“Can you hear me OK?”: Caregivers of Children With Medical Complexity and Their Perspectives of Virtual Care During COVID-19

Fong, Vanessa C.; Baumbusch, Jennifer; Khan, Koushambhi

doi:10.1016/j.pedhc.2023.08.008

Journal of Pediatric Health Care

2024

DOI: 10.1016/j.pedhc.2023.08.008

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“Can you hear me OK?”: Caregivers of Children With Medical Complexity and Their Perspectives of Virtual Care During COVID-19

Vanessa C. Fong,

Jennifer Baumbusch,

Koushambhi Khan

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Cited by 2 publications

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Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

Simmers,

Teague,

Letzkus

et al. 2025

The Journal for Nurse Practitioners

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Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

Simmers,

Teague,

Letzkus

et al. 2025

The Journal for Nurse Practitioners

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Caregiver Experiences, Healthcare Provider Perspectives and Child Outcomes with Virtual Care in a Neonatal Neurodevelopmental Follow-Up Clinic: A Mixed-Methods Study

Raghuram,

Noh,

Lee

et al. 2024

Children

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Background: Caregiver and healthcare provider perspectives of virtual care have not been explored in depth in the literature for neonatal follow-up clinics. Our objective was to evaluate caregivers’ and healthcare providers’ perspectives and compare neurodevelopmental outcomes of preterm neonates before and after implementing virtual care during the SARS-CoV-2 pandemic. Methods: Semi-structured interviews were conducted with families and healthcare providers, designed and analyzed using phenomenological qualitative methods. A retrospective cohort study was conducted to evaluate and compare neurodevelopmental characteristics of two preterm cohorts, one before (“in-person”) and after (“virtual”) virtual care. Results: Three themes were identified: increased confidence in in-person assessments, adequate delivery of information using virtual platforms and a preference for specialized care through the neonatal follow-up clinic. A total of 252 infants born preterm, 104 infants in the in-person group and 148 infants in the virtual group, were included in the study. The adjusted odds ratio (aOR) of cerebral palsy was lower when virtual care was used compared to in-person assessments (aOR = 0.11, 95% CI 0.01–0.98) while the adjusted odds of cognitive delay measured by in-person standardized testing were higher (aOR = 2.78, 95% CI 1.25–6.19). Conclusions: Caregivers and healthcare providers prefer in-person assessments for comprehensive developmental support. It may be more challenging to detect subtle cognitive differences using caregiver-reported measures. Cerebral palsy may be missed when assessments are completed virtually.

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“Can you hear me OK?”: Caregivers of Children With Medical Complexity and Their Perspectives of Virtual Care During COVID-19

Cited by 2 publications

References 28 publications

Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

Telemedicine Visits After Hospital Discharge in Children With Medical Complexity

Caregiver Experiences, Healthcare Provider Perspectives and Child Outcomes with Virtual Care in a Neonatal Neurodevelopmental Follow-Up Clinic: A Mixed-Methods Study

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