Calidad de vida en adultos del Paraguay con enfermedad celiaca

Delor, Raúl Emilio Real; Medina, Ingrid Celeste Centurión

doi:10.21676/2389783x.2026

Cited by 10 publications

(5 citation statements)

References 21 publications

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“…It is possible that the diagnosis of CD helps to improve compliance with a GFD and, consequently, to avoid the long-term complications associated with the condition, as almost 80% (27 out of 33) of the individuals with a physician diagnosis of CD indicated that were following the diet. This percentage is considerably higher than the 33% of adherence to a GFD among Paraguayan celiac patients reported a few years ago [16]. This potential increase in adherence to a GFD could be influenced by the activism of Paraguayan celiac associations like FUPACEL (Fundación Paraguaya de Celiacos), which promotes free monthly informative sessions for its members.…”

Section: Discussionmentioning

confidence: 81%

“…Online platforms have been widely utilized for collecting data without the need for face-to-face interaction, and seem to be the approach of choice for overcoming the SARS-COV-2/COVID-19 health problems for continuing to carry out survey studies. Paraguay is a South American country where some studies focused on CD have been carried out [15][16][17] and where the consumption of wheat has been increasing [18], but there is a lack of epidemiological data about GRDs and adherence to a GFD. Thus, the aim of the present study was to estimate the self-reported prevalence rates of GRDs as well as adherence to a GFD in a Paraguayan adult population utilizing an online platform.…”

Section: Introductionmentioning

confidence: 99%

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Prevalence of Wheat/Gluten-Related Disorders and Gluten-Free Diet in Paraguay: An Online Survey-Based Study

et al. 2021

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Gluten-related disorders (GRDs) are increasing around the world, but their magnitude and relevance remain unknown in most Latin American countries. Thus, an online survey was conducted to estimate the prevalence of GRDs as well as adherence to a gluten-free diet (GFD) in Paraguayan adult population. There were 1058 individuals surveyed using a validated questionnaire (response rate of 93.9%). The self-reported prevalence rates were as follows (95% CI): gluten sensitivity (GS), 10.30% (8.53–12.29); non-celiac GS (NCGS), 5.19% (3.94–6.71); physician-diagnosed celiac disease (PD-CD), 3.11% (2.15–4.35); wheat allergy (WA), 2.07% (1.30–3.13); and adherence to GFD, 15.69% (13.55–18.02). Excluding CD, more women than men met the criteria for GRDs, adverse food reactions, and GFD (p < 0.05). Eight respondents reported the coexistence of NCGS with PD-CD and/or WA. Most cases on a GFD indicated medical/dietitian advice for following the diet (68.07%). Non-self-reported GS individuals indicated weight control (46.4%) and the notion that the GFD is healthier (20.2%) as the main motivations for following the diet. GRDs are not uncommon in Paraguayan adult population. It seems that there is awareness about GRDs and the GFD, but training about the diagnosis of GRDs is desirable because of the informed overlapping diagnoses of CD or WA with NCGS. Future studies involving face-to-face interviews are necessary.

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Section: Discussionmentioning

confidence: 81%

Section: Introductionmentioning

confidence: 99%

Prevalence of Wheat/Gluten-Related Disorders and Gluten-Free Diet in Paraguay: An Online Survey-Based Study

et al. 2021

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“…25 Asimismo, en España se confirmó que la autoeficacia específica es más elevada en los grupos con alta adherencia a la DLG y que esta se asocia significativamente a una mejor CV en personas con EC. 26 La CV obtenida en El Salvador se categoriza como buena, igual a la reportada en Italia, 27 y superior a la de estudios previos en los Estados Unidos, 28 Brasil, 29 España, 30 Paraguay, 31 India 32 y la Argentina. 25 Existen estudios en España 26 y Canadá 33 que confirman la relación entre la adherencia a la DLG y CV.…”

Section: Resultsunclassified

Empoderamiento y calidad de vida en adultos con enfermedad celíaca en El Salvador. Estudio transversal

Espinal¹,

Peña

Serrano-Vela³

2022

Acta gastroenterol. latinoam.

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Introduction. Celiac disease is a chronic disease with worldwide distribution. In the person-centered health approach to chronic diseases, the concepts of empowerment and quality of life become relevant. Aim. To determine the degree of empowerment and quality of life of adults with celiac disease in a sample from El Salvador, as well as the correlation between both measures. Materials y methods. Descriptive cross-sectional study. Salvadoran adults with diagnosis of celiac disease confirmed by duodenal biopsy were surveyed online. Sociodemographic and clinical data were required from the participants. A validated questionnaire in Spanish for the empowerment of people with chronic diseases was applied because there is no specific empowerment questionnaire for people with celiac disease. A validated quality of life questionnaire in Spanish for people with celiac disease was also used. Results. Thirty-six people were included in the study, of whom 86.1% were females, with a median time since diagnosis of 7.0 years [5.0-10.0]. Seventy-five percent reported a strict adherence to the gluten-free diet. The median empowerment score was 185.0 [176.25-195.0] out of 235 points and the median quality of life score was 72.5 [54.0-79.75] out of 100 points. The Spearman correlation between empowerment and quality of life was positive and statistically significant (rho = 0.444; p = 0.007). The people evaluated in this study have a good level of empowerment and quality of life. Conclusion. There is a moderate positive correlation between empowerment and quality of life for adults with celiac disease in this study.

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“…Se estima que ello se debe al rechazo a llevar una dieta sin gluten en caso de resultar portadores de EC, así como al cambio de hábitos alimentarios y de estilo de vida que ello implicaría. 30 Este tema está pendiente para un estudio cualitativo, porque es sabido que la calidad de vida puede verse alterada en dos sentidos, ya sea porque los celíacos que sufren por sus síntomas deambulan por los consultorios sin un diagnóstico oportuno, o porque la dieta sin gluten exige cambios estrictos en la rutina personal y familiar.…”

Section: Discussionunclassified

Enfermedad celíaca silente en dermatología

Delor¹

2021

RMIMSS

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Se incluyeron 79 pacientes, con predominio del sexo femenino (75%). La mediana de edad fue de 33 años y el índice de masa corporal medio fue de 24.7 kg/m 2 . La enfermedad celíaca se demostró histológicamente en 4 de 32 portadores de estomatitis aftosa, en 2 de 24 con vitíligo y en 1 de 17 con alopecia areata. No se detectó en pacientes con urticaria crónica ni psoriasis.Conclusión: La frecuencia de enfermedad celíaca confirmada histológicamente en pacientes con estomatitis aftosa, vitíligo o alopecia areata fue del 8.8%.

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Calidad de vida en adultos del Paraguay con enfermedad celiaca

Cited by 10 publications

References 21 publications

Prevalence of Wheat/Gluten-Related Disorders and Gluten-Free Diet in Paraguay: An Online Survey-Based Study

Prevalence of Wheat/Gluten-Related Disorders and Gluten-Free Diet in Paraguay: An Online Survey-Based Study

Empoderamiento y calidad de vida en adultos con enfermedad celíaca en El Salvador. Estudio transversal

Enfermedad celíaca silente en dermatología

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