Can pain assessment tools accurately measure pain experience of disabled individuals?

Voepel‐Lewis, Terri

doi:10.1111/dmcn.14033

Cited by 2 publications

(4 citation statements)

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“…Use of behavioural pain assessment tools e.g. Non‐Communicating Children's Pain Checklist‐Revised and the Paediatric Pain Profile should be considered, as many children may have communication impairments and/or intellectual disability that make self‐report difficult …”

Section: Discussionmentioning

confidence: 99%

“…Non-Communicating Children's Pain Checklist-Revised 77 and the Paediatric Pain Profile 78 should be considered, as many children may have communication impairments and/or intellectual disability that make self-report difficult. 79 This systematic review emphasizes that pain is often caused by interventions used for the management of CP. Procedural and postoperative pain provided the strongest level of evidence (12/25 studies with level II evidence), but were limited by the shortage of non-pharmacological interventions (5/25 studies).…”

Section: Discussionmentioning

confidence: 99%

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Management of pain in children and adolescents with cerebral palsy: a systematic review

Ostojic

Paget

Morrow

2018

Develop Med Child Neuro

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ABBREVIATIONS BoNT-A Intramuscular botulinum toxin-A VAS Visual analogue scale ITB Intrathecal baclofen AIM To determine the efficacy of interventions for the management of pain in children and adolescents with cerebral palsy (CP). METHOD Electronic databases were searched from the earliest date possible to April 2018 using a mixture of subject headings and free text. Inclusion criteria comprised of studies with (1) diagnosis of CP, (2) under the age of 18 years, (3) intervention for the management of pain, (4) outcome measure of pain, and (5) studies published in English-language peerreviewed journals. RESULTS Fifty-seven studies met the eligibility criteria. Pain related to (n=number of studies): hypertonia (n=17), spastic hip disease (n=13), procedures for the management of CP (n=7), postoperative (n=18), and other (n=2). Most of the studies were of level III to level V evidence.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Management of pain in children and adolescents with cerebral palsy: a systematic review

Ostojic

Paget

Morrow

2018

Develop Med Child Neuro

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“…Pain intensity was the focus for most articles in this review; however, intensity alone cannot capture the complexity of pain experience in youth. 92 A systematic review of chronic pain assessment measures in children with cerebral palsy characterized the content of measures in accordance with the International Classification of Functioning, Disability, and Health (ICF). 77 Functional dimensions were found to be rarely considered in pain assessments; most measures assessed pain severity alone.…”

Section: Discussionmentioning

confidence: 99%

“…To understand more holistic pain experience other important biopsychosocial aspects of pain relevant to functioning in daily life should be assessed including pain frequency, location, mitigating or exacerbating factors, distress or anxiety, and impacts on other areas of functioning. 92 …”

Section: Discussionmentioning

confidence: 99%

A systematic review of self and observer assessment of pain and related functioning in youth with brain-based developmental disabilities

Noyek,

Jessa,

Faulkner

et al. 2023

Pain

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Pain experiences of youth with brain-based developmental disabilities are often overlooked and/or misinterpreted, increasing the risk for poor or inadequate pain assessment and management. Ample measures exist to assess acute and chronic pain, yet their utility and frequency of use in youth with brain-based developmental disabilities is unclear and available measures do not have strong measurement properties for this diverse group. This systematic review identified the scope of self-reported and observer-reported pain assessment in studies of youth (aged 3-24 years) with brain-based developmental disabilities (phase 1) and summarized other measures of pain-related functioning for acute and chronic pain (ie, physical, emotional, social, sleep, and quality of life, within the subset of quantitative studies focused primarily on pain, phase 2). A comprehensive search for English-language studies was conducted in August 2022 in Web of Science, CINAHL, MEDLINE, Cochrane CENTRAL, EMBASE, and APA PsychINFO (PROSPERO registration: CRD42021237444). A total of 17,029 unique records were screened. Of the 707 articles included in phase 1, most assessed chronic pain (n = 314; 62.0%) and primarily used observer-report (n = 155; 31%) over self-report (n = 67; 13%). Of the 137 articles included in phase 2, other outcomes assessed alongside pain intensity included motor ability (16.8%), adaptive functioning (11%), quality of life (8%), pain interference (6.6%), mental health (5.8%), and communication ability (2.9%). Cerebral palsy was the most common population in both phase 1 (n = 343; 48.5%) and phase 2 (n = 83; 59.7%). This review provides a foundational understanding of pain assessment in brain-based developmental disabilities and highlights continued inequities in holistic pain assessment for this population.

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Can pain assessment tools accurately measure pain experience of disabled individuals?

Abstract: This commentary is on the original article by Fox et al. on pages 69–74 of this issue.

Cited by 2 publications

References 5 publications

Management of pain in children and adolescents with cerebral palsy: a systematic review

Management of pain in children and adolescents with cerebral palsy: a systematic review

A systematic review of self and observer assessment of pain and related functioning in youth with brain-based developmental disabilities

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