lives. To improve family caregiversʼ quality of life and the quality of care the caregivers can deliver to their patients, the burd...

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“…This lack of validation of the carer role, along with the all-encompassing demands, often means they do not have time to address their own needs. This lack of self-recognition is further compounded by a societal and cultural demand for relatives to adopt the role of family caregiver (Rezende et al, 2017;Sharma et al, 2016). These pressures on carers increase their risk of morbidity and mortality (Epiphaniou et al, 2012).…”

Section: Valuing Carer Role and Validation Of Carer Supportmentioning

confidence: 99%

Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

Horseman

Milton

Finucane

2019

Br J Community Nurs

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Family carers play a central role in community-based palliative care. However, caring for a terminally ill person puts the carer at increased risk of physical and mental morbidity. The Carer Support Needs Assessment Tool (CSNAT) enables comprehensive assessment of carer support needs. The present study aimed to identify barriers and facilitators to implementing the CSNAT in a community specialist palliative care service. Semi-structured interviews with 12 palliative care nurse specialists from two community nursing teams in Lothian, Scotland, June 2017. Data was audio-recorded, transcribed and analysed. Palliative care nurse specialists acknowledge the importance of carers in palliative care and encourage carer support practices. Nurses perceived the CSNAT as useful, but used it as an ‘add-on’ to current practice, rather than as a new approach to carer-led assessment. Further training is recommended to ensure community palliative care nurses are familiar with the broader CSNAT approach.

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Burden on family caregivers of the elderly in oncologic palliative care

Cited by 18 publications

References 30 publications

The social and economic burden on family caregivers for older adults in the Czech Republic

The social and economic burden on family caregivers for older adults in the Czech Republic

Analysis of caregiver burden in palliative care: An integrated review

Barriers and facilitators to implementing the Carer Support Needs Assessment Tool in a community palliative care setting

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