Sibling expectations to provide future instrumental or emotional support for a brother or sister with schizophrenia when parents became disabled or died were examined. Data came from a sample of 137 siblings participating in a longitudinal study of aging families of adults with schizophrenia. Early socialization experiences, the quality of the sibling relationship, and personal caregiver gains propel siblings toward a future caregiving role, whereas geographic distance and beliefs about the controllability of psychiatric symptoms reduce expectations of future involvement.
Keywords family caregiving; sibling relationships; schizophrenia; mental illness; caregiver gainsWith the rise of deinstitutionalization in the 1960s, many persons with mental illness turned to their families for support because of the lack of adequate community-based services. Even today, with the presence of an array of community services, family members, in particular parents, are often required to step in to fill in the gaps in the service system. However, as parents age, their capacity to provide support diminishes and ultimately ends (Lefley, 1987). It is generally assumed that siblings will become the next generation of caregivers for adults with mental illness (Hatfield & Lefley, 2000;Horwitz, 1993;Wasow, 2000). However, little is known about the willingness of siblings to take on a future caregiving role or the factors that may propel or deter siblings from taking on this role in the future. In this study, we investigate two research questions: (1) To what extent do siblings expect to be involved in future caregiving tasks for a brother or sister with schizophrenia? (2) What factors influence sibling expectations for assuming a future caregiving role for a brother or sister?This study extends our prior work on the role of siblings as future caregivers for adults with mental illness in three important ways. First, in our earlier work, the outcome was limited to whether or not siblings expected to be involved in the future direct care of their brother or sister with mental illness. In this study, we asked siblings about their caregiving expectations or intentions with respect to a broad range of instrumental tasks and emotionally supportive activities. We focused on behavioral expectations or intentions toward future involvement because intentions, although not the sole determinant of behavior, are better predictors of behaviors than attitudes (Fishbein, Hennessy, Yzer, & Douglas, 2003). Second, we gathered data on a much richer array of factors that may influence the extent to which siblings expect to provide instrumental and emotional support to their brother or sister with mental illness when their parents are no longer able to assume a caregiving role. Third, whereas our earlier
NIH-PA Author ManuscriptNIH-PA Author Manuscript NIH-PA Author Manuscript study focused on siblings of persons who had a broad range of serious mental illnesses (e.g., depression, bipolar disorder, and schizophrenia), in this study we narrowed our fo...