Cancer across the ages: a narrative review of caregiver burden for patients of all ages

Junkins, Courtney C.; Kent, Erin E.; Litzelman, Kristin; Bevans, Margaret; Cannady, Rachel; Rosenberg, Abby R.

doi:10.1080/07347332.2020.1796887

Cited by 36 publications

(29 citation statements)

References 76 publications

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“…Caregiver burden is typically described as perceived emotional, social, physical, financial, and/or spiritual strain as a result of providing care [ 8 ]. A recent review confirms the association between high caregiver burden and poor psychological outcomes in cancer populations of all ages [ 9 ]. The review highlighted that perceived caregiver burden was associated with negative impacts on work productivity and finances, changes in social and family relationships, and increased needs for direct intervention and support [ 9 ].…”

Section: Introductionmentioning

confidence: 73%

“…A recent review confirms the association between high caregiver burden and poor psychological outcomes in cancer populations of all ages [ 9 ]. The review highlighted that perceived caregiver burden was associated with negative impacts on work productivity and finances, changes in social and family relationships, and increased needs for direct intervention and support [ 9 ]. Caregiver burden can also impact the capacity of caregivers to provide quality care and consequent health outcomes for care recipients.…”

Section: Introductionmentioning

confidence: 73%

“…Although studies have shown that lack of perceived social support is positively associated with depression and anxiety in caregivers [ 21 ], currently little research examines whether perceived social connectedness impacts psychological health outcomes in caregivers and, if so, how. Further, although the relationship between caregiver burden and psychological symptoms is well established [ 9 ], there exists a gap in understanding whether social connectedness interacts to moderate this relationship. An understanding of factors that moderate the relationship between caregiver burden and psychological wellbeing would enable researchers to develop effective interventions to assist caregivers in reducing depression and anxiety symptoms as they provide care to a family member or friend.…”

Section: Introductionmentioning

confidence: 99%

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The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness

Yuen

Wilson

2021

Current Oncology

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The present study: (a) examined the extent of caregiver burden and psychological wellbeing and (b) tested whether social connectedness moderated the association between caregiver burden and psychological symptoms in caregivers of people with cancer. The cross-sectional survey study included 189 cancer caregivers (mean age = 36.19 years, standard deviation = 11.78; 80.4% female). Data were collected on caregiver burden, social connectedness, and depression and anxiety. Moderation analysis was conducted to examine the effect of social connectedness on the relationship between caregiver burden and depression and anxiety. Caregiver burden was positively associated with depression and anxiety symptoms. Controlling for significant demographic and caregiver characteristics, the moderation model showed as perceived social connectedness increased, the relationship between caregiver burden and depression decreased (β = −0.007, se = 0.004, 95% CI: −0.014, 0.000, p = 0.05). By contrast, social connectedness did not moderate the association between caregiver burden and anxiety. Findings have implications for the management of depression in cancer caregivers. Social connectedness appears to provide a protective buffer from the negative impacts of caregiving, providing increased psychological resources to manage the burden associated with caregiving, resulting in lower depression. Research on strategies to improve caregiver wellbeing through enhancing engagement with social networks in ways that improve perceived sense of connectedness with others is warranted.

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Section: Introductionmentioning

confidence: 73%

Section: Introductionmentioning

confidence: 73%

Section: Introductionmentioning

confidence: 99%

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The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness

Yuen

Wilson

2021

Current Oncology

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“…Third, with cancer rejuvenation, more interventions designed for younger dyadic units need to be considered because they may face different challenges than the old—balancing cancer with work, family, and child-rearing issues. 71 Finally, despite the scope of the review being large, studies on low- and middle-income country regions remain missing. 72 Cancer is a global problem, and populations in low-income areas may face more emotional distress.…”

Section: Discussionmentioning

confidence: 99%

Effectiveness and moderators of cancer patient-caregiver dyad interventions in improving psychological distress: A systematic review and meta-analysis

Pang

Jin

Wang

2022

Asia-Pacific Journal of Oncology Nursing

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“…Providing care for patients might affect the caregivers physically, psychologically 1,2 and financially. 2 The various consequences of caregiving are known as term “Caregiving Burden”, which includes a set of reactions in the caregiver that occurs in physical, psychological and social domains. 3 Which is due to the lack of coordination and balance between the responsibilities of the caregiver to meet the patient's care needs, and other tasks and roles in social, personal, physical and emotional situations, as well as financial resources available to him/her.…”

Section: Introductionmentioning

confidence: 99%

Caregiving burden and social support in family caregivers of patients with cancer: A cross-sectional study

Karimollahi

Abazari

Tazakori

et al. 2022

International Journal of Care Coordination

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Introduction Providing care for patients by family caregivers causes in several consequences known as “Caregiving Burden”, which affects the caregiver's health and the whole family process, considered in holistic healthcare/nursing. This study aimed to evaluate the caregiving burden and social support in family caregivers of patients with cancer and their influencing factors in a local area in Iran. Methods In this cross-sectional study, 190 family members of patients with cancer were studied through convenient sampling method. Data were collected using demographic data sheet enriched with Karnofsky Performance Status Scale and Katz Index of Independence in Activities of Daily Living (ADL), and Zarit Burden Inventory and Medical Outcomes Social Support Survey questionnaires. Results The results indicated intermediate performance status and moderate independence in ADL in patients. The mean score of caregiving burden was 43.95 ± 17.48 which indicates moderate to severe burden. The average social support in the caregivers was 60.25 ± 23.81% which shows above the average social support. Both performance status and dependence in ADL of patient had statistically significant effect on the caregiving burden in caregivers. Also a statistically significant negative relationship was observed between caregiving burden and social support in primary family caregivers of patients with cancer. Discussion Considering the increasing importance of primary care provided by families, developing strategies for providing caregiver's needs through family care in cancer nursing is essential. So supporting caregivers through family nursing in holistic healthcare by providing social support, can play a significant role in reducing caregiving burden in healthcare services considering the qualified holistic healthcare/nursing.

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Cancer across the ages: a narrative review of caregiver burden for patients of all ages

Cited by 36 publications

References 76 publications

The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness

The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness

Effectiveness and moderators of cancer patient-caregiver dyad interventions in improving psychological distress: A systematic review and meta-analysis

Caregiving burden and social support in family caregivers of patients with cancer: A cross-sectional study

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