Burden on Family Members

Abstract

Available evidence supports the premise that both group and individual interventions reduce perceived burden, however, this evidence is inconclusive. Further studies of large scale and high quality designs are needed.

Stroke Caregiver Outcomes from the Telephone Assessment and Skill-Building Kit (TASK)

“…Caregiver intervention studies that better target the needs and concerns of family caregivers, rather than the needs of stroke survivors, have been strongly recommended 18. Other studies indicate that tailoring interventions to the individual needs of caregivers is more effective than group interventions 16,17,19. These recommendations are also consistent with caregiver studies that suggest selecting caregivers who have the most needs, then tailoring interventions to address those needs 45,46…”

“…Many authors recommend that future interventions focus on meeting caregivers’ specific needs 6,14–19. Clinically tested interventions should help caregivers gain skills that would help them avoid negative caregiver outcomes.…”

The meaning of living close to a person with Alzheimer disease

“…It is important to understand the different needs of the spouses to plan either individual or group interventions and to determine if there is a need for medication or other treatments (Mittelman 2003 ; Yin et al 2002 ). However, a lifeworld perspective as a point of departure to understand the phenomenon of being a spouse to a partner with early-onset Alzheimer raises issues beyond interventions, medication and treatments, namely issues concerning our human vulnerability.…”

The Effectiveness of a Culturally Sensitive Cognitive Behavioral Group Intervention for Latino Alzheimer’s Caregivers

“…The decision for Circulo de Cuidado to be an individualized, targeted, CBT group intervention was informed by the past two decades of psychosocial caregiver intervention research, particularly the NIH REACH I and II studies. Importantly, since 2001, there have been a series of systematic reviews and meta-analyses, which suggest that individualized, targeted, multicomponent interventions may be more effective than education alone or broader psychoeducational (PED) interventions (Acton & Kang, 2001;Brodaty, Green, & Koschera, 2003;Cooke, McNally, Mulligan, Harrison, & Newman, 2001;Gallagher-Thompson & Coon, 2007;Pinquart & Sorensen, 2006;Schulz et al, 2002;Selwood, Johnston, Katona, Lyketsos, & Livingston, 2007;Yin, Zhou, & Bashford, 2002. Circulo de Cuidado is based on a prior CBT group intervention, Project Care that demonstrated success in improving Anglo ADRD caregivers' psychological well-being and in which the principal investigator was a team member (Gonyea, O'Connor, & Boyle, 2006).…”